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4 co-infections. I don't know what to do anymore

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Posted 5/22/2015 9:40 AM (GMT 0)
Helloo,

I've been sick for 1.5 years, and being treated with antibiotics for around 6 months. I'm officially diagnosed (positive test) with Mycoplasma and Rickettsia but my doc has also diagnosed me with Lyme and Babesia. I saw him today and diagnosed me with Bartonella too. How do I even know what is what anymore? I've been doing some reading and all the symptoms seem to overlap. The only reason why he was so sure on Bartonella was because I showed him a photo of these cat scratch hives I got 6 months ago which I forgot about.

My last appointment, I had:
- chest pain when I breathed in
- my lungs felt like they were squeezed and I was winded + fast heartbeat
- night sweats (I've had this forever)
- dry eyes
- fatigue
- a few more things but I've forgotten

He put me on Plaquenil and Azithromycin for Babesia.
The chest pain hasn't happened for a month, and my headaches are getting better (I think).

Today, my complaints for the last 2 months were:
- Dry itchy eyes
- fatigue
- headaches
- increased noise sensitivity
- insomnia
- the squeezy lung thing
- more twitching
- more muscle aches, pains, joint pain. In arms and legs
- Pin prick feeling in my hands and feet
- my left leg went numb for 30 minutes once.. what the heck
- Yesterday my head felt like it was on fire..it was hot to touch but the rest of my body was cold

He's taken me off babesia meds and put me on Rifampicin and Ciproxin for Bartonella. He's stopped treating my Lyme as he thinks I've been on Lyme treatment for long enough. My main symptom anxiety hasn't come back for 2 months so I feel pretty good.

Sorry this is so messy, it's the only way I could type it out that makes sense to me. I just want to know your opinions on this as I am so lost as to what I have. Testing for bart and babs isn't available in Australia so I'm starting to freak out.. I don't know if I'm on the right track or not, even though I trust my LLMD.

Thanks!
Hope you're all doing well
<3
Posted 5/22/2015 10:04 AM (GMT 0)
Alot of people seem to like this guy Buhner /www.youtube.com/watch?v=Rij1wbH3jNk

I had followed some videos with Dr Jernigan on youtube (and bought his book which helped tremendously)

This was before i was aware of Buhner... I think it is a good idea to pick one of them to follow... to better understand what your dealing with.

Just a suggestion from another frustrated soul... Peace
Posted 5/22/2015 11:17 AM (GMT 0)
So sorry to hear u are so sick. The battle against Lyme and co infections is a long, slow journey. But believe me, it is so worth it. It is possible to get well and feel yourself again.

The best advice I can give u is to be persistent, listen to your body and pamper yourself. Once I gave into the anger and learned deep breathing and relaxation, it helped me to heal.

My husband is still battling as babesia can be a lil tougher to beat but there are so many new herbals out there now too.

Be sure to detox, eat healthy and don't push your body to the brink. It's already battling enough, it doesn't need extra stress.

Best of luck to you.
Posted 5/22/2015 6:06 PM (GMT 0)
Ariabear - it's normal to have doubt when we have these infections. The symptoms change, come and go...flare...etc.

I know it's difficult to be treating for a length of time and still feel ill...but lyme and co's are difficult to treat...and it's not a quick fix.

It does sound like your Dr. is on top of it though. The fact that he feels it's time to change treatment after treating lyme for 6 months, and evaluating your symptoms is good.

I think you should trust your Dr.

Keep coming back here with your questions...or to just get support.

Question: Are you doing enough detoxing?
Posted 5/23/2015 1:16 AM (GMT 0)

springsjean said...
So sorry to hear u are so sick. The battle against Lyme and co infections is a long, slow journey. But believe me, it is so worth it. It is possible to get well and feel yourself again.

The best advice I can give u is to be persistent, listen to your body and pamper yourself. Once I gave into the anger and learned deep breathing and relaxation, it helped me to heal.

My husband is still battling as babesia can be a lil tougher to beat but there are so many new herbals out there now too.

Be sure to detox, eat healthy and don't push your body to the brink. It's already battling enough, it doesn't need extra stress.

Best of luck to you.

I can't wait! I'm not angry anymore.. I was a few months ago but I just learned to accept it and I feel much better. I asked my doctor about herbals and he said he only uses them to treat patients that can't tolerate antibiotics? And I'm doing okay on them so he says I can take it after my abx treatment is complete.

Thanks !
Posted 5/23/2015 1:23 AM (GMT 0)

Bellyfull said...
Alot of people seem to like this guy Buhner /www.youtube.com/watch?v=Rij1wbH3jNk

I had followed some videos with Dr Jernigan on youtube (and bought his book which helped tremendously)

This was before i was aware of Buhner... I think it is a good idea to pick one of them to follow... to better understand what your dealing with.

Just a suggestion from another frustrated soul... Peace

Hmm are we supposed to do a protocol on our own? Or do we ask our doctor for help? Because I'm already taking abx

Thanks <3

Girlie said...
Ariabear - it's normal to have doubt when we have these infections. The symptoms change, come and go...flare...etc.

I know it's difficult to be treating for a length of time and still feel ill...but lyme and co's are difficult to treat...and it's not a quick fix.

It does sound like your Dr. is on top of it though. The fact that he feels it's time to change treatment after treating lyme for 6 months, and evaluating your symptoms is good.

I think you should trust your Dr.

Keep coming back here with your questions...or to just get support.

Question: Are you doing enough detoxing?

Hi Girlie, I'm actually feeling a lot better compared to when I first started. I managed to go shopping by myself without feeling anxious a few days ago so that's good enough progress for me haha. The physical stuff like pain and twitching doesn't bother me that much but I'd like it to be completely gone in case it comes back.

My doc said he expected me to be done with treatment by 6 months since I wasn't sick for very long but it seems like we're going to continue! I trust my doc :)

No I'm definitely not detoxing enough. I drink lemon water with a bit of honey maybe 3 days a week, and I don't have a bathtub so I do epsom foot baths when I start to feel crappy. But then when it gets really bad I go to my boyfriend's place to take a bath there.

Thanks for the support! <3
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