DOUBTING MY ILLNESS. help!

I started treatment for Lyme in August. I initially felt better. Then it was up and down a lot, BUT...since January, I feel like the good days are few and far between. LATELY, they are barely there at all. What gives?

I've had terrible herxes from Bactrim, Malarone, and, recently, Ivermectin. Now, instead of the herxes fading and dying down, I just feel terrible ALL the time. For example, I went off the Ivermectin last week cause the herx was so terrible, and I feel as badly today as I did the day I went off it. Shouldn't it fade as I detox?

I just thought eight months into treatment I would not be having insane symptom flairs like I am having right now. All my main/terrible initial symptoms are back with a vengeance. I've been in my bed most of the day dealing with crippling headaches and facial pain. Why does it feel like I'm getting worse?

And (i mean this in the nicest possible way), please don't tell me I'm not detoxing enough or have MTHFR issues. I am detoxing my butt off and have already looked into MTHFR. I guess what scares me, is that I'm starting to have those creeping...
- "do I really have lyme/babesia?" feelings
- is something else wrong with me, and i should be trying to figure out what that is?
- was i just desperate for an answer to my symptoms. Is Igenex really legit?
- are all these supplements and antibiotics really helping...or hurting me?

Now, I don't want to be having these feelings, but have any of you had moments of second guessing?

This kind of doubt is something a lot of have experienced. It makes no sense, but it is almost as if the bacteria are trying to talk you out of killing them!

I am sorry you have been working so hard to get better and aren't seeing the results that you would like. This is a terrible struggle. I hope you can change up your medications to address these new symptoms.

In my own experience, these low points often are followed by some real progress. I hope you see that soon.

I think those of us with long time or lasting symptoms at one time or another doubted our illnesses. However, if your symptoms returned it may mean that u were on long enough or you have gotten a coinfection to rear its ugly head. Detoxing is good but if there's another coinfection or more bacteria to kill, it may take longer or different trestment. I went on and off a number of times and still when I came off would have symptoms flare here and there until finally they pretty much subside as your body learns to fight again.

Hi Lynn, So sorry to hear how hard this is for you. I totally get it and felt helpless also. I switched to a different doctor at the same naturopath clinic as my first doc. The new doctor has a good rep for treating lyme.

She changed my meds to IV antibiotic with a picc line and for 7 wks
now I am having SO many good changes.

You have choices--change docs, ask for med changes, ask for co-inf tests, ask for IV meds--tell them you are doing all you can but need more from them. They might have an open appt. for you or you can speak by phone w/ your doc.

I will be praying for you!