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Twitching, jerking, jumping during sleep.

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Posted 9/4/2015 8:38 PM (GMT 0)
I know a lot of us get this symptom. Mine has become absolutely horrible recently. It's gotten so bad that I can't sleep in the same bed with my wife without keeping her awake all night. Last I slept in bed, she said it was like I was stuck in a cycle where I would violently jerk every 12 or 13 minutes and wake her.

This came on fairly quickly. I've had so many med changes recently that I can't help but wonder if it is a side effect rather than a symptom. I don't see it listed on the warnings for my meds, but with Lyme, I know different things effect me in ways they don't effect folks without lyme.

Anyone else out there have this happen in conjunction with the start of a specific medication? I would really hate to change my protocol now. So many pills to cycle in and out to see if I can find the offender and I'm just now starting to get used to them all again. Thought maybe I'd get lucky and someone else may have some knowledge of medications for Lyme that may have this side effect.

I so miss having my wife next to me when I sleep. I had to sleep alone for so long due to Babesia causing severe insomnia. I was so happy when I got that under control and could go back to normal, falling asleep with my wife.

I have another appointment with my LLMD mid month and will certainly make this a topic of discussion

Any help is appreciated. Thanks in advance.

Thanks
Posted 9/4/2015 9:42 PM (GMT 0)
Sorry LitCN
I had this—not all through the night every night but intermittently, but every night I could not fall asleep no matter how exhausted I was because I would jerk myself awake.

Low Dose Naltrexone fixed it for me (often prescribed for MS). I still spasm every now and then but it's mild. Gets worse when I exercise. I was doing well on Wobenzyme Plus, which also helped calm the muscles.

-p
Posted 9/4/2015 10:45 PM (GMT 0)
LymeitCuckoonut -I teared up when I read your post. I slept apart from my husband for 7 or 8 months - I was in such rough shape...that it was best I slept alone. It just added to my emotional issues...felt so lonely sleeping in another room.
We decided after that time apart that we would sleep in the same bed again...as we felt so disconnected sleeping apart.
I had twitching all over my body, which didn't bother him, and my right leg would jerk a few times before I fell asleep...but what bothered him the most was my frequent wakings - gagging, and gasping for air...and just horrible sounds i was making several times a night. So, he started wearing ear plugs.

My twitching is about 80% better, no more leg jerking...and the frequent wakings are down to about two in the night - but uneventful...I don't make any gagging or other noises...I wake up...and just go back to sleep n ow.

What has helped me is treatment and time...

I'm sorry you are going through this...it's lonely in the spare room!!!
Posted 9/6/2015 6:41 PM (GMT 0)
I have had this symptom too, but like Pirouette, only intermittently. I would not associate it to any medication. It's something that happens to me when I am herxing or symptoms get really bad. I usually don't have it now.

I hope you don't mind a little advice. I understand you are sad that you are not able to sleep with your wife right now, but I would try telling yourself when you go to bed that this situation is just temporary. Tell yourself that for now it is what you have to do so that you both are able to get the best night's sleep.

You will get this sorted out with your medication or with detoxing or treatment or all of the above. Focus on healing and be grateful you still have each other in other ways and remember this sleeping separately is temporary. Feel good in knowing that you would do anything to make her feel good and sleeping well is allowing her to feel her best. Best of luck to you.
Posted 9/7/2015 12:50 PM (GMT 0)
Oh how I knew that symptom. Horrible is an understatement. It was a neurolgical symptom for me. The Amytryptoline did nothing. It cures nothing, only manages the disease.

I used the Nutramedix Pinella brain nerve cleanse and 2000mg of magnesium citrate. I also did coffee enemas to detox. It stopped! When these toxins die, they cause more havoc.

One last note, first check to see if you have parasites. Lyme is a parasite that rarely comes alone. I was horrified by the amount of parasites that came out. I discovered this on my own. They also cause neurological symptoms.

Many medical practicioners are ignorant about parasites. Everyone has them but not everyone suffers from symptoms.

Wishing you good sleep!
Posted 9/7/2015 4:45 PM (GMT 0)
I need to correct you on something. Lyme is not a parasite, it's a bacteria. There's a big difference. Babesia is a parasite that lives inside our red blood cells, and there are other types of parasites that we are highly susceptible to because of these infections, but they are not all parasites, but also bacteria, viruses and more.

I'm glad that you have found what was causing your issues!! For me it was toxins that caused my body to do all that twitching, jerking and jumping both when I was awake and while I slept. It's best to approach this as it could be many things and to rule out each carefully.
Posted 9/7/2015 9:49 PM (GMT 0)
Traveler, your posts have lifted me in my darkest days when I was not sure if I was going to make it. I am so sorry I did not tell you this earlier. Heathersdad is another one who gave me the inspiration to not give up.

I had came across this eyeopening post about Lyme. I would like your feedback. I had 7 different types of parasites and 1000's of them. I spent over 50K only to find this myself.

I think this blogger is on to something

http://lymetherollercoaster.blogspot.nl/2010/10/lyme-disease-is-parasitic-infection.html

Babesia is nasty. I was coughing up blood clots. So glad to still be alive.
Posted 9/7/2015 10:25 PM (GMT 0)
Thank you so very much for your kind words!! I'm so happy that I have been of help to you! And believe me, both Heather's Dad (I know him) and I completely understand that you have been a bit busy with survival and haven't been thinking of who to thank yet!!

And I have to respectfully disagree with that blog post. There are many, many scientific papers that completely describe Borrelia Burdorferi as a spirochete, which is most definitely a bacteria, albeit a nasty one - not a parasite.

I believe this confusion is not intentionally put forth, but occur because it (the Lyme bacteria) is sometimes described in this way:
"a genus of gram-negative, aerobic, spirochete bacteria that are parasites on mucous membranes and cause borreliosis and other conditions. B. burgdor´feri, transmitted by ixodid ticks, is the cause of acrodermatitis chronica atrophicans, erythema chronicum migrans, and lyme disease. "
medical-dictionary.thefreedictionary.com/Borrelia


When in reality, this is what is being shown in scientific articles:
"Ticks are important vectors of human and animal pathogens of viral, bacterial and protozoan nature worldwide. Lyme borreliosis (LB) is the most widely spread and most frequent tick-borne bacterial disease in Europe with an estimated 65,500 human cases annually."
www.parasitesandvectors.com/content/6/1/202



"Lyme disease is a bacterial infection caused by Borrelia burgdorferi, an elongated, spiral-shaped bacteria transmitted to humans through the bite of a tick. Known as spirochetes, these bacteria are unusual, not well studied, elusive and difficult to cultivate in the laboratory, and capable of advanced survival activities more commonly found in larger, more intelligent organisms."
www.publichealthalert.org/parasites-and-worms-the-new-lyme-disease-co-infection.html


"Although spirochetes are not a large group -- there are only six genera -- they have had tremendous impact on our lives. Both syphilis and Lyme disease are caused by these bacteria..."
www.ucmp.berkeley.edu/bacteria/spirochetes.html


But that's why I only look to blogs for general information, not for definitive information. A blog is just a person's opinion, which may or may not be based on fact. It's up to us to determine if the information posted there is correct.
Posted 9/8/2015 3:46 PM (GMT 0)
Wow coconut. Names are so close even I'm confused lol

Thanks to everyone that responded.

Pirouette:

I tried LDN for pain and have minimally good results. I still have some at home. I'll bring this up at my next LLMD appointment to get the Dr's blessing. Thanks.

Girlie :

Thanks for the response. It is a difficult thing to have won back my nights from babs only to have them go nuts again. She still wants me in bed with her, but her job involves driving a few hundred miles a day as a courier. After she had a few difficult days driving and staying awake, it was kind of a given that we make some changes. Going on two years of ABX treatment (or somewhere close lol) and babs has been my one really big victory. I hate to think of more big symptoms just starting now. We'll make due with whatever the lord sends our way.

Summersun:

Absolutely. I am still very optimistic, and thank you for putting it into a temporary perspective. It's been a very long temporary but I still feel like I'm making slow progress. No doubt this too will pass.

Lymeinthecoconut:

Appreciate your reply. Yeah, the sleeping pills are giving me at best 4 hours now. Slowly they seem to be getting less and less effective. I've tried amytriptalene, trazadone, doxi-pin, Valium, zanax, and probably several more I cant remember now. Over the weekend, I had a few daysa where my brain wouldnt shut down no matter what I took. I just hope this isn't the start of Babs coming back. No night sweats and only a few bad dreams. Not much air hunger anymore. Still keeping that one as a won victory until I get worse lol. My Doc is pretty on top of things with parasites. I'll bring it up again just to be sure he doesnt want to pursue this possibility deeper.

Trav:

I do jerk when I'm asleep and when I'm awake. It's just not as big of a deal for others when I'm awake. Gets me some funny looks at times but I can handle that lol. As always, greatly appreciate your input!!

Thanks everyone. I havent been here too much lately. Been doing my best to ignore Lyme and I know thats wrong. I'll pop in more often. Looks like there are lots of new folks to meet. Many new names popping up.

Lymeinthecuckoonut
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