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Posted 7/8/2015 7:11 PM (GMT 0)
I'm looking for someone who can relate to the following:

Obsessional thoughts everyday of every minute. I cannot hold a conversation with someone, I make body movements to lessen my anxiety, i always am manipulating things in my head, i don't go out on the weekends with friends, I have pain in my shins, hands, ears, basically all over. I feel like hurting people. little things always make me mad, i feel like im competing against everyone, im isolated, i can't talk to girls, I work but shoudn't because I can't remember anything, i feel like im stuck in a different world, i feel crazy, i feel like im just washed away, im always quiet, i have tons of anger, I'm so emotional its not funn, i feel like everyday i have two choices to lay in bed and think and feel sorry for myself or to get up and do something even though all of my day im obessing and trying to untangle things in my head. I stew instead of do.

I'm, 27 years and have been battling this disease for 2 years now and have made 20% improvement. I currently take avelox, lamicta, and bicillian shots (2 shots per week). I also take a crap load of vitamins for Lymes disease. Prior to this is was on doxy, IV rocephin, rafampin, and tindizaole, Im just sick and tired of taking medications in general.

This lymes disease things in tough, i'm just looking for some guidance.

Thanks,

Frank
Posted 7/8/2015 8:27 PM (GMT 0)
I'm so sorry, Frank.

It sounds like your herxing pretty badly, to be honest. You didn't mention what you are doing to help your body detox the toxins that are created as the bacteria die off. Would you be so kind as to list what you are doing and supplements you may be taking to help your body detox?

If you are doing lots to detox, have you had any of the MTHFR gene testing done to see if you have gene mutations that are preventing your body from detoxing well?
Posted 7/8/2015 8:38 PM (GMT 0)
There have been so many posts similar to yours. The isolation, anger, depression, anxiety are as bad as the physical symptoms.

You are not alone. Many of the abx that work for Lyme and co also create anxiety.

The anger is a Bart symptom. I'm old enough to be your mom and wowza I used to screech at my wonderful 76 year old mom. Literally scream at full blast on the phone at her while my two Labs would come and surround me trying to calm me.

This thread has some good info and you can see you are not alone. https://www.healingwell.com/community/default.aspx?f=30&m=3444151
Posted 7/8/2015 8:38 PM (GMT 0)
Hello Frank,


I too was in a very similar situation as you. I was bitten by a tick and did not think anything of it. 2 months later out of nowhere I began having anxiety, intrusive and obsessive thoughts almost everyday and almost constantly. I let this continue for 6 months thinking it would pass or I had some kind of mental issue.

It finally occurred to me that I might have lyme. I got tested but everything came out negative. I was put on doxycyline non the less, 6 months after the initial bite. Once I got on doxycycline, the obessive and intrusive thoughts slowly dissapeared, it took about 5 weeks. It has been a long journey for me, 2 years this July. Whenever I got off the antibiotics (doxy, zithromax - 9 months), the thoughts came back, but they never appeared while on antibiotoics. I finally tested positive for bartonella and was put on rifampin. This was huge for me, I saw huge improvements after 3 months. At a point I was 90-95% for some time.

I had a relapse a few months ago and for the first time ever the thoughts came back while i was on minocycline (not as bad as first time). I got off rifampin (on for 8 months) as the doctors believes i beat the bartonella. I believe it too. I am on bicillin shots now 1x week and just have the lyme to deal with. I am very confident in my recovery. OCD thoughts have mostly dissapeared since off minocycline.

I know exactly how you feel, there is hope. What got me through it was that I knew it was the disease and it could be beat. You will get through this. I will send my prayers.
Posted 7/9/2015 4:28 AM (GMT 0)
Hi Frank,

So sorry to hear how badly you are feeling. I watched my son go through a ton of psychological stuff. Thankfully he is much better, but it was devastating to see him experience such mental pain.

Trav knows her stuff! Detox. When I finally made detoxing a frequent occurrence instead of "every now and then" for my son and also took him off meds for a couple of short intervals (about 5 days) to give the body time to detox without adding to the load, he started seeing some great improvements.

What seemed to help best was Epsom Salt Baths with 32 ounces of hydrogen peroxide. (I am not really sure the HP did much as it was just the 3 % variety but didn't want to not mention it in case it helped.) I purchased both at Walmart as they had large bags of Epsom Salt for like $6 and the 32 ounce bottles of HP for around $1. He also dry brushed, even though he hated it and thought I was crazy. I knew he was at his worst when he listened to his crazy mom. He also took milk thistle and Vitamin C for detoxing.

Hope you see a turnaround soon.
Posted 7/10/2015 2:12 AM (GMT 0)
Thank you all for the replays. It helps knowing people have been there and help out.

Does anyone have the protocol for the epsom salt?

Thanks again,

Frank
Posted 7/10/2015 8:38 PM (GMT 0)
You can find lots of detoxing suggestions in the "New to Lyme? Start here!" thread that sits at the top of the forum. But for the Epsom salt/peroxide soaks:

For a foot soak - which is sometimes easier to fit in your day, although it's not as effective. It's still better than not doing it at all -
I use 1 & 1/2 and up to 2 cups of Epsom salts and 16 ounces of peroxide and soak my feet for 20 minutes.

For the full bath, use 3 - 4 cups of Epsom Salt and 32 ounces of hydrogen peroxide and start with no more than 7 - 10 minutes in the water to start. You can build up to staying in the water for up to 20 minutes, but please start off very slowly!! This has the potential to make you herx if you rush it.
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