Probably my last post.

Ginger—
I am so sorry you're in such a complex situation and feeling backed up against a wall. If there is any way that you can continue posting, please try to do so. You know that we will try to help in whatever way we can. You might have to be the one to coax your ID doctor along with current info about lyme. He won't like it—but it might be necessary to continue barking up that tree. Whatever you do, please try to stay connected with us.

-p

Hello Ginger3166.

You're not wasting people's time. The reason why we have this forum is to help each other in anyway that we can. With so many members here that have the same health condition as you, I believe that staying here would be better for you. Don't give up yet.

That's sad. I've been there, as I'm sure many others have as well. Not getting the help you need, no one believing you, not being able to support yourself. Ha, the ID doctor I saw acted like Lyme was the least likely cause of my troubles. My family had complete faith in the words of all the people I'd been seen by over the words of their own kin. That's just part of the process, for some. It's crazy, what we have to go through with this stuff. This huge fight. Fight the effects of the sickness, fight to get rid of the sickness, or fight to get to a point in life where you can actually begin to fight. It sucks, especially considering.. life's often so much of a fight without things like Lyme coming along and weakening our abilities to do just that, keep fighting.

So, yeah. While I don't think you should give up and simply resign to being sick, as it will continue to get worse, I don't have much to say in support of you. I'm pretty deep in the hole myself, don't have the knowledge you need, and I'm not the full-of-hope sort.

But, who knows, you might have a chance at health? Appeal to your husband and whoever else as clearly and passionately as you can.

Try, try until you can't anymore, that's really all any of us can do.

Too bad the odds are so against us.
--
Sorry if I said too much, sorry I am no help, sorry if I am discouraging in some ways. This is about you, your struggle. I wish the best for you. Sorry it is so tough. Lot of sorries these days.

Ginger—I think you should go ahead and take the nystatin. I think I posted in a different thread that you should find some pure nystatin powder—might have to go to a compounding pharmacy but it is cheap. If you can't do that, I would break apart the nystatin capsule and pour the powder into a couple tablespoons of water—and double the dose. And swish it around in your mouth and gargle with it a bit. Chloroseptic also helped deaden the pain for me but don't take both at the same time. Keep posting!

-P

Oh - I see. Ask the Dr if he can get his hands on the powder form. It is pure nystatin anti fungal and has nothing else in it—certainly no sugars.
Here is one source (the $23 bottle would likely last you at least a month):
/www.healthwarehouse.com/nystatin-topical-powder-15gm.html?gclid=COe_irvf9sECFZRgfgodD68Aiw

Sorry you are going through this. But the people on this board are full of help and support and can help guide you in the right direction. Now I know you can't get to an LLMD or get abx treatment at the moment, but ask around the board about treating lyme with herbals and naturally. A good amount of people on here know a lot about treating lyme naturally and with herbals and they can help you out. There are some cheap ways to detox and treat naturally as well just ask around the board and I am sure someone can guide you to these natural treatments. Take care and be well.

I'm sorry your family is not supportive. I'm fighting for my son and my family (3 other children and husband) are not very supportive and I feel very alone as well as he has the psychotic symptoms - no pain, no exhaustion, or digestive issues, etc. Just won't do work, school or homework and is full of rage, tics, ocd,etc.

I figured it out - the psych ward said OCD, TICS, ODD and finally bipolar. I found lyme can recur (it was in his knee 5 years ago) and it can cause all this craziness.

So, get your family at least to read "Cure Unknown" - it certainly blew me away , or watch Under Our Skin. Maybe they can convince your husband - I can't believe how huge a population in this world is SO NARROWMINDED. Even friend of mine, I now advise to get tested - they keep ignoring me like I'm crazy. So I just say sorry you are sick, hope you feel better some day.... can't force them, but really, if I was sick, I'd consider anything!

Hang in there!!!!!!!!!!!!!

Cairn, I'm so sorry that you have been put in a position that you had to resort to that, but we do have to put our health first, for without that we have nothing.

Know that we are here to help support you in whatever way we can and to help you through this as well.

Please stay with us, no matter what.

This is our lifeline, and we need one another.

Suffering is made lighter when shared, and there is never a bother amongst us.

WE ARE FAMILY. We are Community. We need YOU. Please.

Please dont go! "Nothing GOOD...ever comes EASY"! When all strength is lost, please dig deep to find some more. I know I have. We all have. Its sad that our loved ones do not understand. Some do, but some dont. It unfortunate that MOST dont.

The old you is still in there, infections or not. YOU CAN BEAT THIS. Stay in the forum so we can be each others support. Continue to arm yourself with knowledge about the illness. If you cant afford an llmd, go the natural route for now. Buy piece by piece. Reach out to churches, social services, or any kind of community support. Sincerely tell them your situation. Anything will help and use it wisely. My livlyhood is currently selling on stuff online. You would be surprised the things you have around your home that you can get money for. This would be an option for you as well. I would be open to teaching you the ropes as it is really easy.

Do you take any supplements? These alone have helped me feel better and get by when not on abx esp a multi-vitamin.

Please keep hanging in there....and even "fake it till you make it" if you have to. There are so many times I want to complain all day but I learned it doesnt get me anywhere. Its hard when we dont look sick but feel so bad so therefore we try to voice it at least to let people know our shortcoming are due to being sick from lyme...but its like talking to a hole in the wall (as my grandmother used to say)...they just dont get it unfortunatly. As hard as it may be, *Make* yourself do things that arent lyme related*. The disease will consume your being and thoughts if you let it. I have had to *make* myself get away from all things Lyme including using the internet to always everything lyme. Music helps me immensely with taking my mind away.

If things get too dark for you, then maybe an anti-depressant may help you get through. I was always opposed but I did bite the bullet and take Zoloft for a couple months when my mind could not shut off the dark thoughts and it helped! It got me out of the dark funk-thank goodness. They just put a generic form out of Zoloft and you can get filled at Walmart for a very cheap price also.

We may not know each other personally in this forum but we are all connected. I just said a prayer for you. *Hang tough hun*


Much Love & xx's-Courtney