Brain vibrations???

Hi!

I have recently read that bartonella causes brain vibrations. I suspect that I have also this co-onfection, but since there is no good test for this, I can only analyse my symptoms.
This brain vibrations that some of You talked about in another post. What does it look like? I have almost constant headaches, which is not really headache, but rather a feeling of stretching my head (sometimes my ear, sometimes my temporal, sometimes my scruff). When this feeling is increased, I become dizzy, I have diffiulty thinking, and it feels like my brain cannot function well - as the nerves are overdriven ramdomly, or hurt. Sometimes I also experience some "vibration" in this. Is this the feeling that You also experience due to bart? What can I do against it??? This is very disabling, the worst feeling I have had in my entire life.

Another question: is the cowden protocol (initially samento-banderol) good for bartonella too???

Thank you for your reply!

I have this brain issue (pain?) almost always. Sometimes it increases, sometimes it is totally managable. If this symptom flares, it comes in "seizures" - the symptoms flare up in minutes, and can last for an hour, or half a day. Then it can starts to calm down, but sometimes then another seizure comes, and another, an another... Sometimes no additional flare-up comes, and this "feeling really bad" period lasts only for a few hours.
How does this look like with your daughter? Has she been checked for bartonella/lyme?

I'm fairly certain my sister, who is 39-years-old and has Down Syndrome, has Lyme. We are still in the process of getting her tested. We are assuming that the first tests will be negative and that we will have to get her tested through IGenex. She has vibrations and humming/buzzing sounds in her neck, shoulder, and now her head. We already started her on the Buhner protocol and a couple of the remedies from the Cowden Protocol (Samento and Banderal). But now that some are saying that Bartonella can cause brain vibrations, we are wondering whether we should have her tested for that as well. Does anyone know whether there is also a problem with false negatives and Bartonella testing? Is there anywhere that specializes in it? Right now, she is suffering on a daily basis. We thought things would get better once we started treatment, but her symptoms have actually gotten more severe. We aren't sure if this is because the disease has worsened, or if this is due to some sort of die off. We are only up to week 3 on Buhner because she started having cramping during week 4, so we went back to see if she needed more time to adjust. And we are up to 7 drops on Samento and Banderal. We have started doing Pinella and Burbur for detox, but aren't sure how many times a day we should be doing it. We also just started the Alka Seltzer Gold (thank you Lymecrazed for recommending that). And we will try some of the other CNS remedies above. If anyone has any suggestions, I would greatly appreciate hearing from you. Right now we are desperate to get the noise in her head and neck to go away, and to get rid of the tinnitus. The noise tends to accompany vibrations, but sometimes it's there by itself.

It is possible that parasites can cause vibrations too
After all they are considered the main co infection of lyme

Hi Girlie!

Thank you so much for your response. Sorry to hear you have the buzzing/vibrations too, plus nerve pain--what a nightmare!

And thanks for the information on Bartonella--we'll definitely have to look into that as well.

You are probably right about my sister herxing from the die-off. The whole reason I started doing both the Buhner and Samento/Banderol, is that we don't have the official results from Lyme testing yet. I was kind of figuring that we would start Buhner in case it was Lyme, and at least start the Samento/Banderol, in case it was something else, since those are supposed to be broad spectrum anti-microbials. But makes sense that it might just be too much for her system to handle.

I'll be sure to look at the "New to Lyme" and detox site.

Thanks again!

Hi again oxomadelineoxo - I posted on your other thread.


Alka seltzer gold is carbonated like the regular alkaseltzer. It works by creating an alkaline environment in your body....we are often on the acidic side.
Drinking water with fresh lemon squeezed into it also changes the ph to alkaline...so you could try that. Caution: Be careful with the lemon - it can cause damage to the tooth enamel. i drink my lemon water through a straw...it bypasses the teeth somewhat.

I found the alma seltzer gold also helped me when the minocycline was causing some throat issues.

Are you doing anything else besides burber and pinella for detoxing? We need to employ many methods and do them regularly (daily) -

I really like the warm epsom salt baths for detoxing.

Here's a link to a website for more detoxing ideas:

www.tiredoflyme.com/detox-methods.html