DESPERATE NEED OF HELP, from someone who has suffered or suffering from psychotic lyme complications

I'm so DESPERATE!!!!
Someone please reach out and try to help.

My Lyme disease progressed very quick.
My main complaint are my mental issues. The biggest problems being psychosis (feeling out of touch with reality), major anxiety problems, sexual problems, intrusive thoughts, and it all feels like a big pressure in my head.

I am currently taking a treatment plan. I do believe the symptoms have worsened, and am hoping that is from a herx.

Has anyone else gone through these complications------------did you ever get better?

Hi Babi - welcome to our community!

I'm so sorry that this is taking such a toll on you. Have you been to a LLMD yet? It's possible that you also have Bartonella, as it is also known for those types of symptoms and when combined with Lyme disease, it makes the symptoms a lot worse.

While I've experienced most of the same symptoms and have recovered, there are others on here that are in the process of recovering - Lovemychildren Mom has a son that has had mostly psychiatric symptoms, and he is recovering as well.

It can be a long road, but hang on tight! You can make it! Don't be afraid of using whatever meds you need to in order to get through this either.

Are you detoxing all you can? This can ease the symptom severity for most of us. Be sure to use many different methods of detoxing to utilize as many of the different detox pathways you can to eliminate as many toxins as possible.

Oh - I do empathize with you yz. I have had some mild psychosis ever since I became ill, which seemed to explode whenever I got run down or overstressed. This had been going on for 15 yrs—I finally discovered the lyme & co-infections last February.

I have had a very slow start with my treatment due to high viral and fungal loads. I've been on Byron White AL-Complex, A-Bart and A-Babs tinctures since May. I went off them a month ago when I started IV Rocepthin. WHAM!! SWAAACK!!! POWWW!!! A couple weeks into the abx therapy and I was having meltdown after meltdown, crazy anxiety, nervousness, complete disconnectedness from my body and surroundings, rage, fear, and increased cognitive problems. It was HORRIBLE.

My LLMD suggested I go back on the Byron White tinctures. That did help. And as T mentioned—detox is as important as whatever tour treating with. My theory is "in" must equal "out". So however much your are taking to kill the infection—you have to balance that with AS MUCH detox, which is often a difficult balance for many of us to achieve. Many things interfere with proper detox - pace, DNA mutations, and other things my brain forgets. ;)

Take one step at a time. There herxing is usually a sign that the treatment is effective. And keep posting—you are not alone!

-p

Hello,

I had a couple herxes that were so bad I legitimately "lost my mind." It was terrifying. Throughout the entire thing (the pain, the exhaustion, the fevers, the nausea, dizziness, rashes, twitching, cramping, etc.), the mental stuff has been the most upsetting for me. Who are we without our minds?

In fact, the same week I "lost my mind," I also had a FULL on panic attack in one of my doctor's offices. It wasn't my LLMD, but LUCKILY, it was a doc who FULL on believed in Lyme Disease and was kind to me. I'd never had a panic attack like that before. He even gave me four xanax, which helped me get through that week. He'd recently been to a Lyme conference and said my mental stuff was just part of the program. My LLMD had also told me that, but to hear it from another doctor put me at double ease.

THE GOOD NEWS!!!! After months of treatment, I am finally coming out of it. My brain fog, anxiety, panic attacks, depression, and paranoia are lifting (along with the debilitating pain, and other symptoms)! It's hard to believe. Stick it out. There is a light at the end of the tunnel, you just can't see it yet, but you will. Detox like crazy, go for walks (even a short one can help), stick to your regime and diet. DON'T GIVE UP!! I look back at diary entries I wrote where I said I wanted to drive myself into a tree… I can't even relate to that person anymore. That wasn't me. That was the Lyme.

One last thing, when I was in that mental state, people would tell me to relax and all that. Well… it's impossible to relax when your brain is malfunctioning. I found myself beating myself up for not being able to relax. Looking back, I found I faired better when I just went with it. For example, if I wanted to cry, I cried! If I wanted to scream, I went in my car and SCREAMED. Instead of fighting it, just ride it. Eventually, the crazy ride will start to slow down.

Just wanted to say that I had Bartonella, Lyme and Babesia Duncani (still have the two latter) and the combination of those things caused for me the constellation of symptoms that you described in your post. Not sure if you have been diagnosed with any coinfections yet but head pressure for me is a symptom of my Babesia Duncani. Best.

Yes. I get flares of not understanding reality....so i use my imagination to fill in gaps....then when it passes i think....`what, i cant believe i really thought that`. One doc said that is typical of mold/ fungal as well. Another doc said some patients only present nuerologically as pysch.
I hope it is a herx. But there is a chance it fungal and abx might b making this worse. I dont know. I think that u have to listen to ur body and what ur gut tells u. Discuss ur thoughts w/ dr....i feel like this whole thing is a guessing game. Herx, oops, nope, opportunistic. Oops, no, its another co-infection, no, now a herx....and everything mimics everything. so it can get fun trying to figure it all out. Good luck....ur not crazy, others have felt this way too!

Hi,

SLML....could you elaborate on the:

1) Take Zeolite - it will bind ammonia. Zeolite Pure. This is a big deal as ammonia will mess up your neurotransmitters......how much per day?

2) Take Lithium Orotate or get a temporary prescription to Lithium from a doctor. This should stop the intrusive thoughts.....just ordered 5mg....1 per day?

3) Take Zinc Piconolate and Magnesium Malate.

You could email privately if you wish....my DS (24) is all neurological and I would love to ask a few questions.

thanks
frikfrak