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Worry wart with concern (again!)
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Lyme Disease
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Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/9/2015 7:22 PM (GMT 0)
I have been having the tinglies on my scalp, and when I rub my scalp, it's a bit sore.
Every few days, I have a little spot on the top back of my head - almost like a scab sticking my hair down to my scalp...but when I pull it off...it's not red (so no blood), just whitish. It's only about
1/4 inch and it's not oozing, just dry.
I had my husband inspect it..and he was feeling my scalp at the back of my head and said my scalp wasn't "taut" against my head like his. You can almost pinch it - don't know if I'm explaining it right.
I pinched his scalp...there's nothing there to pinch.
Should this vary from person to person...or could i have a swelling under my scalp? If so, should I be worried...or is this "just lyme".
If it's swelling on the brain, would it show up just under my scalp?
Wouldn't it have shown up on my head mri?
LymePickle
Veteran Member
Joined : Mar 2014
Posts : 2132
Posted 2/9/2015 7:28 PM (GMT 0)
Haha Girlie! I am going through the same thing as you.
Darn tinglies under the scalp!!! What the heck is it anyways!!
I don't know what the sore scalp is though, I guess mine is mildly sore but I'm more concerned about
the tingling.
I really wish I knew what it was, that's like my only symptom right now. I didn't have this symptom at all when I first got sick either.
I just think it's either lyme, bart, or nerve damage, or all of the above.
How did your MRI show up? - I am going to request for an MRI What other symptoms do you have? I am mostly symptom free now but have occasional ache like sensation but not too painful in my spine. Those are my only lingering symptoms.
LymePickle
Veteran Member
Joined : Mar 2014
Posts : 2132
Posted 2/9/2015 7:33 PM (GMT 0)
Are you taking the ceftin still? I took 1 gram twice daily for 3 days and the symptom was completely gone for a week. Do you notice the ceftin makes it better? I have a hunch it is lyme now but who knows. My LLMD said short courses of abx won't make much difference, but my experience differs.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/9/2015 7:53 PM (GMT 0)
LP - I never had this symptom until a couple months after I started treating.
Maybe I shld up my Ceftin dose - I'm only taking 500mg twice daily.
I have had two brain MRI's and they were fine - although the stalk is deviated to the left slightly. One was enhanced with dye to check my pituitary gland. I paid for that one in Courtenay.
How long is the wait for an MRI in Alberta?
Here it's about
a year unless you have a specialist bump it up or you self pay.
Have you tried to pinch your scalp - can you get anything between your fingers?
I still have a lot of symptoms - vibrations in my body, shivers, hot flashes - night and day, shoulders sore and stiff, tailbone pain, foot pain, twitches here and there ( greatly reduced tho), pressure behind my eyes, short term memory issues, knee pain - and a few others that aren't as prominent.
Overall I am feeling better tho. The tingles on my scalp I can handle - it's just worrying me about
the scalp not being tight against my head.
If there's inflammation is it just under my skin. - or what???
Revive
Veteran Member
Joined : Dec 2013
Posts : 1293
Posted 2/9/2015 8:50 PM (GMT 0)
Girlie I would think inflammation in your brain would show as dizziness or headaches really bad. I can't pinch my scalp, it is tight but I do have sore spots on it all the time. No would have your LLMD check it next time or call and see if it's common.
The spot that's got the white stuff could be the actual tick bite, or do you have one someplace else?
Glad to hear your feeling somewhat better.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/9/2015 9:26 PM (GMT 0)
I've been googling - and I'm thinking it's ok to be able to pinch your scalp and it not be tight.
Geez - Am I the only one that worries about
the strange symptoms? How do we know when to investigate? I've stopped looking for other causes for symptoms - basically pawning them off to Lyme and co's.
Garden Peace
Veteran Member
Joined : Sep 2012
Posts : 4191
Posted 2/9/2015 9:44 PM (GMT 0)
I wonder if some of your loose scalp is from lax muscles. I tend to get headaches when those muscles tighten up. It may have nothing to do with it at all, but thought I'd throw it out there for you.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 2/9/2015 11:21 PM (GMT 0)
I used to get sore spots on my head all the time - and at times I could have sworn that it was my hair that hurt! My scalp would get very, very sensitive during different times during my infection/healing process.
I've never tried pinching my scalp when I was infected - I didn't want to risk causing any more pain to my head to be honest!! LOL! So I don't know if I've had that or not.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/10/2015 12:03 AM (GMT 0)
Thanks for the input everyone.
When I say "pinch" my scalp - I'm talking about
just trying to grab some of your scalp between your thumb and index finger.
Persephone15
Regular Member
Joined : Jan 2015
Posts : 33
Posted 2/10/2015 12:12 AM (GMT 0)
I've had a sore spot on top of my head for weeks.
I mentioned this to my rheumatologist at my last appt., to which she said...nothing.
My neurologist said, "This is not brain!" Meaning, it's not a migraine so it's not my department.
It's a yucky, mushy feeling. Hope this goes away!
Leilex
Regular Member
Joined : Mar 2014
Posts : 294
Posted 2/10/2015 1:15 AM (GMT 0)
Hey Girlie,
I had the opposite a while ago. where my scalp was so so tight. It felt like my head would just pop right off...
I know what you mean tho, when I start getting cardiac issues, I think, Gee should I just let it ride? Or is this something I should call the Dr. about
. When is it this ridiculous lyme vs. another issue? Hate it.
I'd ask your Dr. the next time you go in. I do not think it's anything major. could be something you just never noticed before.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/10/2015 1:17 AM (GMT 0)
Hey Leilex!! How are you? How is your Lyme treatment going?
Nice to hear from you!
Louise74
Veteran Member
Joined : Mar 2014
Posts : 1077
Posted 2/10/2015 1:23 AM (GMT 0)
I've had scalp tingles too. I can't squeeze any extra skin between my fingers and scalp though. I don't think I'd worry about
that though.
At least you have seen improvement. It's real slow though which stinks. That's where I'm at. A little improvement then back to other weird symptoms.
CD3764
Veteran Member
Joined : Sep 2014
Posts : 4510
Posted 2/10/2015 12:14 PM (GMT 0)
Lyme is the weirdest disease to deal with.
The symptoms are weird....the way we heal is weird.
Thank goodness we're not weird :)
Sorry for yet another puzzling symptom, Girlie!
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/10/2015 6:54 PM (GMT 0)
CD - who says I'm not weird? lol
CD3764
Veteran Member
Joined : Sep 2014
Posts : 4510
Posted 2/10/2015 7:21 PM (GMT 0)
MM
I only took doxycycline, amoxicillin and Doryx (delayed-release doxy).
Girlie
We're weird only because of Lyme lol
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 2/10/2015 9:37 PM (GMT 0)
Girlie said...
CD - who says I'm not weird? lol
I was just thinking the same thing, Girlie - only I did include myself in that too - I promise!!!
Weird should have been part of my name!!
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/10/2015 9:43 PM (GMT 0)
haha, Trav - lyme stuff aside...I kinda have a weird sense of humour sometimes...I'll be laughing at something, and my husband doesn't find it funny at all.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 2/10/2015 10:29 PM (GMT 0)
same here!! I can find things funny as heck and no one else thinks so!!! Oh well!! At least I'm easily entertained!!!
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/10/2015 10:59 PM (GMT 0)
MM - I'll take that as a compliment.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 2/10/2015 11:13 PM (GMT 0)
It had better be a compliment!!
I've been this way all along - you just can't always tell from behind a computer screen!!
And I've gotten to know you a bit, Mister Mike, and I would have to agree, you are definitely right there with us!! LOL!
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 2/11/2015 4:01 PM (GMT 0)
Hmmm, that's odd! LOL!!!
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