LymeAndTheCity said...
Lymedisease1 - have you gone through the formal lab testing? If not, I would suggest printing out the worksheet I have on my website and bringing it to whichever doctor is covered by Medi-Cal. Keep a copy of the filled out form for yourself.
In my personal opinion (not legal advice), I would explicitly request to be tested for Lyme (and perhaps Lupus if you haven't already ruled that out). If they refuse to test you for Lyme, send them a letter indicating that you formally requested to be tested and were refused. I would indicate that I believed it was negligent and in bad faith to not do so. I would then look into appeals within the medi-cal system for doctors who deny testing. I am sure there are pro-bono attorney services who may be able to help you with this.
I know very little about Medi-cal, but before paying for an LLMD out of pocket (mine runs me almost $900 a visit) try and get them to run the tests under your current plan.
Hope this helps and that you start to feel better - if you are experiencing anything like I was then I am sure you feel awful and are exhausted. But, dont give up. I had SO many people tell me I was fine. But, I wasnt. Just stay persistent. Stay organized and record EVERYTHING.
Also, ask for copies of all of your medical records after every doctors visit. Its a super big hassle but you will thank me later.
i do not have issue with joint or pain issues, besides the occassional stabs of pain with pins and needle, The neurological symptoms im having right is so constant, my most worriesome are smell and taste loss and loss of sensations to my bowel, stomach, throat,,etc. I used my original post, and copied the symptoms, and i streamlined it so i can show the doctor i wasnt crazy, I have been blown off by a doctor before when i had kaiser(i wasnt 26 at the time), he even laughed me out of his office(i hada feeling i wasted his time). The same medi-cal doctor i saw back on october will be on tuesday, they diagnosed me with contact dermatitis, but ive used almost all the OTC anti-histamine and none of them work, the triamcilinone acetonide worked for a while but it lost its effectiveness eventually(and i wasnt suppose touse it past 2 weeks), thats where my suspicions began.(i never had any dermatitis issues before october). my rashes are now chronic.
i also found your list had some symptoms that are not shown on online sources, i used anapsid, which showed hundreds of symptoms, but i dint go over them all. i did not go through lab testing yet.
Post Edited (lymedisease1) : 2/2/2015 1:17:46 AM (GMT-7)