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just took an ambulance to the hospital

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Lyme Disease
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Posted 4/18/2015 3:08 PM (GMT 0)
I'm alone and scared. They already are trying to give me that anxiety crap =(
Posted 4/18/2015 3:11 PM (GMT 0)
Starlette:

I'm sorry you had to go to the ER :( I hope at least you'll be able to get some abx out of them :( ER doesn't know much about Lyme and coinfections. They think they know, but they don't :(

Let us know how it goes. I hope you feel better soon. We are here for you!

Hugs
Posted 4/18/2015 3:17 PM (GMT 0)
I'm sorry you had to do this alone. There isn't anyone that could be with you? Hopefully they will help you and listen to you. Let us know how it goes.
Posted 4/18/2015 3:42 PM (GMT 0)
Really hope you get something to help you feel better, starlette. We'll be thinking of you. Do keep us posted!
Posted 4/18/2015 4:38 PM (GMT 0)
I remember my two trips to the ER last year. No one mentioned anxiety but they didn't really do much besides hook me up to an IV and run some blood tests. After it was all done they said I was fine and sent me on my merry way.

I hope you feel better and it's nothing serious. What sent you in?
Posted 4/18/2015 4:48 PM (GMT 0)
I've had severe chest pain & sob since monday
Posted 4/18/2015 5:28 PM (GMT 0)
Thinking of you! Please keep us posted. xo
Posted 4/18/2015 5:53 PM (GMT 0)
Starlette are you in the NJ/NYC area?
Posted 4/18/2015 7:30 PM (GMT 0)
I was sent home. Still having trouble breathing. I explained everything to the emt and doctor. It's official. I definetly have lyme. The Rpr syphilis test came back negative. Two lyme titers were positive. Kd23 igm band on first western blot positive. Complement c3 way high which means inflammation. Ebv is positive. So I have lyme,ebv,gerd,and I have to get a mole biopsies for cancer. My family will still tell me I'm crazy. I'm home alone on bed now. I'm in the northeast ohio area
Posted 4/18/2015 7:38 PM (GMT 0)
They didn't do the right syphilis test again. I asked for an fta darn it. I came up negative on all the early syphilis tests but I didn't have the right test again. darn it I told them what to do specifically. Ugh =(
Posted 4/18/2015 7:48 PM (GMT 0)
I'm starting my antibiotic soon. I was trying to wait until after my cleveland clinic work up this week
Posted 4/18/2015 8:55 PM (GMT 0)
I hate pain medication but I really wish they would have given me a bottle of dilaudid with the doxycycline for the herx pain I'm going to be in. I'm very scared of the herx. I don't want to go through this. This is a terrible thing.
Posted 4/18/2015 8:58 PM (GMT 0)
Hi sorry to hear your having a tough time. Many of us have experienced what I think you are talking about.
Costochondritis causes chest pain, felt at the front of the chest. Typically, it is sharp and stabbing in nature and can be quite severe.

Whenever I would take a doxycycline the pain would immediately go away !
Posted 4/18/2015 9:50 PM (GMT 0)
Starlette89, dont you worry about what anyone else thinks of you. You stay on the track that YOU feel fits what is going on. Pursue it until you get answers. Dont let friends, family, or doctors drive you away from what you feel is the right track. I let people influence me in the beginning and got absolutely no where, the furthest thing from answers.
Posted 4/18/2015 11:22 PM (GMT 0)
Well the only abx I was given is doxycycline 100mg twice daily for 14 days. That's all the doctor will give me & I don't go to the llmd until june.
Posted 4/18/2015 11:25 PM (GMT 0)
Another huge worry I have is my vision issues getting worse. I have a ton of clear squiggly floaters,decreased color vision in my left eye,photo phobia,and dim flickering vision. That is actually my biggest fear out of this is I take the antibiotic & I lose vision or something like that.
Posted 4/18/2015 11:34 PM (GMT 0)
My dad as of now but he just thinks I'm crazy now. Even with positive tests he refuses to believe me. Ty marine I needed that. I'm so scared to do anything to make them all think worse of me than they already do.
Posted 4/18/2015 11:58 PM (GMT 0)
You will not lose your vision if you take the antibiotic. While it isn't a curative dose, it will keep things in check for a while. You wouldn't want a full dose at the moment anyway, it would be too much for you.

The squiggly things you are seeing are the white and red blood cells moving through small veins in your eye. Nothing wrong there you just have a heightened awareness of them.

While all of the symptoms you are having are very worrisome, they will all be resolved with treatment. In the meantime, you can use the time to start detoxing, working on relaxation techniques and get your diet to a really healthy state.
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