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A reflection on my path to wellness

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Posted 11/21/2014 3:41 AM (GMT 0)
Hi guys,

I used to come on these boards a bit when I had been first diagnosed a couple years ago. I took a break from the lyme boards to just focus on my treatments. It's taken me a few years but I'm finally in a good place. Im not in full remission yet, but my doctor thinks I'm very close.

Anyways, my latest blog post has been my reflection on everything I;ve been through with Lyme. Other lyme patients have enjoyed it so far, and I hope you all will find it relatable as well.

My main goal is to get this post into the hands of those who are in medical school, or just entered into medicine. Basically the ones that haven't been corrupted yet. At some point, the medical community needs to change in their stance to Lyme and I believe the new generation of doctors is a great place to start.

Ok, Ill stop talking now, please give it a read. Thanks!

http://2012travels.blogspot.com/2014/11/i-remember.html
Posted 11/22/2014 3:25 AM (GMT 0)
Glad to hear that you are close to remission. It is not easy, so congrats for the effort that it took to get there.

I love to hear stories of success, it gives me hope that one day I too will heal.
Posted 11/22/2014 8:04 AM (GMT 0)
I just finished reading and am now following your blog. Your story touched me and I can relate all too well.....



xx's-Courtney
Posted 11/28/2014 2:21 AM (GMT 0)
Thanks for the support and kind words!
Posted 11/28/2014 3:55 AM (GMT 0)
I really liked reading this.
what percent better do you think you are now?
What treatments is your doctor doing that are working for you?
I read your other posts on your blog and yes can relate to lots of it.

Post Edited (Katebirch) : 11/27/2014 9:55:38 PM (GMT-7)

Posted 11/28/2014 4:49 AM (GMT 0)
Thanks so much LymeLight7 for sharing this. I can identify with so much of your story. Just an hour ago, my severe upper GI issues flared up. This nearly killed me last year and these nasty debilitating episodes went away for awhile but now it seems they're back since I started IV treatment. And that terrifies me because they are so intense.

But also grateful for the in-between days when I get to focus on other less crazy symptoms—too numerous to count. ;)

I went undiagnosed for 15 years during my 20s and 30s. That time is lost and I fear I will never not be angry and bitter about that. We'll see. I sense peace and surrender in your story—I hope I can evolve to that point.

I see that you had a port—would you like to share anything else about your treatment that you feel was or wasn't beneficial?

I don't have to tell you this—it is so critical that those who have healed (and have normal brain function!) share their stories for those of us who are still struggling and need information and means to share information with loved ones and caretakers as well as inspiration!! But also, it is so important to share with the medical community and the public at large.

Thanks—

-p
Posted 11/28/2014 8:42 PM (GMT 0)
Ditto what Pirouette said " I don't have to tell you this—it is so critical that those who have healed (and have normal brain function!) share their stories for those of us who are still struggling and need information and means to share information with loved ones and caretakers as well as inspiration!! But also, it is so important to share with the medical community and the public at large."

Its hard to describe the bitterness attributed towards the clueless medical regime that, we at one time, put so much trust into. They blew me off since the late 80's, had all the classic symptoms one summer, then it went chronic. Started LLMD 2013. I had some good times in between vast limitations. But still, I was robbed of time that I cant get back. Everyone says life is what you make it, but did they have invisible handcuffs around their health? No, they didnt. Nuff said.

educating the young drs is the the only hope, and older ones that aren't corrupted. The few corrupt ones I still encounter - I almost blow up on them. There so incredibly stupid. Then again, I've met plenty of PHD's that are stupid in some way or another.
Posted Yesterday 4:59 PM (GMT 0)
Hey Im really glad many of you could relate to some degree. I will write a blog post soon that will detail my recovery as much as I can with medications and treatments that got me better. It'd be too long to just post it in here, I'd really have to collect my thoughts first. So follow the blog if you'd like and you'll receive a notification when its up.

However, if there is one thing that really pushed my treatment forward its the biofilm protocol. I treated for a year or longer without seeing anything. No reactions to meds, no improvements, just slowly getting worse. No one could really understand it. Even the IV antibiotics provoked little to no reaction. When I went on lactoferrin and xylitol to kill off the biofilm, i heard severe herx's but it opened up the illness and allowed it to be treated

I actually got well without IV's, just using oral abx and herbals and they work since the illness doesn't have the biofilm as its shield. Also, you have to figure out what co-infections you have and treat them vigorously. My main problem had always been babesia for the three years of my illness, it's finally gone. No symptoms from babs, or reaction to meds for it. But after we got rid of that we discovered I has bartonella and am working on taking that out, and we are.

I would say Im 80% on the days Im not treating, a long way from being at 5%. But I still do herx because were trying to finish off the bart. Hope this helps.
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