HealingWell
Search Close Search
☰

Bad rash all over body , Alot of pain

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/19/2015 5:51 AM (GMT 0)
Yeast has gone systemic again and I'm in a lot of pain . Having hard time even being on computer .I'm scared I'm going to die. doctor thinks I may have c diff on top of yeast infection. I'm not doing well and need someone to talk to .We are out of money and I really don't know what to do . My husband still not taking this seriously he thinks I'll be fine since I've been sick so long . I keep telling him I'm worse but he doesn't get it.

I don't Know where to go from here. I'm desperate for help. I feel so alone . I beg husband for help and he goes in his room and closes the door said he doesn't want to hear me anymore I'm just crazy and this is all in my head. He said If I'm going to die I should just do it already and save him some money.Can't stop crying don't want to die like this all alone .
Posted 9/19/2015 6:14 AM (GMT 0)
Ginger-You are not crazy. You know that. I'm so sorry your husband talks to you like that. I'm not judging him but you need to understand that speaking to you like that is verbal abuse and that's tough to handle for a person who is healthy and strong. I can only imagine that it's devastating when you are so ill. I'm going to assume it's the disease that he feels so negative about, not you. The disease has taken you away and like many people he is confusing the two. You are still incredibly worthy.

Traveler has links to loads of financial aides in the New to Lyme Section.

I don't have Yeast or c diff but I can post links to other recent posts about them for you. Regarding the rash, do you have any form of antihistamine at home? If you do try taking that to get some relief from the rash tonight. I'll post an additional post with links.

You hang in there. You can email me. I'm on the West Coast and will be up for another hour.
Janet
Posted 9/19/2015 6:30 AM (GMT 0)
www.lymediseaseblog.com/jarisch-herxheimer-reaction-lyme-disease/
Any rashes present before drug treatment can get worse.

what are you doing for yeast and probiotics?

I know there expansive that's why I'm asking.
Posted 9/19/2015 7:53 AM (GMT 0)
Ginger - I am so sorry you are in so much pain and feeling alone. Your husband just doesn't get it....I am so sorry!
Is there anyone you can call tomorrow to talk to - any family members...friends....do you belong to a church?


Please know we are here for support - have you looked into the Financial aide that Janet suggested?
Posted 9/19/2015 8:46 AM (GMT 0)
Ginger, sending hugs. I am so sorry to hear you are in such a rotten place.

My OH has finally cottoned on, which I am oh, so grateful for, but believe me I know how difficult it is when someone you really need for support simply can't see it or can't cope with it.

It IS the disease they can't cope with, NOT you.

You are NOT alone. You never will be. Please, please remember everyone here is here for you.

Don't bang your head off of a wall trying to wrap your head around his feelings at the moment. Its not possible, especially with how YOU are feeling right now. You need to turn your focus to helping yourself first and not get despondent with reactions of others you cannot control.

I know this sounds 'easier said than done'. I just went through it with my mum. You WILL get through it. We won't let you not.

If you ever need to please, please send me an email. I may not be as good as others here at advice but I totally get how you feel and I am always all ears. Can't type it out (nope, neither could I) I am also on skype. Do not hesitate.

More hugs, just because xx
Posted 9/19/2015 9:03 AM (GMT 0)
Thank you all so much for your replies. This illness is impossible for me to handle Every time I think I'm turning a corner I just get worse. Went six weeks without yeast problems Thought I finally got it .but now it's back with what I think is a combination babs and bart flair . Feet hurt bad Hands swollen Face swollen rashes , ones I never had before .Defiantly bart on my stomach look like stretch marks and more pop up today. A couple of days ago I had little red mosquito bite looking rashes on legs . that were not itchy and went away in a couple of days. everyday it is something new. night sweats, fevers ,freezing cold hands and feet. 10 years like this and years of saller symptoms since I was in My early 20's now I'm 50 and sicker than ever. It gets so hard to cope with all this especially when you have no friends or family to help .Only people I see are Husband and 28 year old daughter and they are not home often and my husband barely believes I'm sick. No other friends Or family to talk to . I don't come her to often because I am always depressed and hate to bring everyone else down when they are coping with their own illness.
Posted 9/19/2015 12:37 PM (GMT 0)
You do NOT bring everyone else down, Ginger, never think that. You do need to sound off not let it eat away at you.

My only contacts are my husband and my mother (she doesn't live here though, and its oh so much more difficult over the phone).

At the very least come here, sound off, rant and most importantly know that we do know how you feel.

Your symptoms are enough to deal with, hell more than enough!! without the stress of trying to keep it all bottled up. That will only make you feel worse. You don't need that.

My offer is ALWAYS open. I do know how it feels. I totally the feeling of hopelessness and despair, but it doesn't have to be that way.

You don't have to beat this alone. We will all beat this together xxx
Posted 9/19/2015 2:35 PM (GMT 0)
Hi Ginger,

I divorced my 2nd husband because when I was sick with lyme all he did was yell at me (nope, he didn't get it).. The stress I had was over the roof!!

You can always e-mail me because I been though what you are going through now...

Hang in there okay? We are here for you!!

Big hugs,
Denise
Posted 9/19/2015 3:21 PM (GMT 0)
I care too!

Annette
Posted 9/19/2015 5:44 PM (GMT 0)
Ginger you could look into this.

www.healingwell.com/community/default.aspx?f=30&m=3121795
Posted 9/19/2015 11:00 PM (GMT 0)
Please don't feel hopeless Ginger. I don't know if you are a faithful person but when I was feeling
very low reading the scriptures gave me such serenity and strength I never knew I had. Maybe this can get you througth a tough patch.

God Bless and get well!
Posted 9/20/2015 12:49 AM (GMT 0)
Thank you all for your support .This is all so hard to figure out and I'm not very good at any of this stuff .I can't handle being sick at all I hate that I can't take care of myself and my home. It all cost so much money and I don't seem to be able to tell If any of this is helping . Can't tell if it is a flair ,herx , symptoms getting worse, I can't tell what is causing symptoms ,Yeast, Lyme, Babs, Bart, Mycoplasma. The doctor was sure it was the yeast but after treating for 2 years and all the bacterial infections showing up ,having had a tick bite years ago without treatment, and symptoms, they moved on to Lyme. I know he Is an ID doctor but he has done every test you guys talk about except Igenex. Idid get Elsia And western blot with a couple of lines. They have tried many Abx but I can't seem to tolerate any of them. That is why I went to herbals. Just don't seem to be getting any where with any of this and money is gone. don't know If we will be able to keep up with all the supplements much longer.

I do detox, 2 foot baths a day , Lemon water, detox tea, some dry brushing, and stay on diet pretty well . I take probiotics vsl3 And florester some times I've tried others. Basically doing Bruhners protocol and Have been tested for MTHFR and am taking Methyl B12 and Folate. Do not Know what else to do. I take Nystatin Powder And Candex ,Molybdunum, yucca, Nac ,and Gluthione, ALA, Serreptese, Vitamin D( prescription ) Vitamin E, Calcium ,Magnesium, Potassium, Zinc ,and Selenium ,Turmeric ,and Milk Thistle .

Any other suggestions I'll take them. I try everything I can Come up with money for . We are trying to sell some things to make extra money but can't seem to sell enough to make a difference.
✚ New Topic ✚ Reply