craneial nerve issue

What do you mean it's permanent? Did you mean that you can't seem to get any relief from it?

And what kind of an issue? Pain? Muscle twitching? Numbness?

Those things are all common for Lyme, especially if you have been diagnosed with Bell's palsy.

I know this is a lot of questions when you don't feel good, but it will help us know how to better help you.

Unless the doc you saw was a LLMD, then he won't understand what Lyme can do to the cranial nerves.

So was this doc a LLMD?

Don't worry about your spelling, as long as we can figure out what you mean, it's all good!

Permanent nerve damage can happen with Lyme, but I've found a lot of my nerves are still healing - and I've been healed for 4 years from my chronic Lyme infection, although I did get reinfected last year and have healed from that as well.

I think it was irresponsible of the LLMD to tell you it's permanent damage, unless you have been healed from Lyme for quite a while. There is no way to know if it's permanent until that time. It can take up to 7 years for nerves to heal.

Is your LLMD ILADS trained? If they don't know much about these infections, I think I would find another doc no matter if they were ILADS trained or not - not all doctors are created equal.

Same thing with the Ear, Eye, throat doc - unless they are Lyme literate and have had their training through ILADS, they don't have a clue about Lyme and it's impacts on the nerves.

Lyme generally attacks the myelin sheath - the protective coating around the nerve, so it gets messages mixed up and the wrong messages sent. This generally heals once the bacterial infection is healed.

I'm sorry, I don't know your details - are you in treatment now? For how long? Are you doing much to detox?

Thx for all your feedback, mine has been going on for 5 years and the only thing that helps is detox thru excercise but I have learned what is enough when excercising I read that Lyme does not like heat or oxygen.

Thx-Helloq