Pants are unbearable :(

I have it with bedsheets. When sheets touch me, it feels like my skin is on fire. Weird because I'm ok in clothes. It has gotten a little better but it's still an issue for me.

I don't like my skin being touched by anything,
Hugs are difficult =[

Those are all my issues. Mine is head to toe, with the most sensitive being the calves and feet. It is either an active lyme infection, or the damage done by lyme to your peripheral nerves. Just like lyme arthritis, the bacteria in this case inflames the nerve endings. I am now taking 3600mg of gabapentin for the nerve pain. I don't really know if it works, but I'd rather not stop taking it to find out it does work if you know what I mean. You might need to go to a neurologist to get a dose that high. You can also try Lyrica but that costs a lot more.

Sorry to hear you guys are having the same issue even though it's comforting in a way to know I'm not alone.

I've seen two neorologists and tried many things including neurontin, lyrica, cymbalta, capsacain cream, voltaren gel, lidocain ointment, pain killers, ativan, and plenty of over the counter meds. Nothing seems to help much. I'm seeing a new pain management doctor who can hopefully help me out.

I bought myself an infrared sauna and use it daily along with epsom salt baths which is the only thing that gives me any relief, although very temporary.

I'm also seeing a second llmd to see if she might offer some insight. My current llmd said there's nothing she can do for it and the only thing I can do is get IVIG treatments which are like $10,000 per treatment...

I pray and hope that anyone suffering from this can find relief in some way. I remain hopeful that I will find a solution and will keep trying. In the meantime, loose/comfortable pants are my friend...

:)

Joey, because the detoxing does give you some relief, you likely need to really increase what you do for detoxing to find some better relief.

Many of us have to detox like mad in order to keep up with the amount of toxins that are being produced while we are in treatment. A simple addition of a binder could be all you need, or you may need to do more.

Thanks guys!!

That would explain why my burning has gotten worse and worse the longer I treat with antibiotics.

I am going to completely ramp up my detoxing routing starting with a binder and diet to see if I can get to the toxins from the inside. Most of my detoxing is external so that is definitely where I'm lacking.

Going to just try to remain positive and keep moving forward. :)

Have a great day!!

Post Edited (Joeyphoenix) : 11/20/2014 3:10:42 PM (GMT-7)