My 3 month report.

I have been on abx for 3 full months. I am heading into month 4.

Currently I take mino and rifampin. I just added tindamax last week, 3 days on and 4 days off. I went off my Buhner tinctures because of the alcohol. Can't mix with tindamax.

So far the only improvement that I've had, is my hair has stopped falling out. I've had constant hair loss for 4 yrs now and the last few days I've noticed a significant reduction.

None of my other symptoms have improved. I still suffer terribly with anxiety, weakness, insomnia, brain fog. I just feel run down and weak. I can't think clearly. I have no motivation or energy.

I was hoping to notice some positive response to the meds by now. Not completely healed, but some kind of sign that I'm on the right path. I know the meds that I'm on are supposed to be good. They just don't seem to be helping me.

Why am I not noticing improvements? I am worried that I will never get better. I have read stories where people just don't improve no matter what. How can I not feel better on these meds? They are supposed to be strong meds.

The guy from under our skin said all of his improvement was made after the the 3rd year of treatment. You probably just have a big bacterial load. It's a marathon not a sprint. Sucks :(

I'm at about 3 months. Well, I've been taking antibiotics since september. And I don't feel any better or worse. I'm still having ups and downs- it's comparable to life without any of these medicines. I gave myself 6 months to notice a difference. I'm hoping by.... may or so that I will be spending more days out of bed than in it.

3 or 4 months just isn't that long I guess. By this time next year maybe you will notice a difference. Stick it out utahgal- keep taking everything religiously. You will get better. I read the average recovery time for a chronic Lyme case is 2 years. So 3 months is just a drop in the bucket.

Don't get discouraged. I was just writing a friend and it dawned on me that when you have Lyme regular medicines don't relieve symptoms. Like when you have a cold and you take dayquil and you feel better. When you have Lyme and you get a headache even narcotic pain medicine hardly touches it. At least for me.

I think you need at least another 3 or 4 months. But really, some people don't feel better until years later. You won't know how you'll do until you're there. Don't be discouraged hang in there! I think most people don't feel better this soon!

Most herbal tinctures contain alcohol, which I can't have on tindamax.

I was on the Buhner protocol for 1 month. I had no herxes or improvements. I was taking: jap knotweed, sida, Hawthorne, houttuynia.

oops—sorry. was not thinking. I do not taste the alcohol in the BW tinctures at all, which is surprising because I am so hypersensitive to alcohol but they do have grape alcohol in them.

Would you be willing to try the Buhner protocol for a little longer? Or just add in JK and one or two other herbs?

I've been on a "virus" kick lately so I've posted about this a lot, but have you ever been checked for viruses? It was the first thing my LLMD did. She told me that when people feel run down and nothing helps, their immune system is overwhelmed and that most ticks also carry viruses so it's not uncommon to be loaded up along with the bacterial infections.

-p

So, do you guys think its odd that I haven't felt any improvement yet?

I will ask about viruses at my next appt. thanks P!

Utah gal I'm going to start a thread called.... how long should it take to feel improvement after starting treatment for you and see what other people experienced.

I think everyone is onto something with virus or mold. I think it's mold that can bring on awful anxiety? Maybe your symptoms aren't even from Lyme or confections at this point and that's why you aren't feeling any different.

This is the protocol that many follow: www.survivingmold.com/treatment

I would get checked for reactivated Epstein Barr, Cytomegalovirus (CMV) and HHV-6 (human herpes virus) to start with… your LLMD might suggest looking into a few others. You can be prescribed anti-virals, which over time can be tough on the body but I recently spoke to my LLMD about switching to something more natural. I'll let you know what she suggests.

Hope you find some relief!

-p

Don't give up hope, I have 1 yr of treatment under my belt and I feel great. I am not 100% but I will take this any day. It is going to take time, I had good days once in awhile after 3-4 months and then that increased as time went on. I can do a lot of stuff now, been doing construction cleanup for 3 story town homes, I have a lot of pain when I'm done but I can do it. Just hang in there, it will get better.