Tinnitus Anyone?

Yes, I've got it. I'll have had it for about 3 years, this Christmas. It was all I could think about, when it first appeared. It consumed me. But, over time, I've gotten used to it, in some ways. Though, I feel like that's partially due to the the possibility of it having lessened in intensity quite a bit, compared to the beginning.

It's been awhile, but I seem to remember it being much louder. Also, I had a lot of pains, burning in my ears before, during, and a bit after, which, I'm guessing, was due to the infection taking root.

But, yeah, it seems to be one of the common symptoms, and, yes, for most, it never leaves, at least I don't think.

Treatment might get rid of it, or at least alleviate it, yeah. Though, it's hard to say, as it all depends - the person, the infection(s), the length of infection, the severity. Sometimes, the damage has been done, and people bear the scars for life. I'm sure there are a few here, or were here, considering they don't frequent the forum as much anymore, that have healed, yet could still speak on some symptoms post-Lyme.

This stuff's really hard on us.

Hopefully, that won't be the case for you. Tell yourself it won't be, and, for now, just focus on healing.

I'm hoping that you can get the treatment you need, knock your particular infection(s) out of the park.

Good luck.

Post Edited (Antonio192X) : 9/8/2015 6:14:05 PM (GMT-6)

I get tinnitus from the antibiotics but I never had it until I started taking the antibiotics. It goes away whenever I stop them but it's scary because it gets loud sometimes. No real input here lol just letting you know that some antibiotics are known to cause it so I'd try to stay away from those ones if you can. You can look up "ototoxic medications" on google and there's lots of info about what meds to avoid.

I've heard of it going away with treatment if it is indeed a symptom of your lyme and not from something else (ie noise).

Was yours constant or intermittent? Mine is constant, although I'm able to block it out usually during the day when I keep myself busy.

I do, but it is not real loud. It's like white noise. I think it started when I went back on treatment. I'm not willing to say it's the antibiotics. The drugs and supplements may have stirred everything up!

Interesting msHippo. Does anyone get ear pain? I do. When I first started in the sauna the pain would increase. I think it was a herx. But I haven't heard of anyone getting ear pain.

I've had tinnitus since 2004, when I first started getting severe vertigo-caused by inner ear crystals bein dispursed. My tinnitus comes-n-goes in severity and abx has made no diff. But now, it's mostly just mild-don't notice it much anymore.

From what I've researched, there's many different causes for tinnitus. For example, a friend of mine's hubby has had inner ear infections for years, and now has menieres disease and his biggest complaint is loud constant ear noises.

Yup. Have had constantly since my symptoms started. It never goes away. It's not loud but can be bothersome. I was told by an ENT that it will go away, but it hasn't.

B777, I have the sam exact flashing sensation, usually it feels like a very fast airplane just flew through my head, don't know how else to describe it, it lasts a couple of seconds and usually occurs when I'm trying to fall asleep. Weird. It took me awhile to even connect that with my tinnitus

Hi Jojony and b777' I can totally relate to the electrical current running through my brain, scalp and inside my brain. I deal with chronic true vertigo as well. My electrical feeling was in the beginning of
the vertigo onset, lasted awhile, rarely happens now. It was like a wave of electricity. I've never met anyone else who knows this feeling.

I hate this symptom. I've had it for several years now, well before starting ABX and mine seems to just always be there. Sometimes when it gets really loud, I get the sensation my ears are really hot.

I ran a recording studio before getting sick so this symptom has taken quite a bit of joy from my life. This coupled with sound sensitivity pretty much make it so I don't even have the radio on when I drive, let alone the ability to sit and mix down multitracks. I really miss music.

My LLMD is hopeful that the noise sensitivity and tinnitus will revert to some degree. My Lyme Literate Psychiatrist has some meds that are known to help reduce/remove ringing of the ears, but evidently, they are pretty heavy duty and he only wanted to use them as a last resort. I'll probably give them a go to see if the tradeoff of taking the medication is worth the reduction in ringing if all else fails, but for now, I trudge on.

I have spoken to quite a few people that have told me that the ringing subsides. I hope it does for you all.

I've had tinnitus for at least 10 years, maybe longer. I doubt it will ever go away, but I sure hope it doesn't worsen. Right now, it's constant white noise, like summer night sounds. It doesn't interfere with anything. I also have ear pain that comes and goes. I believe it is a nerve issue because I have eye pain also. Thinking of seeing a neuro, but finding a lyme literate neuro requires some traveling ... and then what? A bazillion tests, a diagnosis to tell me pretty much what I already know.