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Treatment/Symptom Question (Bart)?

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Posted 4/15/2015 2:15 PM (GMT 0)
Hi Everyone...

I recently started treating Bartonella about a month ago. I just noticed a very significant improvement in one of my Bart symptoms, which is great, but now has me wondering why that's the only symptom that has changed so far.

Is that normal for one symptom to go away more quickly with Bart, and maybe others hang on and linger before they improve? How does that work? Trying not to freak out that other symptoms haven't changed yet...
Posted 4/15/2015 6:59 PM (GMT 0)
For me, it's been a slow recovery. I have lost a few symptoms - but some have stayed the same...others have reduced somewhat...and I even got a few new ones after treatment started.

I have lost more than I've gained.

A month into it is early - I think that's great that one of your symptoms has improved greatly. Just keep going, one by one they should get knocked off.

BTW - remind me - what are you taking with the Rifampin?
Posted 4/15/2015 7:26 PM (GMT 0)
I have the same experience as girlie...

Girlie, what symptoms have improved for you?

What has stayed the same?
Posted 4/15/2015 7:45 PM (GMT 0)
Candle - Improved: sleep issues, frozen shoulder, strength in left arm, foot pain, rib pain, off-balance, anxiety, gained my weight back, tinglies on scalp, muscle twitches,
They have improved 50-100% - different for all of them.

Stayed the same: vibrations, shivers, hot flashes, tailbone pain (thought it had improved some, but nope), knee pain, back pain (mid and upper), nerve pain, elbow pain, wrist pain,

new since treatment started: shoulder pain (not the blade, but the top and front - when I do move them...like putting on and taking off shirts/jackets...but not sore to touch/press; hip pain/stiffness, tingly tongue.

Because my worst ones are not better (or if they are it's just slightly) - the vibrations, shivers, nerve pain, - I still often don't feel like I'm improved much. The nerve pain just kills me.
Posted 4/15/2015 7:53 PM (GMT 0)
Wow, Girlie, you sound just like me! Doctor just extended the Bartonella treatment for another two months to try to resolve the remaining symptoms. After doing some research, I saw someone post that some symptoms of Lyme, Bartonella etc resolve quicker than others due to where in the body the bacteria is concentrated and whether the treatment is able to penetrate those areas easily. Sounds like it makes sense.
Posted 4/15/2015 8:18 PM (GMT 0)
Bart nerve issues seems to take forever to fully resolve. In my opinion, and I'm not an expert, even if the Bart bugs are almost eradicated the neuro damage can linger and it just takes time to heal. I'm at 90% well with still some lingering neuropathy. I've been off Rifampin for over a year. Stopped Plaq last Feb and finally stopped Mino last month.

Before you end treatment you may want to take one more run at Babs, and discuss with LLMD about cleaning up some virus's with Valtrex.

Tomorrow I start 30 days of Diflucan to clean up any systemic yeast, and add NAC and Olive Leaf Extract to my GSE, Cat's Claw, Probiotics, and vit and mineral supplements.

I'm ready to admit if this as good as it gets after 5 years of aggressive ABX (incl IV) and herbals.
Posted 4/15/2015 8:37 PM (GMT 0)
tickbite - I was just thinking the other day...it's a possibility after 9 months of antibiotics...that the bugs are all killed...but now the body has to heal. When you think about it, is it realistic that once the critters are killed, after they've been causing all these issues...that all pain/stiffness will go immediately? I don't think so.
Especially the nervous system ones....my nerve pain, shivers, vibrations....the nerves need to heal, even if the lyme has been killed off, right?

But, I would hate to stop treating...and then three months down the road, realize that the symptoms are still there...and I shouldn't have stopped.

It's tough to know.

I have read stories of people who stopped antibiotics...and their fatigue, and joint pain got better, but it took two or three months.
Posted 4/15/2015 8:50 PM (GMT 0)
Some say the bugs can never be fully eradicated. We just can hope too reduce the infection(s) load so the immune system can take over and control the remaining bugs.

I'm in the camp that follows the "we just need time to heal", so we got to try anything that helps us build the body back up to see what works and what has little value. Trouble is to find out what symptoms are caused by what disease or what is out of balance now.
Posted 4/15/2015 9:00 PM (GMT 0)
Dtav - how long have you been treating and what have your treatments been?

I haven't done any antibiotic to specifically target bart yet... Working on the lyme cyst form now. My Dr is doing a slow approach I guess .... It's killin' me - I'm not that patient anymore.
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