3rd LLMD appointment was this afternoon. UPDATE

Yesterday I was doing oxygen and sauna treatment and asked if my LLMD had any cancellations because I wasn't suppose to see him until July 2nd and didnt feel like waiting, So I saw him today (another 300 dollars out of pocket for appointment and 285 in supplements on top of that ..585 spent today).

My LLMD decided to have me stop all antibiotics and herbs. Iv been on doxy since march, doxy100mg and pulse of tindy500mg 4 days a week since april. Herbs since January. He based this on the fact i told him i feel little or no improvement since started treatment.

He thinks its possible I have become toxic or however he described it from treatment and wants me to take a break and see how I feel in two weeks. I dont know how i feel about this but he said in two weeks to give him a call and if i feel the same or worse he will write up a new treatment plan and antibiotics for me without having to come in for another appointment right away.

He has been treating lyme for over 20 years so in my gut I trust him i guess. He told me had patients who were getting better or recovered not feel better until they were off of the meds because they were toxic he described, I dont know if thats me or not find out in the next couple weeks or I will be back on new Meds he said.

The reason he thinks i could be better and toxic is because I keep doing more miles on the exercise bike during oxygen treatment and hotter temperatures in the sauna and sweating more and not sleeping for days after treatment like I was in the beginning.

My concern was even though I had improvements in treatment ^^ There are days I get exhausted from simply walking around or standing so I am confused with that

Right now He has me on these for the next two weeks to see if it helps or changes anything:

1)NYSTATIN 100,000UNITS for thrush....6 Milliliters by mouth 5 times per day

2)Tri-Fortify Orange Liposomal Glutathione ....1 teaspoon twice per day
------Contains: Glutathione 450mg and Vitamin C(Ascorbic Acid) 50mg each teaspoon.

3)Researched Nutritionals: NT Factor Energy(Mitochondrial Formula) 2 caps 2x a day
-----Contains: alot of stuff look it up on google lol....


Im going to follow this for the next two weeks and see what happens , I am thinking of seeing another LLMD possibly in NY who is father south about 3 hours from me and see what he Says if I dont like the outcome of this or my LLMD new plan in 2 weeks..

I don't know about your LLMD; obv., I haven't met him, so I can't judge.

I'm surprised he's stopping treatment completely, esp. if you felt better at times.

It's the same with me; there are days I can walk and swim, and then on other days, I can barely get around the house without bumping into walls.

The key for me is whether I'm having more bad days than good. I know I'm getting somewhere on treatment even if I have a few good days. If every day is bad, and every hour of every day is bad, then I know I'm not going anywhere.

It takes a long time to make progress in Late-stage Lyme.

Margaret

So if he thinks you are toxic, to me that means you need to detox. Are any of the things he prescribed for detox? Have you been tested for the gene mutation a MTHFR?
Also regarding the Nastatin, is it in pure form? If it tastes good it is not in the pure form. You need the pure form. Does this mean he thinks you have Candida?

The NT Factor has some interesting research behind it, I ordered some for myself also, am taking now. You may feel much better when your system builds back up, antibiotics take a lot out of me when I am on them. Will you continue going for the oxygen/sauna treatments?

Post Edited (Lighterbeing) : 6/20/2015 4:16:38 PM (GMT-6)

lighterbeing yes he wants me to continue going to oxygen/sauna once a week each week i am going longer during oxygen and reacting better to the sauna and he wants me to keep doing it

dancingbear no reaction really unless a hot flash is, when i started it yesterday a few hours after i felt like i was having a hot flash which i never got before i usually am only cold with lyme and its 6 milliters 4 times a day.... i asked for it cuz i noticed i had white coating on my tounge he said it wasnt that bad but i wanted to get rid of it so i talked him into giving me this mouth wash

bump? is it smart to just stop for 2 weeks i keep thinking about this and dont want to set myself back??? anyones thoughts