Dizziness - so fed up :-(

Please, please can anyone tell me . . . will this dizziness EVER go away? :-(. I am so, so tired of the constant wooziness, almost light-headedness . . . I've been in treatment for lyme for over 12 months now - 12 months of abx (including one month of IV) and now on Buhner-type protocol since beginning of last month. There have been improvements I suppose, with fatigue and weak leg quite a bit better, but i still have tingling/ burning/numbness in my feet/shins/forearms/thumbs/scalp . . . I'm so afraid this ISNT lyme at all, and I'm just totally wasting my time. I just want my old, non-dizzy, non-tingly head back!! :-(. Sorry, it just gets me down so much :-(. Please tell me if this ever goes away? Thanks.

Try doing the epley menouver. It may help it has for me. Just look it up on YouTube and give it a try

FlossieUK, you are probably correct that it isn't Lyme. Rather, your dizziness may be a symptom that is caused by a Hypothalamic Dysfunction. Or perhaps it could be Labyrinthitis or Vestibular Neuritis. Sometimes even a neck disk misalignment can cause dizziness.

You see, Lyme impacts so many organs in the body that when impacted, symptoms such as your dizziness surface. They can be treated the same way that you would treat such a disorder if you didn't have Lyme.

Lyme treatment will treat the problem eventually. However, for immediate relief, your doctor can treat it with medicine or a procedure such as Epley Maneuver or something similar.

My dizziness lasted about 6 months then it went away. Now that I am taking Rifampin it has returned. On the times that I have discontinued Rifampin, my dizziness has subsided.

Dizziness and a period of severe vertigo were the symptoms that made me realize I was going through something other than sudden onset migraines, idiopathic hypersomnia, and sinusitis. I got my Lyme diagnosis soon after. The migraines have faded, the sinusitis is gone, the exhaustion is still around, BUT the dizziness is still there - BUT, it's a lot better. The severe vertigo episodes are gone, though. I found that my dizziness was definitely helped when I started treating my co-infections and not just the lyme.

That being said, it still seems to be the most persistent symptom. The Lyme treatments definitely have done more for it, though, than my general doc and ENT did.

Flossie I had the dizziness for 4 yrs, finally got diagnosed a little over a yr ago and been on treatment for a yr now and it's pretty much gone just this month. I pray it doesn't return and I pray yours goes away soon. I also notice if I am sitting down and get up fast that I'm not getting dizzy. So there is hope. I tried the maneuver Harry talked about but it didn't help. A chiropractor who practices the NUCCA technique has helped mine in the past but of course it only lasted a few days and it was back. Hang in there, it will get better.

I hear you Flossie. One of my main symptoms is dizziness and I am fed up too! I have been in treatment for a year and it's gotten better but not gone. The odd day I won't experience any but it's usually with me every day to some degree. It was one of my first symptoms after chest pain and horrible fatigue and weakness so I am sure it will take a while to get rid of.

I'm sorry I don't have any answers for you either...just wanted to say I know the feeling.

FlossieUK did your symptoms relieve? I just got diagnosed and have the exact same woozy feeling.

artermix- just an f.y.i. - lynn1980 hasn't posted for over a year...so not sure if she will see this.

I have Lyme disease and it is easily misdiagnosed as MS. That said, I strongly urge anyone who is diagnosed with MS because they have lesions on their brain or spine to seek 2nd oppion from infectious disease Dr. (i.e: Dr. Jemsek, in Washington DC). DO NOT TAKE THE $40k medication(pill) which ultimately paralyzes you and suppresses your immune system causing havoc on your body later on. We are unfortunately in a place that is ruled by drug companies and government that seek personal gain for their self interests rather than help people heal with the simple and inexpensive use of antibiotics. I have been able to treat my Lyme lesions and make a complete recovery and so can everyone else who's untested in exploring the true and proven cure to Lyme disease and the majority of mis-diagnosed MS patients. I hardly ever post anything, anywhere, however I felt the need to share my experience and success with not having to end up in a wheel chair, in hopes of helping others
that might be in the same boat that I was in. You can get better and you can walk again if you have been Mis-diagnosed like I was. Lesions on your brain or spine DO NOT automatically signify MS! After 4 1/2 months of being on ANTIBIOTIC IV THERAPY (Ceftin, Docy, raphamtin, Manuka honey , Vit D, VSL PROBOTICS LIVE (45 billion) and a bunch of supplements) all my lesions and aliments disappeared. I hope my post help someone else's out there who's feeling lost or helpless.Don't this is just chronic infection and once you are able break through the brain blood barrier you will get better. Good luck to all! Warmly, a caring sole.

P.S. Remember you will get worse before you get better. That's a sign that you are killing the lyme spirochetes that are infesting your brain, eyes, etc. When you're on Lyme kill cycle the spirochetes release toxins When they die and that what causes you to feel so sick. You need to flush the toxins out as much as possible. I have infared Sauna and tried to drink lots of water. Long and short of my story is that it worked and I want to help as many people out there that I can . I just wish it wasn't as expensive, so hopefully my insight and experience can help someone without them having to pay as much as I did to get this info. (Program regimn). Send me a personal message if you'd like more details. Ultimately my goal is to get congress to pass the bill to treat Lyme appropriately based on my imperical evidence of a successful treatment and control of my Lyme disease. We can not continue to have CDC control our Dr's treatment routine based on their incorrect standardized treatment for Lyme that just touches the surface and doesn't allow them to profit as much as they do when there are people chasing their tales trying to figure out why they are still so sick. We can all win this fight together and be the healties, happiest and most impactful we have ever been. Hope to be part of helping you all heal.

Casen,

Hi! I went back and read a couple of your earlier posts to refresh my memory. Did you do the mold tests yet? Mold can definitely cause those symptoms, and since you haven’t improved on multiple abx, it certainly seems warranted to look into that.

Something odd with the post dates -

Flossie dizziness was a bad symptom for me for about three years. I was falling all the time and didn't want to go anywhere alone because of it. I stopped driving for awhile because I was afraid I would wreck and hurt someone. I fell down the steps last November and broke my arm. I was fine but by the time I hit the second step I was dizzy/lightheaded and fell.

When I started disulfiram the dizziness went away almost immediately and hasn't been back. Hope it's behind me for good. That has been at least two months. I was dizzy every day before that. Now I'm super tired all of the time but better than dizzy.
Hang in there hopefully it will get better.