Names of Lyme Literate Medical Doctor (LLMD) near Hartford, Wisconsin 53207

Hi,

Doe you have any names of Lyme Literate Medical Doctors(LLMD) anywhere near Hartford, Wisconsin 53207.

Thanks very much. I appreciate any ideas you have.

Thanks. I set up an e-mail.

I am doing this to help a very sick friend with Lyme's. She's unable to even sit at the computer. I know she has done protocols to get rid of toxins and I saw that there was a great deal of information under "New to Lyme? Start here".

My friend and I met on-line at a support group for fibromyalgia. At the time they thought she had fibromyalgia and later changed her diagnosis to Lyme's. Apparently, she has one of the worst cases of Lyme's the Lyme's doctor's she has been to have seen. We have known each other for years and talk frequently. Her husband is worn out from taking her to doctors and doesn't know what to do & doesn't really understand what she is going through. She is so afraid she won't make it.

I have been doing some research for her for the last few hours and will talk to her later today. I have already sent her an e-mail that you have some great information on your site and she should sign up when she feels a bit better. She has no friends or family nearby. We live thousand of miles away from each other and I can't travel to see her because of my own health issues. I am just trying to everything I can to keep her going and be there when she needs someone to talk to.

I will check out the fibromyalgia group on this site for myself to see if there is anything I haven't tried yet. I have been to all kinds of alternative therapists and it hasn't helped. The doctor's say that I am complicated and don't know what to do.

Thanks so much this looks like a really good place to be.

Hi,

Thanks I fixed my e-mail.

Today I was doing research for a friend who is really sick and was originally diagnosed with fibro, but later diagnosed with Lyme's. She has had all kinds of testing for Lyme's & apparently has it really bad. Her major problem right now is insomnia. She hasn't had much sleep for almost a year. She has panic attacks, is very depressed (because she doesn't think she will make it), I know she has problems with her cortisol levels, has co-infections like heavy metal and mold.

As far as myself, I have always told my doctors that I live in the woods, have been bitten by deer ticks many times and have cats that can be carrying them in the house. I have been tested for Lymes but most likely not the right test.I did have a spinal tap a long time ago and they didn't see anything. I have had a very difficult time finding a doctor who will treat me primarily for pain everywhere and there are only a few medications I can take since I started with fibro symptoms. I am either allergic to them, have side effects or they don't help. I can not take anti-depressants because they dry my mouth out so bad I have chronic thrush. I do take medication to sleep, but it is still not a restful sleep. I don't think I have Lyme's. As far as the fibro (and myofascial pain) a lot of it is up to me to make sure I pace myself, find ways to distract myself from the pain (like gardening),try to eat right, avoid stress and just keep moving and stretching. I do see a pain interventionalist (it was really hard to find any kind of pain doctor who would take me as a patient) and I got lucky because the pain interventionalist is interested in Fibro and does keep up on the research. The thing that has worked the best is the nerve ablation. Unfortunately, Medicare only covers it once every 6 months. By having to wait 6 months, it means I am starting all over again. My muscles get really tight and I have lots of knots that push on nerves. The first time I had the nerve ablation it took a couple weeks for it to start helping and helped a lot for a couple months then started wearing off. I had the nerve ablation done again about a month ago and it is taking longer to help because my muscles in my back were so tight they were aggravating the pain in my cervical spine where the nerve ablation was done. This doctor only does injections, she does not prescribe medications. My primary care doctor used to write all my prescriptions, but she closed her practice and I had to find someone else. It was really hard to find one who would write me prescriptions for sleep medication, anxiety, depression. I ended up with a primary care doctor who so far has written all my prescriptions. I see him every 3 months and he spends less than 10 minutes with me because that's the way he runs his practice. He just says I am complicated. I am going to look on this site to see if there is something else I could try (I have tried all kinds of alternative therapies). From what I have seen so far it is a great site. I have tried others but this one has a lot more information.

Until my friend feels a bit better, I will keep looking for information for her on Lyme's as well for me on fibromyalgia.

Take Care. I hope it is a good weekend for you.

You are not offending me at all. It would have made sense for me to have Lyme's since I was bitten by deer ticks so many time. Never had a rash. I saw a really good energy healer before I had to quit my job 7 years ago and she said I gave myself away. I worked too hard and did too much to help everyone else and my body just wore out.

Before I had the first nerve ablation in my cervical spine, my pain interventionalist ran some blood tests and I tested positive for mycoplasma pnuemonia bacteria. She said this was seen a lot with fibro patients and I did 3 courses of antibiotics. This bacteria has no symptoms and she never suggested that I be re-tested. My primary care doctor told me I needed to stay off the antibiotics for awhile or I could end up with ulcerative colitis which doesn't sound like fun either.

The pain interventionlist also said a lot of my pain is from arthritis from where I had a cervical fusion. The pain starts in my cervical spine and radiates up my neck and I get really bad headaches. It also radiates across my shoulders and all the way down to my hands. My muscles get really tight & I get knots in my muscles. This pushes on nerves so I get nerve pain too. It doesn't make sense that this is all from arthritis because I had a cervical fusion. I saw a chiropractor before and after surgery to keep my cervical spine working as it should.

I have had problems with my knees and pain & numbness radiating down my legs. She said I have arthritis in my knees.

My entire back tightens up like a steel vest & causes incredible pain. They haven't decided what to call this.

I have had fibro for at least 15 years and the kind of pain has changed many times over the years. It's been kind of like if the pain doesn't drive you out of your mind, the doctors will.

It is a good idea to see an LLMD. I never knew they existed probably because none of the doctor's I have seen ever suggested it. I will definitely look into this. Thanks for the great advice.

The tests showed mild arthritis which is why it didn't make sense. The pain I have can't be primarily from a little arthritis. On a scale of 1 - 10, I usually start out around 8 when I wake up, take Tramadol, Cyclobenzaprine, Mobic and Xanax & then the pain goes down to around 7. I think the Xanax helps the most with the pain even thought it is an anxiety medication. I don't have any choices on other meds, I have kept a list on my computer and it's unbelievable how many medications I have tried. Some I have tried more than once. I will definitely look into this. Thanks so much.

Hi Hope--there is a ND in Waukesha, WI whose name is Dr M she is at Serenity Health Center. You can check their website online for more info. Dr M has a good reputation for treating Lyme.

And Hartford,WI is not too far from Waukesha where her clinic
is located.

How did you feel when you were on the antibiotics?

I'm sorry to tell you, but your story sounds sooo much like someone with Lyme disease! I hope you take a look at some of these posts and the "New to Lyme?" thread with yourself in mind!!!

Steroids should never be taken when someone could have an infection, and I know that you had no idea that you could have Lyme and were only seeking relief - but if - and I do say if - you have Lyme, you will need to see a LLMD as soon as you can to get started on treatments.

Feeling better while on abx is very typical of Lyme - not of Fibro.

Girlie, there was no reason for me to post, really - you were talking with Hope and doing just fine! It was just that when I read more of her full story, I was sitting here shaking my head at what the docs were putting Hope through!

Unfortunately, I went through some of what Hope has been through as well, since Lyme isn't even recognized in my state. It's considered so rare that a person would likely die from it before they ever got treatment for it here. And those treatments are painful, and won't stop the pain - as Hope has found out.

It's because there is an infection that is creating the pain, not Fibro.

Hope: I do hope that you will seek out the opinion of a good LLMD for yourself as well. You can send me an email and I can give you a list of LLMD's that you can check out for not only your friend, but for yourself as well. Just be sure to let me know what areas I need to find the doc's in.

LOL! I don't know about being an 'expert', but I definitely am a resident here!! :smielwinkgrin:

But I do agree with Girlie! I do hope that you choose to find a LLMD for yourself as well. We are here to help in whatever ways we can!

And Girlie, I haven't let on, but we are much more alike than you may think! I have noticed that we have many things in common. It's just that it was the most disturbing one (Lyme) that brought us both to this site so that we could 'meet', but I've been grateful to have met you.

Hope - Sometimes a LLMD will put you on a course of antibiotics...and then have you do the Igenex test. I'm not sure of the details..ie how long on antibiotics (a few weeks, I think), and not sure how long you wait after being on them before having the test.
That will sometimes get your body to produce the antibodies.

Having said that, even with a negative blood test...LLMD's can still diagnose someone with Lyme disease - called a 'clinical' diagnosis...which means he/she will look at other things - your history, your signs and symptoms...and whether you had a bulls-eye rash...these are things that will help a LLMD determine whether you have lyme disease or not. The test...is often used as a 'back-up' to the diagnosis.

I'm relieved (and I bet Traveler is, too!) that you are going to see a LLMD.
We are here for each other...no one understands what it's like to have Lyme disease...unless you have Lyme disease...that be us!!!!

And Trav - I feel blessed to have met you! You are such a giving, selfless person...and you know a lot about Lyme disease!!! Forever grateful, am I.

Hi,

Has anyone had any luck with the hyperbaric treatments? How about renting a hyperbaric chamber & using it at home? My friend is hesitant about using one at home and I was just wondering if anyone here had tried it.

Does anyone know of any food supplements she can take. She is drinking a protein shake (with fruit & vegetables) or eating a bowl of cereal and then when her husband gets home he makes dinner. Neither one of them have the energy to go out and buy all the foods the lyme's doctor suggested and then prepare them. It would be a start if she could take some kind of supplement.

I am trying to get her to start fighting the Lyme's again. I know she's exhausted and very weak because of no sleep for a year, but she can't keep laying in bed or on the sofa all day and doing nothing.

Thanks
K