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Posted 3/5/2015 3:22 AM (GMT 0)
I want to key everyone know there's hope! Almost 3.5 years ago I thought I was I was literally going to die and after 2.5 years of abx today im back to my old self! Got some twitching but doc said it won't last. He's is putting me back on abx after a 2 week abxless challenge
until august for good measure but I'm fine with that since I have no side effects. No head pressure, panic attacks , burning muscles/brain, vibrating, cramping, tingling, tremors or balance issues. It's literally a miracle to me. Please don't give up on treatment it works! And I stress this. The road may be very up and down but you reach the end very rapidly when it comes. Last month I was still skeptical but in the last 2 weeks everything just disappeared. I feel like there may be a toxin and infection threshold in or bodies that once we drop below we almost instantly feel better. It just takes persistence . I'm ecstatic. One last thing. Do not stop challenging your brain. I feel like part of my recovery cognitivly and neurologicaly is a result of constantly challenging my brain. Keep going!

Literally tears of joy from this guy right now.

Thanks everyone for the support over the last few years! And FYI I'm not leaving. Just can't ....

Post Edited (Will228) : 3/5/2015 6:13:17 AM (GMT-7)

Posted 3/5/2015 3:27 AM (GMT 0)
Wow, that's great news!

I'd love to hear more of your story. How long into treatment did you feel significantly better?
What protocols were you on, etc.

I'm 8 months treating now, and sometimes I question it. Some symptoms have subsided, but I still have a long way to go.

I bet it feels good to be yourself again...finally!!!
Posted 3/5/2015 3:30 AM (GMT 0)
Thanks for posting! I needed a little encouragement today and this is great news. So happy for you that you are back!
Posted 3/5/2015 3:34 AM (GMT 0)
Yea! Great to hear. I would love to hear your protocol also. We're you on multiple abx at once? Did you switch from 1abx to another or stay on one? Did I you continually feel better or did you feel pretty much the same and then all of a sudden get better?

Congratulations on beating the beast!
Posted 3/5/2015 3:45 AM (GMT 0)
From the start ive been on tetracycling/amantadine fall/winter and Biaxin/plaquenil spring summer. I begged many times for my doctor to try others thinking it wasn't working anymore but he stressed that we were sticking with it. my symptoms were mostly neurological and muscle related. I'm telling you it was like a switch was flicked. A month ago I was feeling pretty defeated. It's that quick when it finally happens.So you never know. You may be right near the end.
Posted 3/5/2015 3:47 AM (GMT 0)
YaaaaYYYYY Will228!! Im very happy to hear your good news! Tears of joy is right buddy-I hear that!!
So kind of you to share with your other 'lyme fam' on here as I like to think of everybody in this particular forum. We all do have a connection that is many times hard for others to understand unless they've walked a mile in our shoes.

As Girlie, I too am curious what protocols you followed? Did you have any co-infections? When you said you didnt stop challenging your brain, what did you mean by that?

Congrats on your healing & a BIG thx 4 sharing! :-)

-Courtney
Posted 3/5/2015 3:50 AM (GMT 0)
Also I was undiagnosed for a year in 2012 and had a missed diagnosis in 2006.
Posted 3/5/2015 3:58 AM (GMT 0)
By challenging my brain I mean I stayed in school. I I'm graduating with my mechanical engineering degree in may. It was so hard but so wOrth it. The brain has an incredible ability to compensate and heal but it needs to be worked. As much as I wanted to just sleep all day I pushed myself to work through the symptoms. whether it be reading just a little, doing math calculations, memorization exercises and what not everything helps To keep those neurons firing repairing.
Posted 3/5/2015 1:11 PM (GMT 0)
Oh yes and my infections. ... positive tests with rash for lyme, ehrliciosis, leptospirosis and clinically diagnosed bart.
Posted 3/5/2015 2:21 PM (GMT 0)
2006 was more than a missed diagnosis. My doctor didn't tell me I tested positive for lyme and told me I had mono. I found out when my llmd demanded records from my pcp and he discovered it. All hell broke loose when immediately when I was bit the second time with derealization, getting lost in my own house, and likely meningitis.my llmd said I am very lucky to be where I am today.Treatment has been a little over 2 years
Posted 3/5/2015 6:34 PM (GMT 0)
Thanks so much for posting this to encourage others! Congratulations on your upcoming graduation!! That's a huge accomplishment when battling a Lyme infection too.
Posted 3/5/2015 7:33 PM (GMT 0)
Thank you Will! I'm extremely happy for you.

Best of luck! Would love for you to stick around and to tell us more about your story. :)
Posted 3/5/2015 9:12 PM (GMT 0)
Congratulations on not only your healing, but your mechanical engineering degree as well!!! turn That's awesome!!!

And thank you for coming back to tell us about it all! :-)
Posted 3/6/2015 12:02 PM (GMT 0)
This is such a great story! Thank you for sharing! It's very kind of you to remember us. So many disappear once they feel better. Your story is so encouraging. Congrats on your degree! That is a huge accomplishment. You should be proud of yourself! Way to go!
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