Scared my Lyme is bring on ALS

I'm so scared my Lyme is giving me ALS. I've read a lot of literature about the connection between the two and lyme causing ALS.

I started getting a pain in my left hand and arm when holding things. Like if I hold a cell phone it would start aching in my forearm. When I was first sick ( a year ago) I would be so sick for weeks on end and not be able to do anything beside lay down. So I would naturally be on my iPad for hours and hours and I first noticed my left arm would start hurting and get Weak.
I quite supporting my ipad with my arm months ago but still get weakness or pain whenever I hold something. It used to be mild but now when ever I hold anything for more then a minute I'll get pain. My arm actually tend to ache all the time, even when it's just resting next to me.
I also get twitching all over my body randomly all day, especially when I'm sleeping and I have a slight slur that will come and go, all which are ALS symptoms. I've also had breathing problems but my natural path thinks it's the Babesia. But I don't typically see Babesia patients complain of trouble breathing when laying down flat...another ALS symptom.

I'm seeing a neurologist after Christmas, I'm so scared to though.

My natural path seems to think I don't have ALS (mainly because of my age) but still wants me to get checked out.

I'm 29 with 4 children, I keep thinking about leaving my children without a mom and how devastated they would be.

Anybody have any insight or experience this this?

Jessicah—
TOTALLY agree with Margaret and frewoooo— those sx are pretty common for us here and scream lyme & co. I'm so sorry you're feeling scared and nervous. Completely understandable and I am really glad you have a neuro appt coming up. I hope the neuro is "lyme friendly" but if not, please keep in mind that you probably know more than he/she does about lyme.

And PLEASE keep us posted and let us know how your appt went and how things are going for you.

Love this comment: "…we can never assume that we really know what we treated once a patient has recovered." Wooaahh! I think there's a lot of truth in that.

-p

If it eases your mind any hun...all your symptoms you have ....happen to me...and I have Lyme and babesia...the aching and pain in the arm has gotten worse while trying to hold something as simple as my phone...ive even tried switching hands and now it has even traveled into both now....

I get the twitching as well...it started in my left leg... And my eyes....has now moved all over my body...legs hips arms face....

I slur my words now and again....mostly mash them together like a small train wreck...and I will say....what was that word? It can be scary...but please try not to scare yourself into other diseases...Im even starting to have issues with walking and air hunger..my body wants to stop walking like paralyzes temporarily and I can't breath...I need to immediately lay down....and all I did was walk to the bathroom...or yes...just laying here and air feels heavy....it all makes sense to me...lyme is scary....and the more you stress...the more you work yourself up..

Try and stay as calm as you can and know we understand you here....relax as best you can...Epsom salt baths make me happy to relax once in a while for those stressed out muscles give it a try

Thanks for all your responses it made me feel better!

Teragram- I'm sorry your mom had ASL, I've read so much on it and it is an awful disease.
I read of a lot of people who's first symptoms were hand/wrist/ arm pain that would gradually get worse along with the progressively worse twitching and that scared me because that is what's happening to me. This lady's son who attends Boston University plays on there baseball team thought he broke his wrist (and otherwise was in good health) went to the doctor for the weakness and got diagnosed with ASL.
My doctor thought I didn't have it based on my age and hearing that story and knowing he was young worried me even more.

Frewoooo- Thanks for the article, I read dr. Mecola all the time so I should enjoy this.

Pirouette - Thank you, and I will update

LillymFighta- Thank you it does ease me mind! Sometimes I feel like I'm the only one feeling certain things and it worries me, like my symptoms are less common so maybe it's not Lyme. I didn't know what I hard for almost a year and even when I found out it wasn't a CDC positive, but I hear a lot of people say that and wonder if Lyme is what they really have.

Happyjo- When I was first sick I had every MS symptom and I swore I had it. Do you have Bart's? I have tons of neuro stuff and was really shocked when my igenex test came back negative. Thanks for the links, I'll check them out.

To everyone who mentioned seeing a Lyme friendly neurologist....I would love to! Unfortunately in Washington state I haven't found any doctor who is lyme friendly. I've had physicians, neurologist, rheumatologist and internal medicine doctors all tell me Lyme doesn't exist in Washington. It's really frustrating.
My LLNP told be it would probably be a good idea to not even mention the L word or they might not even treat me or take me seriously. And I believe that, before my Lyme diagnosed my primary care doctor dropped me as a patient because I wouldn't believe nothing was wrong with me!

I hear it's worse in Oregon and Idaho.

Aww hun...im not CDC positive on alot of levels either...but I'm Lillymfighta level and most days that's a living hell...The CDC hasn't had Lyme...but they have to draw a level somewhere I guess? And all our silly symptoms...that are never the same for everyone...and I have to say...mine change every day... I wouldn't mind inviting mr & mrs CDC whoever they are over to walk a day or two in my shoes.....or should I say lay down in a fetal position....I dont get too far xoxo Chin up sweets...we got this battle...every minute of every day...we are gonna win it! We've made it this far...right? ;)

LilLymFighta- Love it! I want the CDC to come to my house for a day! They can explain to my 11,8,6 and 4 year old kids why I can't drive them anywhere or leave the house more then once a week for a few minutes....if I'm lucky, the can explain why mom is to sick, tired, and weak to do anything but then again mom is perfectly healthy according to the CDC and AMA dr's lol. I'm glad my husband and I have a good sense of humor it's one of the things that pulls me through!

Agreed...I have blamed myself for so many reasons why my kids 14 & 16 just aren't living the fun teenage life....I used to be the mom that would bring them everywhere and anywhere....and now I feel like all they hear is no...im sick...I just cant...Boy does that make me feel like horrible mom of the year...especially when they're at school and they text me wanting to come home because they just dont feel well....but I can't get out of bed to get them....and I have to find someone to go pick them up....when I know I am the mom who would move mountains for them...but that day...I was stuck under the mountain....how could I allow that to happen... :(

Reduce the oxidative stress and you won't have a problem. Download and read Autism: Pathways to Recovery. Do what she advocates and you won't get ALS. It's free and the knowledge you can gain is invaluable for every medical condition.