A few questions

I can definitely relate. I felt sick for 4 months with symptoms that would come & go but finally got so sick I went to a clinic and was diagnosed with anaplasmosis. Three months later I was diagnosed with Lyme. I was bitten by something 2 years prior and was tested for Lyme-had a bullseye but it came back negative and I was told it was a spider bite. I now wonder if I had inactive Lyme until I was bitten again and got anaplasmosis. I have been sick for 15 months and the list of symptoms makes me look insane. I read for hours every night and I think it can be virus like in the sense that something can activate it in our bodies say an injury or stress or an illness. Just my own theory. When I was so sick last April I also thought I was going to die. I was on doxy for months, an IV picc line for 1 month and oral cephin. The IV made me feel as if I was getting better but once off all meds,I felt terrible again. I am going to start 3 drugs next week with a specialist and hope it will knock it out of me! My vitamin D level was 12. Don't ever believe the first diagnosis.......read and read some more. If there's one thing I have learned it's that you have to be your own advocate or have one with you for every visit and test etc. You are too young to be so sick......but you can be well again. I have hope even though I have many dark days I need to believe that some combo of pills will KILL the bacteria!!!

Hi Sydney,

To answer your question: Absolutely! Some of our bodies can keep Lyme in check for many years. It just takes a pregnancy, too much stress, or anything else to tip the scale in favor of Lyme.

I was bit when I was around 8. I've had some odd stabbing pains and weak feelings here and there for a couple of decades, but it never stopped me. I used to be a world traveler and into fitness. All the sudden, in 2008, I became so ill I could not get out of bed. Just overnight.

Please, do not believe these docs. You have to almost self diagnose and seek out a Dr. that is willing to send your blood tests to Igenex.

You're stating that your symptoms jump around and also that you have one sided pain. Those are two hallmark signs of Lyme.

The good news: it sounds like you know what's ailing you. Create a new post asking for a LLMD in your city/state. And get going! The sooner you start the better. Oh, and read the first post "New to Lyme?" and start detoxing!

Good Luck!

Thank you Leilex! I live on a farm surrounded by woods so I very well could have been bitten at anytime and not realized it but I do know of two times for sure when I was younger...once not far from home and once in Georgia. My mind keeps going back to that and hoping that maybe the answer to why I have been feeling like this is right in front of my eyes.

Mtlassor...I can relate..I've always been one to be on the go. My husband used to say don't you ever get tired...and honestly I never felt tired...I hated sitting home doing nothing...I was always ready for what was next. Then out of nowhere I wasn't me anymore and haven't been since. When this first started I was having terrible pains everywhere...chest pains which made me think I was having a heart attack, my arms and legs hurt unbelievably bad, shoulder pain, I had pains in my head, numbness and tingling in my arms,legs,hands and feet,horrible breast pain, you name it I had at! I would block off an area in my living room put pillows and blankets on the floor and lay there basically all day with my one year old dozing while she watched tv. I would really only get up to make her something to eat or go to the bathroom. I lived in constant fear that I was going to drop dead and she would be wandering the house alone until my husband got home from work. It was horrible. Then I would start to feel a little better but no matter what it always comes back again. I had a sore throat for almost a year...and I also have terrible mouth pain on my tongue and palate. Out of nowhere and doing nothing to set it off my left shoulder, arm and leg will ache so badly I could cry. My arms and legs get incredibly weak and shaky and recently I've had this odd vibrating feeling that feels like my cell phone is in my pants pocket vibrating but it's not. I get sudden stabbing pains in my thighs that make me feel like screaming...I also get this feeling like I can't breath and it's been happening more and more. Sometimes I feel like my insides are shaking or quivering. And a few times when I fall asleep within minutes I'm shaking uncontrollably and freezing like my body temp dropped drastically. I can go on lol but look at the book I've written already! I'm sorry : ( does any of this sound familiar?

Hi jennysetter! I know exactly what you mean. I look back and remember things that make me wonder if maybe I was sick longer than I thought. My mom seems to think I made myself sick because I was such a nervous person when I was pregnant and had my last child (she's 2)...I had a miscarriage before I got pregnant with her so the whole time I was carrying her I was nervous something was wrong and I was going to lose her too. Then when I had her I was paranoid about everything and anything that had to do with her. I guess I did add a lot of unwarranted stress to my life and maybe it does have something to do with all of this. Im sorry your feeling so bad and I wish there was something I could do to help. I wish there was something I could do to help all of us because this is a crappy way to live. It makes it even harder when the people around you have no clue how you feel or what your going through.i always say I wish you could take my place for a day and then you wouldn't be looking at me like I'm exaggerating. Thank you for your kind words and I wish you all the best as well. Stay strong!! You are not alone and I am always here even if you just need a friend to chat with

I have been asking around and getting an idea but I haven't contacted anyone yet. I have an appointment with my rheumatologist next week I think and I'm going to ask her to run more tests on me. I'm not sure if she will but I have nothing to lose in asking her. I'm also going to ask her to sign the labs for me to send out so I have that as a backup if my tests come back negative which I'm sure they will. The closet LLMD I have found is about 2 1/2 hours from me. Another thing I think i might check out is this Dr nearby who practices Chinese Medicine...have you heard of anyone going that route?

Thank you!