Giving up

I am throwing in the towel. Sick of docs and meds and being sick. The panic attacks have calmed down, but I'm not sleeping again. I'm off all traditional meds for sleep and anxiety and I think that's what's helping the panic attacks, but not much for good sleep. My sensitivity to everything I take seems to be getting worse. I can't even have acupuncture. My osteopathic doc did some cranial work today, which made me feel great. He is considering becoming LL so I'm encouraged because I really like him. There aren't very many LL docs in Maine. For now I will manage my odd symptoms myself and hope for the best. Will continue with herbals and supplements because they don't seem to bother me much. Had a bit of a reaction to the cbd oil from blue bird, but I think it's because I'm hyper sensitive and needed to start more slowly. So doing 2 drops of that. I will have one more regular eye doc appt to see if she can recommend a neuro opthalmologist in the Boston area. The vision in my left eye is really bad and the eye md found nothing after paying him over $800. That's money I could have used on 3 months of supplements! I'm considering asking IGeneX to test my blood samples for other confections because they said they hold the samples for several months and any doc can order it as long as I pay.

Don't quit now, Mascoe! Achievinggrace is right!!!

I've come to think of fighting this disease as akin to training my stubborn dog. Patience and perseverance - but if one method is clearly not working, don't battle on, as getting nowhere leads to frustration and then the patience and perseverance doesn't seem worth it.

Try a new method. It's about finding what works. A little sucess gives you so much more hope that you will get there in the end.

(BTW - I did train my dog...eventually, lol)

LOL, happyjo, no dog can be as untrainable as the muppet I have !!

I am looking into doing energy therapy that a friend told me that she and her kids all had Lyme and now they are healed. I had the free consult today and I'm scheduled for next week, so I will give an update when I see what it's doing for me.

Don't give up Mascoe.

This doesn't sound like giving up to me either. Moving past doctor-based medical treatment was a good thing for us as well.

Thanks everybody. I guess I'm not technically giving up. Yes, giving up traditional docs and moving more toward treatments similar to you all. I was moved by HeathersDad how he and his wife have stuck by their daughter through her treatment and subsequent battle against mold. I need to do the same thing for my daughter so this path I'm on will only clear the way for her in case she develops symptoms. I love how much I've learned about my own body through this, especially the sensitivities. And how much detoxing helps so many of you which I learned also helps me. This is the best forum and I'm glad to have found you. Thank you for being here in the middle of the night when I can't sleep and the middle of the day when I need to feel I'm not alone. Catchscooter, you're in the right place, so hang in there and try not to believe what people think as the truth because unless they've been in our shoes they just don't understand. Keep reading on this forum for encouragement and try some of the detoxing techniques. They've helped me way more than the mood drugs and antibiotics ever did.

It's been a year and I feel the same. I was too sick to even question anyone for months. I was denied a second picc line. I don't have the strength nor the time to fight it. I had to go back to work full time. It sucks the life out of me and every day I am dizzy/nauseous/have a headache/brain fog/chills/anxiety etc.
I can't find an LLMD who will either take me as a patient or take my insurance. Out of pocket is not an option. I can't even comprehend trying to do a protocol. On the weekends, I try to rest my body so I can make it through a week. Everyone here seems to be suffering greatly........it's so depressing.....

Thanks Traveler. I don't know what is right for me right now. I know I am still sick -very sick but none
of the meds I was on for 8 months made me feel any better except the IV rocephin. Then and only then did I actually believe I was going to feel like myself again. I don't know what I believe yet about following a protocal.

My boyfriend has called several doctors that are specialists but none of the good ones take insurance. he has spent the last 2 weeks calling or emailing for me. I go back to my primary who is the one who diagnosed me with anaplasma and will have a chat with him. He understands the high incidence of Lyme & co-infections because of where we live and all his patients who are sick.

You did email me some doctors but they are closer to NY city and it's not possible for me to go that far. I know a great center for integrative medicine and although they do not take my insurance I might start with a consult.

I don't understand herxing. I know what it means and I understand how it supposedly happens but I couldn't begin to tell you if I am just plain sick or herxing. My symptoms are the same all the time. some days are worse than others.....but they all stink..........

There is always hope. Shoot me an email at bowonlyoutdoors at bellsouth.net.

It actually makes a lot of sense to me - I've been through the same things - except I was too ill to work starting back around 1991 or 92.

Remember that the only way out of this is through it - but you have to always keep checking to be sure that you aren't suffering needlessly, which is what this forum is great for! We talk a lot about different ways to detox and different protocols and exchange ideas all the time.

And we are here for you as well, Mtlassor.

For all of you who have a doctor who is whilling to listen but may not understand a hundred percent I really recommend the book of Dr horrowitz: why can't I get better.

It is really heavy and half of the things went over my head but at the same time, because of the book, I realized that our doctor, who was from ILADS, was missing many things. My daughter wasnt getting better.

I think this book should be in the home of everyone who has lyme.

Revive ~ what kind of energy therapy are you doing ???