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Another charming feature of Lyme disease!!!

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Posted 2/10/2015 9:19 PM (GMT 0)
lymie mom x 2 -

What is the name of the hypercoagulation test you had done?

My clott is healing, but I need this test for when I'm off the blood thinners.

This is the first thing the Drs should have done on me.

thanks
Posted 2/10/2015 9:37 PM (GMT 0)
Hi astroman-

Unfortunately I did not get a copy of the orders. There were about 10-12 different items listed and it took the Lab Core nurse a while to pull them all up in the system. I requested a copy of the results to be mailed to me so when I receive them, I will post the itemization of what was tested on here for you. Hopefully I will have them within a week.

Also, I need to note, in the info packet my LLMD provided, he listed the following, but I think they were actually what the MOCHA infection panel consist of vs being separate tests as I had listed above.

MOCHA (infection) Panel consists of:
>>>>> Fibrinogen
>>>>> T/AT (Thrombin/Antithrombin)
>>>>> Fragment 1+2
>>>>> Factor II Activity

So I think at the very least, you could ask for the MOCHA infection panel. And then ask if there is a hereditary panel also.
Posted 2/10/2015 10:44 PM (GMT 0)
Thanks lymie mom x 2!
Posted 2/11/2015 5:37 AM (GMT 0)
lymie mom x 2 -

thanks for the info
Posted 2/11/2015 11:20 AM (GMT 0)
Copper and Vitamin K are both part of the clotting process. Lyme depletes copper and the antibiotics kill off the bacteria that convert Vitamin K to its active form. My thoughts on copper are that the intracellular/extracellular ratio becomes skewed because of a decrease in membrane transport, but that is just me.
Posted 2/18/2015 9:41 PM (GMT 0)
Astroman!

Hey, hope you didn't think I forgot! I got these back in the mail today...hypercoagulation test results.

This is what they were looking for:
-Activated Protein C resistance (anything greater than 2.1 = negative for the Factor V Leiden phenotype)
-Antithrombin III Activity
-Factor II Activity, Clotting and Coag Factor II Activity
-Protein S activity
-Fibrin Monomer, Prothrombin Fragment 1.2
-Thrombin-Antithrombin (TAT) Complex
-Plasminogen Activator Inhibitor (PAI-1)

Hope this helps!
Posted 2/19/2015 4:41 AM (GMT 0)
Thank you!
Posted 4/17/2015 4:48 PM (GMT 0)
I'm bumping this post from several years ago (restarted in February 2015) as I have now had two blood tests come back with no results because the person at Quest says my blood "had too much fat in it" to be tested for ammonia.

This thread has me suddenly worried about this-I'm wondering if this might be hypercoagulation?

Based on this page the symptoms line up--loose stools/IBS is one of my steadiest symptoms. http://www.diagnose-me.com/symptoms-of/hypercoagulation-thickened-blood.html

Thoughts? Astroman, lymie mom, Georgia Hunter or others? Thanks.
Posted 4/17/2015 5:11 PM (GMT 0)
When they would take my blood at the regular doctors, I would notice how dark and thick it looked, none of them even commented on it, as of my last recent bloodwork (in October) it didn't look too bad from when I saw the vile, but back in July of 2014 one of the people taking my blood noticed it was coming out slow and dark and asked me "did you hydrate today" when I had a good amount of water that day.

I'm not sure if I have this problem, based on my symptoms I probably do, but I won't know for sure right now as I can't get any tests for a while and my family is most likely fed up with me and thinking I'm being a hypochondriac. So I'm screwed, but those of you who can get tested for it, I would recommend getting this test, I should have thought to ask for this test when I had the chance.
Posted 4/17/2015 5:25 PM (GMT 0)
It appears Nasalady and Bucci aren't on here anymore. Yet. I
find it very helpful reading their posts. Thank you Astroman or
whoever revived the conversation.
I did take Heparin
for several years about 6 years ago. That was actually before I was
diagnosed with Lyme. When I changed doctors, my current one
didn't prescribe it. Maybe my blood had thinned out. But reading
over what has been written here, I'm thinking of having it
rechecked. I didn't know it might help with Babesia or cut down
on inflammation. I was taking Nanokanaise an herbal blood
thinner. Now, I have a lot of low blood pressure. I don't know
if that may in some way be related. Lots of good info here and
this is the first time I've seen others share that have taken the
Heparin and gotten good results. I always thought I was the only
one doing this treatment and wondered why I'd never come across
it. Interesting.
Posted 7/9/2015 9:32 AM (GMT 0)
I have been having issues with them being able to draw blood. 5-6 times now with 2 different doctor offices have had the same experience. They try to draw blood and part way through filling the vial it stops. They try multiple veins and same thing. It takes 2 people and multiple tries to finally get enough. After the last time I vaguely remembered reading about thick blood with Lyme disease. Up until then I thought I was just dehydrated, so drank a lot of fluids before this time. (I had to redo the draw from last week because the lab rejected it.) same thing. While they were struggling over the vein this time I mentioned having looked up online thick blood and reading about something called hyper coagulation. The tech looked over at the vial they had just drawn and it looked like a slushy. It had already coagulated very thick. So they switched to a larger needle and larger tube and with both working on me they managed to get the last vial done before it coagulated. So looks like this is what's been the problem.
Posted 7/9/2015 12:59 PM (GMT 0)
I feel your pain Lymenstuff. My blood is always thick--almost looks like the consistency of motor oil coming out of my arm.

For what its worth, when they couldn't analyze my results in May, my LLMD told me to take nattokinase 2x per day (I thinkdose is 100 mg) and flaxseed 2x per day to help thin the blood. This seems to have worked at least a little--I haven't had any blood draws that were too thick to analyze since I started that (though the phlebotomist usually comments that my blood comes out slow).

My LLMD says this happens because the Lyme creates biofilm to protect itself and the biofilm makes blood thicker.
Posted 7/9/2015 2:15 PM (GMT 0)
Interesting. Definitely worth looking into
Posted 7/9/2015 5:22 PM (GMT 0)
I have a call in to my doctor's office and hoping to get tested for this soon to get some answers one way or the other. Sure don't want to keep feeling like a pin cushion every time I get a blood draw.
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