Anyone have weird neck and jaw stuff?

Try to pay attention to what leads up to it. Is it random or is there a trigger that happens up to 2 days before this?

Are you clenching or grinding your teeth?

Is there any extra stress just a bit before this happens? Does it happen every day?

I used to have real issues with clenching my teeth involuntarily. I didn't hardly know I was doing it, but that would always lead to my neck getting stiff.

These could also be completely unrelated to each other, other than through having Lyme. A stiff neck and tight jaw muscles are also Lyme symptoms.

I actually used toothpicks to help stop myself from clenching my teeth. Each time I caught myself clenching my teeth, I put a toothpick in my mouth to at least cushion it a bit - and it helped me stop!

You can get Celestial Seasonings "Tension Tamer" tea to help you relax a bit - but you have to want to relax for it to help.

I think finding our triggers is the biggest thing we can do, and to avoid them when possible or find solutions.

Is it time to get your eyes checked? My eyeglass prescription changed while I was infected, and then got better when I was healed.

I suffered TMJ from the age of 9. I think your symptoms are pretty common with TMJ. But the "why" is MAYBE the lyme & co. infection. My TMJ got really bad after I was bitten and infected with lyme. There are nerve relationships all throughout your head. I had many episodes of migraine or light-headedness and eye issues associated with increased jaw clenching or grinding. Also, there is a connection between your sight and middle ear and balance—but can't articulate it well.

I'm sorry you're going through this—it's miserable.

-p

It could be from a blood pressure problem or migraines.
I started getting a stiff neck and jaw when I first got my dx so
those could be from lyme or babesia.

Have you asked your LLMD about these things? And do you keep a record of it all, it really helps.

My teeth clenching used to give me horrible headaches. It would start with my teeth clenching and move to jaw tightness/soreness -and if I couldn't get the teeth clenching to stop, it would progress to neck tightness, which could lead to all types of headaches, even a few migraines.

I would suggest that you try several things to see if any of them help ease any of this for you. You may not be able to do much about the different pupil size, but you might be able to get relief from some of the other symptoms.

My teeth clenching happens at night when I sleep. I have a lot of neck pain, but not a stiff neck.

My fiance has been going with me. He doesn't seem to take my symptoms very seriously. I don't think he will believe it unless my test results come out positive.

He's watched under our skin and I've emailed him some stuff. I spend a lot of time feeling shut out by him. Maybe he doesn't mean to but it seems like he doesn't care very much. He expects a lot of productivity from me and I can't always keep up. No matter how hard I try I'm just not a normal person right now.. breaks my heart daily.

Anytime I try to talk to him about being sick he changes the subject. Sucks. I feel very alone in my household. I wish my mom could come back :(

A lot of us with Lyme feel shut out because for other people it is SO hard to understand that something so small can pack such a powerful and devestating blow to our lives.

I for one just finished hiking 2587 miles with my wife on the Appalachian trail. I used to be EXTREMEMLY active. I would climb 14000 foot peaks in Colorado on my off days from working manual labor at a golf course.

Now I work pizza delivery and even that exhausts me. I deal with the neck pain and the severe jaw pain. Most days I try to hide my illness as best I can and I would say that every person I work with has no idea I am sick. Also sometimes the people in my life that are very close to me see me trying so hard that even they fail to realize I am sick.

It is a very lonely existence to be sick and to look normal. Lyme is such a misunderstood disease and maybe once people start to realize just how intelligent and stealthy this disease is and also how devestating it is to people then lymies will finally get the compassion they deserve.

I feel for you and understand how difficult this is.