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So how many of the members here are in this situation ?

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Lyme Disease
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Posted 4/4/2015 1:38 AM (GMT 0)
How many of u are still living normal lives or close to normal in spite of their illness ??
This group has like MANY PEOPLE /members .. Are they all home bounded or bed ridden ?
Normal life means ( going out to do stuff, working, study, raise a family, ... Etc.)

And if so how long have u had Lyme and what helped u the most ??
Posted 4/4/2015 4:22 AM (GMT 0)
I am still working. I sort of have to so I push through it. Also, because of having spondylolisthesis (part of my spine slipping off) I had gotten used to a certain degree of pain.

Following corrective surgery last summer I was placed on a slow release medication which i believe has hidden most of the progression of my Lyme. One day a couple of weeks ago I left and forgot to take it. By the end of the school day when I got into my car I immediately broke into tears because of how badly my head and body hurt. It was almost scary.

I am very blessed to have the chance to work still but it does get tough sometimes. Only three people at work know what is going on as I unfortunately have a boss that would try to use it against me.

I am self supporting so I have to work as long as I can for the insurance and the paycheck. If I loose that I am in big deep doodoo!
Posted 4/4/2015 4:32 AM (GMT 0)
I have had Lyme for 30 years with at least two reinfections and co-infections added on top and I have been being treated for eight years. While at times I have spent way too much time on the couch for my comfort or sanity, I have continued to work on our farm and be active with my family.

I have continued to travel, play and exercise, all dependent on my capabilities at the time. Sensitivity to noise has kept me from going to some events at times, but I found other ways to socialize. Although I am almost completely well now, I continue to avoid vexatious situations and people -- of course, that might just me getting cranky as I get older!
Posted 4/4/2015 4:43 AM (GMT 0)
I have had Lyme disease for about two years. I have been treating for 9 months now.

I haven't worked since my symptoms started. I am not bed ridden, but do have a lot of pain most days, especially in the evenings. I also have nervous system involvement.

I do socialize now and then, but my life is kind of on hold - as I never know how my day will be ahead of time. So, I don't make a lot of plans unless it's with my husband - who I feel "safe" with.

I'm hoping for good things in the next couple of months - wanting to turn the corner and feel better.
Posted 4/4/2015 11:35 PM (GMT 0)
I'm back to being normal for me! I don't go out much, but I surely don't wear down in 2 hours like I used to!! I can go out for about a 1/2 day, then come home and cook dinner still! I'm still battling adrenal fatigue and hypothyroidism, so I am still very careful to not get run down or over do on anything.

For me it was herbs - specifically the Chronic Tonic (www.healingwell.com/community/default.aspx?f=30&m=3244272) for Lyme and added in Houttuynia during the last 9 months of my Lyme treatment for Bartonella. It took another year of many different herbs (see link below) for Babesia - and the rest of the tick-borne infections that I had were treated along the way, likely with the Chronic Tonic.

But I also owe my healing to a good diet, more detoxing that is right for one person to have to do, and rebuilding my immune system.
Posted 4/5/2015 1:17 AM (GMT 0)
Yes you can do it! I did not know what is known today and have had Lyme since "88. Mostly I have forged ahead with only one run of IV abx in 1990 when I was diagnosed, and Doxycycline every 3-6 months since then. I was fortunate to have a dx by an ID MD in 1990 or may have degenerated much more. I lost my insuranceiv because I actually used it back then, but my primary care trusted my judgment and gave me Doxy when I asked for it which was usually every 3-4 months for 3 weeks. So I have been chronically undertreated but managed to go on with my life. I am now 61, am needing more treatment but there is not anyone under my insurance that I know of who will treat the Lyme. I actually have started ordering my antibiotics from out of the country and am needing them more in the last few years. Could probably benefit from iv abx again, hopefully an MD in my area will become Lyme literate.
Posted 4/5/2015 2:51 AM (GMT 0)
I pretty much lead a normal life, when I was at my worst 16 yrs ago when I first got it, I made myself exercise in a pool and I had to work, no choice. When a doctor can't diagnose you how do you convince your hubby that something is wrong, we've all heard its depression. There are days that I've laid around most of the day but was still able to do what needed done.

When you put the focus on yourself and the sickness, it seems to make you feel worse than focusing on what needs to be done and go do it.
Posted 4/5/2015 5:05 PM (GMT 0)
I haven't worked for over a year now and was diagnosed with lyme a few months ago. I stay home and clean and cook I also homeschool my son, though some days even these important things are beyond me. I'm not very socially active. My family tries to understand but sometimes they are asking me things like "You can't come!? you HAVE to come! So and so is here from California." It's so upsetting, as if I wouldn't come if I were feeling better.
We all want to live normal lives right? We want to see family and have a job, and go out to play with friends. But sometimes it's just impossible and would be counterproductive to do them. I can only hope that in the future I will have a normal existence. And I hope the same for everyone! <3
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