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Posted 11/30/2014 8:18 AM (GMT 0)
I've never posted here before, but am feeling very alone. Been sick for 5 1/2 years and finally diagnosed 1 year ago. Have a good LLMD, been taking abx ( now on azithro and tinidazole ). Some things are better - others not so much. My symptoms go away and then come back with a vengeance! My worst right now is dizziness / motion sickness, etc. looking for any signs of hope or encouragement that this will get better...
Posted 11/30/2014 8:33 AM (GMT 0)
Hi stonewall Welcome- to the forum!


It can take a long time to heal especially if we've had symptoms for years.

This is a great place for support and information.

Are you detoxing regularly?

Please keep reading and posting - we're here to help you!
Posted 11/30/2014 11:37 AM (GMT 0)
We are so glad you posted.

Welcome, and I hope we can become a place to turn
for support, answers, and to share in your victories.

Diet is important, so keep this in mind.
Plus, this is a marathon, not a sprint.

Together we are stronger than alone.
Posted 11/30/2014 4:17 PM (GMT 0)
Thanks for the replies and support.

I am not really detoxing regularly. My LLMD doesn't really subscribe to most non-western methods, so I'm seeking out another opinion that will hopefully incorporate some other remedies.

Would love any suggestions!
Thx!
Posted 11/30/2014 5:22 PM (GMT 0)
If you check out the "New to Lyme" thread at the top of the board you'll find a lot of information to help you on your journey.

I know it sounds New-Agey to focus on detox, but there's a sound medical basis for doing so when fighting Lyme&Co.

The abx you take is killing bugs, the bugs release toxins when they die, and because of the disease we can have trouble clearing the toxins efficiently. This can cause increase in symptoms and some very rough times when being treated, and it tends to go in cycles since the bugs have a life cycle and they are killed off in waves.

I drink lots of lemon water with minerals to flush my kidneys and replace deficiencies, exercise/sauna to help the lymphatic system and skin, take hot baths or showers; simple things like that can help a LOT.
Posted 11/30/2014 6:38 PM (GMT 0)
Thanks. I read thru the New to Lyme posts and will definitely try some do the suggestions for detoxing. I think I am most dismayed by the very slow and up and down nature of this treatment. Seems I have good periods - three steps forward - but then I feel awful again. Two steps back. Having been a generally strong, healthy person before this all started 5 1/2 years ago, I guess I'm still adjusting to this process.

And it did take four years to get diagnosed...

I watch my diet religiously. Organic, lots of veggies, no crazy chemicals - I eat real food that isn't processed. I also recently cut out all sugar and dairy at the suggestion of my acupuncturist. She said the sugar feeds the bacteria and I should avoid it. Part of me wonders if this diet change has brought on some of this.

In any event, I'm so grateful to have a place to ask questions and get suggestions from people who understand what this is like.
Thank you!
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