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One year into treatment

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Posted 3/3/2015 12:42 AM (GMT 0)
Hey there everyone! I'm a patient of Dr. J in D.C. and have been on abx for about a year now. He pulses the antibiotics and has weeks on/weeks off. I realize that patients are sometimes on antibiotics 1-3 years to achieve wellness & I'm at a year and feel like I'm at a turning point. I don't feel worse but don't really feel better-have had about 5 days of "good" in 2014. Not sure if I should switch over to herbals or continue on with abx. Feel like I've been patient-followed protocol, diet change, detoxing, etc. If anyone is a patient of Dr. J I would love it if we could PM.
Posted 3/3/2015 1:29 AM (GMT 0)
gingeranne - has your protocol been changed over this past year?
When you said you had 5 good days - were they symptom free days, or just better than your bad days?

Also, do you think you have bart or babesia?

I'm at 8 months now...and I have a couple good days a week on average...but they're not without symptoms, just better days (60-80% better).
Posted 3/3/2015 1:39 AM (GMT 0)
I am just alittle over a year now, I was feeling much better, having way less pain but since I started this new protocol with Rifampin, Zithromax and Tindamax, I feel bad a lot. I pulse the Zithromax and tindamax I only do 3 days in a month but my doc said you can't pulse Rifampin or Lyme will come resistant to it.

What type of protocols have you been on? Sorry you've only had 5 good days, I've had a lot of great days after about 8 months into the protocol. Hope your feeling better soon.
Posted 3/3/2015 2:28 AM (GMT 0)
I'll ask you, too, Revive. When you say you've had a lot of great days...does that mean symptom free days?
Posted 3/3/2015 3:04 AM (GMT 0)
Yes, symptom free days and days I've been very active all day long with plenty of energy. Days where you say, hey I feel normal.

You will also get more and more good days.
Posted 3/3/2015 10:00 AM (GMT 0)
If you haven't already, there is something simple you can do if you feel you have hit a lull: Go on a trip. Doesn't have to be anything fancy or even very long -- a weekend trip is fine. Something about the movement and stress it puts on your body causes the bacteria to come out of their hiding places and the antibiotics can get to them.

I read about this some time ago (sorry I can't remember where), and I have found it works very well. When you get back home you might find you have a herx, but you will feel much better.

Hope this helps.
Posted 3/4/2015 8:31 PM (GMT 0)
Sorry for my delayed response! I've been on a ton of antibiotics & they are pulsed and rotated. Let's see...here are the meds in no certain order Flagyl, Omnicef, Rifabutin, Septra, Cipro, Mepron, Azithromycin, Minocycline, Daraprim, Diflucan, Arteminisin, Lactoferrin, Xylitol. Please excuse the spelling on some of those I'm not real sure on them.

I don't think I've ever had a symptom free day if I don't have joint pain then I have head issues like dizziness or anxiety. If I were to look into herbals I don't even know which route I would do I honestly haven't looked into much. Sometimes I may have an hour where I praise Jesus because I feel somewhat normal but then it's followed by feeling horrible again. I am trying to have hope and without my faith I couldn't have come this far the struggle is just real about do I continue to put this stuff in my body or try another route-it's so hard not having a spouse or someone who could TRULY get it guess that's why I came here. Thanks for listening :)

I am going on a trip in May to the beach with family and I cannot wait!! It will be my first vacation in over three years! Can't wait to put my feet in the sand and just be with the Earth I'm so scared of grass and nature in general I know the beach could possibly have critters but I won't let Lyme beat me!
Posted 3/4/2015 9:00 PM (GMT 0)
There is something that is stopping your healing - what it is is the question many have to find. It can be not being able to detox well, or it may be another infection or condition that you have.

Good for you for still getting out!! Just remember to protect yourself from the mosquitoes.
Posted 3/4/2015 9:36 PM (GMT 0)
Hey Trav! I'm wondering if heavy metals are impacting my healing that's one thing that's not been tested. I do have one MTHFR c667t gene mutation but that is now supplemented. There's gotta be something I'm missing. I do have about seven silver fillings in my mouth.
Posted 3/4/2015 9:40 PM (GMT 0)
Well, I would say that's a good place to start! Just be sure that you use reliable places/people for testing and for treatment of heavy metals.
Posted 3/4/2015 10:02 PM (GMT 0)
I'm following this, as my doc works under Dr. J, and uses a similar protocol. I will starting treatment on Friday, and am quite nervous!
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