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Telling your regular doctor about your lyme/coinf results

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Posted 8/3/2015 2:55 AM (GMT 0)
I brought my igenex results to my pediatrician. The testing was NOT initiated through him, but the "alternative" doctor who signed for the test advised not treating unless something pops up. The pediatrician surprisingly talked about keeping the lyme results in my sons file and we would consider treating if something comes up in the future. He even briefly discussed LLMDS!! And not in a negative fashion either. That's a bit of a surprise.

Well....before you jump on the comment about not treating.....I know--I know now that I should treat him. I'm also glad that I shelled out more money for coinfection testing as we found he's def positive for b ducani and borderline positive for bartonella. But I haven't yet been able to get the coinfection test results to the pediatrician. I will do that soon and since the babesia was actually visualized in the red blood cells....even cc'd says it should be to treated. My pediatrician may be swayed by my thoughts on abx treatment....his ears are always open and he talks well with me about my sons health. And honestly, I ultimately want to educate him!!!

Has anyone ever approached their regular doctor with this sort of info and been pleasantly surprised?

Would you let a regular doctor treat babesia? Afterall.....another BABESIA FISH could prove treatment success or failure.

??
Posted 8/3/2015 2:58 AM (GMT 0)
And treat babesia first, Bart, then lyme...right?
Posted 8/3/2015 4:19 AM (GMT 0)
I can't answer on which to treat first. My pcp is to arrogant to believe Lyme exists and most of the posts I've read reiterate that. It's terrific that your pediatrician is open to the reality of these harmful diseases.

Are you still going to use an LLMD or try and have your pediatrician treat?

I don't have babesia, only lyme and bart. It became really clear that I had bart after I started treating the Lyme. I'm sure someone who has all three will chime in.
Posted 8/3/2015 4:21 AM (GMT 0)
I shared my Igenex results with my regular Dr. and she wanted a copy and said "So, what do you want to do?" I told her I wanted 200 mg of doxy twice daily for a month to start...as I was making an appt. with a LLND who would be treating me, but couldn't get in right away.
She wrote the script...and has been supporting me ever since with monthly liver and kidney function tests.

Re: order of treatment - depends on the Dr. treating. Mine started with lyme, and next is bartonella. I don't think I have babesia, though.
Posted 8/3/2015 4:30 AM (GMT 0)
Wow! I'm surprised! That's not typical at all. You are very lucky, indeed, to have such a pediatrician!

The best way to know which infection to treat first, evaluate your son's symptoms - which symptoms are the worst and what infection it points to, from what I understand, because that would likely be the infection with the highest bacterial load.

And no - I would not let a regular doctor treat any of these infections unless they were ILADS trained, or well versed in alternative medicine or they agreed that they would totally follow my lead, but I've been reading learning about these infections for the last 15 yrs!
Posted 8/3/2015 12:41 PM (GMT 0)
I personally would avoid relying on a regular doctor treating me for these infections, they don't have the know how and are very hesitant in dispensing meds, they tend to be extremely conservative in approach (which is fine normally, but when it comes to this stuff you have to go all the way!). A solid LLMD/LLND can help provide the full scope of strategies that go beyond just abx treatment. They can also provide guidance thru the journey, as there are ups and downs with treatment and they will be able to tweak meds/strategy and help you thru it all.

It's awesome that you can have that dialogue with the pediatrician, I would def keep seeing them and hopefully keep channels open on your son's treatment. Maybe it will help the pediatrician learn more about these diseases to see how your son improves and what meds work, even if initially they are skeptical and hesitant of the treatments your son is getting. It is wonderful that they have an open mind, and that you can have a dialogue with them. That is what medicine is about IMO! good on you for wanting to educate your dr.

It motivates me, I love my PCP, he is a really good dude, but he is clueless and not really a believer that I'm dealing with an underlying stealth pathogen infections because I look so healthy and my tests always look good. My only lyme evidence are positive bands on igenex, both igg and igm, but I'm not CDC positive so that would be a clear negative to him. We'll see, I'm struggling thru a period here of introducing new meds and that is always grueling, but once I have more energy and feel good I plan on writing out an explanation along with reference materials that I can pass along to him. He is a smart guy and I think he would respect it and probably look into it, at the very least. It would be huge if he could come around and understand a bit better what I am going thru.
Posted 8/3/2015 9:17 PM (GMT 0)
i would not let a regular doctor treat lyme/co-infections, even if they attended some ILADS conferences as that doesn't make them qualified. the thing about having a LLMD is they know how to read your symptoms over time and adjust protocols. everyone responds differently as we all have a different chemical makeup, bug load, health profile, etc.

by the way i was in the exact same situation as you were with a semi-lyme literate doctor wanting to treat my lyme and babesia ducani. i asked her how many lyme patients she treated she said a few. she suggested going after babesia first and an ILADS protocol of zithromax/mepron and if that didn't work add biaxin. i liked her approach but didn't trust her due to lack of experience and how to adjust going forward if i didn't get to a full recovery.

well guess what the combination she suggested which i started before finding an LLMD didn't work as ducani strain is resistant to quite a few things. this is why you need an experienced lyme doctor.

don't take the babesia ducani strain lightly its a nasty one and can hide out and hit you hard months or years later than it's really difficult to eradicate.
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