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update .. llmd appt happened. need opinions on treatment options

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Lyme Disease
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Posted 2/13/2015 3:21 PM (GMT 0)
HI guys!
Mom finally had her first llmd appt yesterday. The doctor was wonderful, very well informed, and actually gave us options for treatment. This is the first time we actually feel hopeful. She was honest - she saw people recover function, people who did not progress, and people who continued to progressed despite treatment. She is drawing a ton of labs That will help direct where we start in terms of therapy.
She gave us 3 options, ivig (immunoglobulin), iv antibiotics, and something called the pk protocol. I want to know if anyone here has experience with one or all of these therapies. What have you heard?? The ivig and antibiotics are easy to find online. The pk protocol is something that doesn't seem to have much independent info. All the info seems to come from the person who runs it herself.
Meanwhile, while we wait for labs, we will be fully committing to cowden protocol.
Thanks all!
Posted 2/13/2015 3:49 PM (GMT 0)
If you decide to use IVIG, be aware that if the infections are not addressed concurrently with antimicrobial herbs or abx, the IVIG donor antibodies will simply dilute your mother's own antibodies; not healing them in any way. This will produce short term alleviation of symptoms, but once the IVIG is metabolized the remaining infection will stimulate production of more inflammatory antibodies and symptoms will return.

In my opinion she will need to take antimicrobials of some kind and work on supporting detoxification and immune function.

Best of luck with your decision. I am glad you have found her some help.
Posted 2/13/2015 5:27 PM (GMT 0)
Very good point, rowingmom. I think in 2 weeks, once we have Mom's complete nutritional and immunologic work up done we will have a better idea with the plan of action. I myself am leaning towards aggressive antimicrobial management and detox at the moment.
Posted 2/13/2015 5:37 PM (GMT 0)
I would agree with both of you on this!! While support for the body is important, it should never replace killing the bacteria. Both are needed to win against chronic Lyme in my opinion.
Posted 2/13/2015 10:12 PM (GMT 0)
I need to have a more complete discussion with the doc once we have more info. I wonder if part of the reason she is thinking of this pk protocol is because we are on cowden protocol. I should ask her if Cowden's (or any of these herbal protocols) pack the same punch as hard core iv antibiotics.
Posted 2/15/2015 4:42 PM (GMT 0)
Just got email from the LLMD (on a weekend no less!!). She reviewed the Igenex labs that we did and said that my mom is also exposed to Bartonella and to anaplasmosis. We will definitely have to do an multi-antibiotic regimen. We will hopefully be scheduling for a PICC line this week or next week. She did mention that on top of that she is considering IVIG and/or this PK protocol, depending on my mom's lab work.
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