HealingWell
Search Close Search
☰

shaking/tremor/jolted from sleep...neuro lyme?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/22/2014 10:05 PM (GMT 0)
The last couple weeks every once in a while i have been having a new symptom. i recently changed antibiotics. While falling asleep my body jolts awake and is really scary. I just tried taking a nap and it happened like 4 times in two or three hours. It is usually my head and neck but i think my arm and leg have done it also. I don't know what to call it but it is like an intense shake or tremor... Has anyone had an experience like this and why after a year and a half on antibiotics would this happen? Could this be a sign that the news meds are killing off lyme in part of my body that was not being effectively addressed before? Maybe Neuro lyme?

Thanks!
Posted 10/22/2014 10:11 PM (GMT 0)
It's called a myoclonic jerk. Google it and see if you think that is what you are experiencing. If so they are benign, but disturbing.

I had it for like 6 years before it went away for the most part but that was prior to my getting insanely sick from lyme. No one really knows what causes it but in my opinion it's ftom toxins.
Posted 10/22/2014 10:32 PM (GMT 0)
It is also from Lyme. When I first was infected I had this bad. Some nights I would get no sleep. They got better with time and abx for me.
Posted 10/22/2014 10:43 PM (GMT 0)
I had muscle jerks at the same time that my fascitulations were at their worse. They both cleared up at the same time.

I also had something wake me every two hours...but it was different than the muscle jerks. I would wake in a panic...gasping/choking for air..and my husband said our bedroom sounded like a horror movie. gurgling/sputtering and moans/groans (I also had nightmares).

I was told it was just sleep apnea...and did a sleep test at home...then got fitted with a c-pap - and tried it for a month. It didn't stop my abrupt wake-ups. I gave it back...and said I needed to find out WHY I had sudden sleep apnea - never had it before. The person there said that I most likely had it for many years. I know it's not true...because I have slept in hotel rooms with several different people (that sounds bad - they were my aunt, my son, and my close friends - all at different times...lol) She argued that I didn't just recently get it.

Anyway, since treatment, I have been sleeping well...the odd time I make noise...but my husband says it's few and far between now. I only awake once in the night that I know of.

I believe it's lyme...but why you have it starting so late into treatment - I don't know???
Posted 12/14/2014 4:15 PM (GMT 0)
Hi please help. Started abx (doryx) a week ago because I have babesia and lyme. Had a relapse. I was well for a few years. Now I have insomnia, my legs shake, I can't concentrate, I am so scared
Posted 12/14/2014 5:44 PM (GMT 0)
I'm so sorry you are all experiencing these spasms. I did too—until I started taking LDN (for these neuro issues and a few other benefits). Now they are diminished if not gone altogether. This was a good recent discussion about LDN:
www.healingwell.com/community/default.aspx?f=30&m=3269763

-p
Posted 12/17/2014 5:49 PM (GMT 0)
Sounds like myoclonic jerk movements. I suffer from myoclonic seizures....can't control movements. Not fun. I might recommend seeing an LLMD Neurologist. hard to find but worth it.
Posted 12/17/2014 6:13 PM (GMT 0)
I had them too along with sudden sleep apnea like Girlie. Both went away with treatment. Sleep disturbance can be a big part of Tick born illness.
✚ New Topic ✚ Reply