Having a tough time with Babesia

Hi all,

For whatever reason, all babs meds give me terrible side effects. I try to take them but can't get to the 3rd day because they're kill my ears with the tinnitus and noise sensitivity. They also give me terrible insomnia. These aren't herxes as many of the babs meds are known to cause these issues. I also have the same issue with cryptolepis. I've been taking a cryptolepis tea that I make in the morning to try to avoid the insomnia, but it doesn't work.

I also take artemisinin, which doesn't really do much. I guess it's on to Sida, but I'm not sure where else to go really. I really wish I could tolerate the meds or cryptolepis for a few months but I just can't. Not really sure what to do. Ideas/opinions?

Tried mepron, malarone, coartem, lariam, plaquenil, cryptolepis, and artemisinin. I will try sida acuta next. I really don't know where else to go after that. I want to breathe again.

I have tried the CSA tincture and it didn't do anything for me and I went through 3 bottles. My babesia doesn't cause insomnia cause I sleep like a baby when I don't take any babs meds, so I know its a side effect. No methylation issues either. I'm trying to avoid tinctures because the alcohol gives me yeast issues, so I've been taking cryptolepis tea that I haven't noticed anything from either.

I'm having a tough time with Babesia too. I have the tinnitus, but mostly at night. Some sound sensitivity too, but tolerable.

My breathing is the worst part. Try googling herbs and supplements that are good for the lungs. My list is at home but here are some that I can remember now: elecampane (main ingredient in Enula -which helps a lot by the way), skunk cabbage, lobelia, Ailanthus (tree of heaven), N-Acetyl Cysteine (NAC), Neem, Cayenne, Cordyceps, Astragalus, pleurisy root, elderberry syrup, olive leaf extract, oregano oil, peppermint. There are probably others that I can't think of.

You might also consider googling Ann Corson's Protomyxzoa treatment. Along with Babesia, Proto is known to cause air hunger. I'm taking some of the herbs and supps I listed above, and also slowly implementing parts of this protocol (artemisinin, Coptis, Cumanda, Serrapeptase, Nattokinase). I also am on Babesia treatment with Mepron (3weeks on, 1 week off), and I've had the best month of breathing since last August. And that is huge for me since I've been to the ER 4 times for breathing/heart since November 2014. I'm 47, by the way, with no risk factors for heart disease (good cholesterol and blood pressure) except being overweight and not very active due to not being able to breathe.

Part of the Protomyxzoa protocol is a low fat diet. I notice I breath better when I eat less. Another fellow sufferer with the handle "nefferdun" (who is in remission from Babesia/Proto) has researched fat binders to allow her to have a more interesting diet. One she says works is Prickly Pear / Nopal Cactus. It supposedly binds 5-10 grams of fat per 1000 mg pill. It's not a free pass to pig out, but I use it when I have a little (or a lot of) fat. It probably works up to a point, but some fat will probably get through if you eat a bunch of cookies or some icecream. Maybe that's why I'm still symptomatic??

The only pharmaceutical in the Corson Protomyxzoa protocol is Alinia. Some people use it successfully for Babesia. I think I've even heard of doctors using it for Bartonella. I haven't tried it yet, but I have some in my possession.

I didn't think I would ever breath well again. I'm not out of the woods yet, but what I'm doing is working, so I'm going to keep doing it.

As for dosing of the herbals, enzymes and supplements, just start small and work up. I think combining things helps too. If you want to know exact doses, let me know.

Best of Luck!!!!! Keep us posted as to your progress!

Some other heath conditions can be aggravated by anti-malarial/babs meds.

Lupus & certain types of arthritis, for example.

What other auto-immune issues that you are dealing with?

Have you had your ferritin levels checked?