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Lyme Disease
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Posted 4/27/2015 12:05 AM (GMT 0)
A few months ago I came down with a lingering virus that mimicked whooping cough. It persisted for a month. At this time, I was unclear about a Lyme diagnosis and was uneducated in general (re: contraindications for steroids).

I was prescribed antibiotics and symbicort, which helped my symptoms, but I just haven't been the same since.

I feel so awful and have constant tingling in my legs and other areas (transitory).

Just wondering if you think there is a correlation. My symptoms are now relentless...it's been over 70 days of feeling like I'm dying.

Thanks.
Posted 4/27/2015 8:09 AM (GMT 0)
Hoshie,
Are you being treated for Lyme disease at the moment?
Posted 4/27/2015 4:14 PM (GMT 0)
Steroids lower the immune response, and when a person has an infection, that means that the infection spreads faster and farther than it would have without something suppressing the immune function.

Once you get started with treatments the symptoms will ease back up for you - although I would highly suggest that you get started now with detoxing, diet changes, and supplements to help your body better cope with what it's having to deal with.
Posted 4/27/2015 4:58 PM (GMT 0)
Thanks guys. Ya I'm detoxing and starting treatment soon, although I don't think I will go the abx route, as I am very apprehensive. I just need to get better. Seriously in hell 5-6 days a week. Haha.

This place has helped me so thank you.
Posted 4/27/2015 6:09 PM (GMT 0)
I'm very happy to hear that this community has been of help to you, Hoshie! I hope that you will find we can continue to be of help to you!! Keep on increasing your detoxing until your are more comfortable.
Posted 4/27/2015 6:59 PM (GMT 0)
Thanks traveler. I just think it's ironic that I sought help for a virus and took a steroid that may in fact take 6 months to recover from and leave my system. I need to be more educated in the future.

Your story, in particular, has been helpful/inspirational, as I want to improve without abx. Nothing against the people who have used them, but I just don't want that road.

I wanted to order the CT, but it seems I can't get it shipped to Canada. I have read a ton on herbs, but still have no idea what to try precisely and/or where to go here in Calgary.

Guess I need to keep looking/educating.
Posted 4/27/2015 7:17 PM (GMT 0)
blush Well, thank you for your kind words!! I'm so glad that my story has been of some help to you - makes me feel like it was worth having to go through it all.

I am not pushing you in any way, but you could order the herbs individually and make the Chronic Tonic as a medicinal tea instead, like I did. Or you can find the individual herbs for Buhner's protocol.

Everyone has their own healing path for Lyme and company. No one should be upset if someone chooses to heal by using another method. The only thing is that we have to educate ourselves about each process, because depending on what all you are dealing with, one method of healing may not be the best way. Also, the learning curve is incredible!! and if you have the lovely brain fog, it's even harder - but that's where this community comes into play really well - you can ask all kinds of questions!!!

And while I don't have any listings for LLND's close enough to you for you to drive to go see (10 or more hours each way), you might be able to contact them and do Skype appt or phone appts?? If you are interested just shoot me an email explaining what information you are needing!

Never give up hope!!
Posted 5/13/2015 7:48 PM (GMT 0)
So I had Lyme tests performed here in Canada, which came back negative (yes I know there are many false negatives).

I know they will tell me I have MS given a few lesions, but I'm not buying it.

My symptoms are so severe right now, and I really do feel like I've been poisoned...like I'm dying. My whole body tingles, yet I show no signs of infection and all tests (other than a MRI that showed a couple lesions) come back negative. One doctor even questioned whether my symptoms are psychogenic in nature haha.

Not sure where to turn now.
Posted 5/13/2015 8:05 PM (GMT 0)
When you say you had this virus, did they know what it was? Did you test positive for a certain virus?
Posted 5/13/2015 8:07 PM (GMT 0)
You can still email me to see if there are any LLND's in your area that treat Lyme.

You can post on here to see who in your area sees a LLND and get the contact information for the LLND from them.

You can use Buhner's or Cowden's protocol - or even the Chronic Tonic - and treat yourself.

You can travel to the US for treatment.

So you still have a few options.
Posted 5/13/2015 8:11 PM (GMT 0)
I didn't get tested at that time. I had severe mucous and a cough similar to whooping cough/pertussis. I took antibiotics and steroids and things have fallen apart. I had symptoms prior (tinnitus, fatigue, anxiety), but things have declined sharply with concerning new symptoms.

Really scared and feel like I'm dying actually :/ literally feel that sick. I'm a neuro mess
Posted 5/13/2015 9:43 PM (GMT 0)
Hi Hoshie,

I am new to this stuff as well and also located in Calgary. I started showing symptoms in February and they have progressed substantially over the past few months. Through a google search as well as referral by word of mouth, I have found a someone who has help me set up Ignex testing (which is very expensive, but when it comes to your health I strongly believe it is well worth it). The test results just came in and I find out the results tomorrow (scared to death but also kind of excited as if it is positive I may be able to receive treatment sooner than later)

I know exactly the frustration with standard MDs, a doctor referred me to an Infectious Disease doctor so I could talk to them about the possibility of Lyme and they refused to take the referral. So much for the hippocratic oath.

If it is Lyme / Co. infec. we will be working out a treatment plan to get this virus out of me. The doctors are very strong believers in building up the immune system to help fight this evil thing.

Shoot me an email if there are any questions as I know the frustration of being scared / anxious and finding no relief in the traditional medical system.
Posted 5/13/2015 10:09 PM (GMT 0)
Ahh a Calgary borther (or sister). Awesome. Good luck tomorrow. I really hope you get some answers. As for the Infectious Disease doctor, I saw a top guy in Calgary 10 years ago and he said it was MS and wanted to put me on meds. I knew it wasn't based on symptomology and never went back.

I've gone through the million dollar medical workup with traditional Western medicine and they think I'm nuts.

A medical doctor recently tested me for lyme and guaranteed I don't have it after the results came back. I hate health guarantees.

I'm seeing someone else who is literate in Lyme and she thinks it is a good possibility given my "bite" in Japan and subsequent symptomology. Here's the thing...I have the money, but 5 grand to get tested for something that doctors tell me I don't have after testing for it? People think I'm crazy for considering it, but then again, they don't feel like they are dying and being tortured. I've suffered for 10+ years and been functional throughout that time. This is different though. I have a 14 month old son and need my health back. If you need anything at all, let me know.
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