I am sitting here crying because of my husband

Abenewhere1,

I'm so very sorry you're going through such a rough time! Don't give up!!!

You have a CDC positive test. You have to start treatment of some kind. There are different options you can discuss with your LLMD. You can also read more about options in the "New to Lyme" thread.

Don't let your husband put doubt in your mind. I had to battle doctors telling me I could not have possibly gotten Lyme in California. It messes with your head. I'm so grateful I kept fighting and moving forward. You have to stay strong and don't let anyone mess with your head!

There are financial assistance programs out there. I'm not sure if you would qualify, but you can ask.

http://lymedisease.org/news/touchedbylyme/64.htm

See if you can reach out to any family wherever they are. You need support. There are also local Lyme support groups all over.

We are here for you! Hugs!!!!

I am very sorry that your husband is behaving the way he is. Let's hope that he doesn't see the truth when it is too late.

The best thing is that you have been prescribed the antibiotics that will make you better. Take your prescription and maybe once you start to get better he will see that he is wrong.

Maybe you could try some more tests for Borrelia and see if they are positive and wait on treatment unless you have clear symptoms.

There are two additional tests which are new which I suspect may be helpful. The first is a DNA test by pathologist Sin Hang Lee at Milford hospital. The second is the ospA nano-trap antigen test created by George Mason University and distributed by Ceres Nano (supposed to be about later this month).

If you test positive on these tests then that may give you a starting point to go to your doctors. However this doesn't tell you what is an effective treatment. Also I'd like to see the tests expanded to include Bartonella, but they do not right now.

Dear One,

Try not to get worked up. Keeping your adrenalin system even is best. I know this is hard. But learning to keep yourself at rest in the midst of adversity and stress helps your own immune system. And you'll get through this in a better state.

Make sure you are doing what you CAN do in the meantime. Detox, no sugar, high doses of vitamin C. By the way I can get a herx from high doses of C and it is great immune system bolster and fatigue fighter. I drink two emergenC in an 8oz glass of water with my meals like a soda.

Be at peace and don't assume and adversarial posture. I believe in a creator God who is personal and loves his creation: you. He can speak truth to hearts when you can't get through.
I suggest you not make it an issue for now. By that I mean the topic of every conversation. Perhaps your doctor a medical peer should have the conversation with him. when things have calmed down ask him to go with you to an appointment to ask the right questions. Maybe if he felt included as a medical consultant on your case he would listen?
Remember your marriage and your child are important. Peace in the home will be good for all. Especially you.

I'm so sorry your husband is being such a pain. You shouldn't have to go to him for money since you are a married couple, not a father and daughter. Can you talk to your parents about it or would they side with him in not believing you have Lyme? Do you have any siblings that would take your side and offer you support by calling you or doing skype?

Be sure to tell your doctor how he's treating you so he knows what you're up against. Maybe he'd offer to talk to your husband.

You should start a new thread on here, asking if anyone knows of a support group in your area. That would give you a place to get some support and understanding.

We're here to offer you support, so talk as much as you need to so you don't have hold it all inside. Nobody knows how it feels to have Lyme better than a fellow Lymie! I hope at some point your husband will accept what's going on.

I don't want to say to much. Your health and your child's are of critical importance though. I'm sure eventually he would not be very happy if you are both to sick to have a life that is nice with him. Maybe your family would help you financially and emotionally with this? If your child is young you could live with them while you heal? I know I would help my children with this in any way I can (and believe me, I have given everything I have in every way to help my son and get him better - in spite of the rest of my family who now "get it".)

HUGS!!!!!!!!!!!

This is such a conflicting and stressful situation for you. I am so sorry to hear that he is being so closed minded, especially since he is a medical professional and he has the potential to provide so much more insight into the pathophysiology and be such a comfort. MD's and DO's are not taught to question the "authorities" like the IDSA and the CDC. I don't want to say that they are brainwashed, but doc's have to learn so much that it is almost too much effort to go through the ridiculous amount of basic science research to question the guidelines. That being said, you definitely should try to seek out a support group locally or use the forum in the meantime. Hopefully as time goes on, he will open his heart and his mind to this situation. Good luck@

Dr. Z said what kind of a dr. would i be if i can't get my daughter well, and she dove into lyme a few years ago! got her daughter well! should be more of those stories! challenge HIM to get you well :)

So sorry you're not getting the support that you need.

Do you not have access to the bank accounts? If so, if I were you I would use the money in the accounts to pay for your treatment and meds. I wouldn't argue with him, or try to convince him anymore...
If he gets angry and wants a divorce...well then he wasn't worth keeping.

I'm sorry if this sounds harsh...but you need to get healthy.

Since it could be the ego of the hubby. He think by being well versed in medicine he may assume that he would receive all the attention. But his wife being sick. She needs the attention. The way she is describing his reaction is not of a caring husband.

First of all, he may not be a dr. It seems that many people here just assumed he is. Second, marriage is something that is sacred and it should not be taken lightly. Third, whenever I said something "bad" about someone's husband, that person distance herself from me--not immediately, but you know, they make up and then you are the bad guy. Forth, it is still early and it is likely he will come around unless there is something else wrong with the marriage.

Many of us had problems with our husbands not being on our side when it came to Lyme and co. However, it is not their fault. It is the establishment that puts all of us in a difficult situation and sometimes we become "adversaries". I would not jump at the word divorce so quickly. What is gained out of it? You can get a few dollars to buy some herbs to hold you on. A lot of people choose to believe their spouse is not sick because they can't handle the slightest problem with the idea of having a sick wife or husband. And I sympathize with you, but I guess in my thought of logic I see both of you as victims of the establishment and unfortunately, you are not the only ones.

Please think about it carefully and don't make any rushed decisions. I must be old fashion but I think one wrong thing with our society is that it became so easy for people to split up too quickly before they give their marriage a chance when things get rough.

@Abenewhere1- I recently went through a similar thing w/my husband. He questioned and doubted my new(since last June) Dr who is an ND and has been treating me holistically for 7 months now. I felt so alone at first when he didn't support me in MY CHOICE of a Dr. I stood my ground w/him, and he finally came around. It's very difficult for some people to think outside our societal 'norms'! I hope you get treatment ASAP because my experience of chronic illness taught me that once it's chronic, it's too late for a total cure.

My chronic illness began back in '06' and after seeing several G.P's, a G.I., an O.B./Gyn, a cardiologist, and allergist but STILL sick after being treated for allergies(asthma), food intolerance(went gluten & dairy free), hormone imbalance(bioidentical hormones), hypothyroidism, and the cardiologist said "your heart is fine". Oh in '2010', my MD DID do the Igenix Lyme which came back indeterminate so she said I did NOT have Lyme and gave me a trial of antidepressants of which I declined. I didn't get better by going gluten free and eating organics, or by taking synthetic thyroid hormones, or using Qvar asthma inhaler, prilosec for so called G.E.R.D, or by using the neti-pot for sinusitis. I also spent 2 years in physical therapy for hip, shoulder, elbow, and wrist pain!

Anyway, the fatigue, weakness, brainfog, pain, and mental issues worsened so I sought the help of an ND who did yet ANOTHER Lyme test which came back positive on only 1**band, which according to CDC is still negative; however due to my low CD57, positive Lyme co-infection, and symptoms; I've been treated for Lyme; but only holistically using herbal antibacs and supplements and I.V therapies. I've had to convince my husband whom I'm financially dependent, to pay for all this using HSA(health saving)vs health Ins.

Although I AM feeling better, I'm not doing so well on chelation for heavy metals detox, as I don't detox well but it's a necessary evil!!!