Lyme, Celiac or Gluten Sensitivity?
Lyme - 0.0% - 0 votes
Celiac - 0.0% - 0 votes
Gluten Sensitivity - 25.0% - 1 votes
A combination of 1,2,or 3... please explain - 75.0% - 3 votes
Posted 10/14/2015 7:26 PM (GMT 0)
So I posted this in the celiac section but I wanted to get your opinions also.
So my symptoms started randomly, got a huge wave of "brain fog" one day, honestly feels like yeast in my brain... headaches and what have you. So I honestly need to calm myself down because I keep thinking I have some deadly disease and sometimes it depresses me and gives me anxiety to just keep thinking about this, I don't want to have to worry anymore and just live with it.
So I realized that keeping away from gluten alleviates most if not all of my symptoms of "brain fog" and terrible moods. I don't have joint pain, only some minor pains when I have offending foods. I don't have stomach or intestinal pain at all, or if it is there it is very minimal. My symptoms mostly reside in my brain.
I have to stay away from mainly corn and gluten, and bananas also bother me. I can eat certain candies fine, like reeses and starburst but some reason skittles bother me if I have too many (maybe the dextrin?). I can't tolerate alcohol at all, if I have one beer or one shot within 15 minutes I instantly get into a bad mood, so I cannot drink whatsoever. Literally feels like an allergic reaction in my brain. Again, I have no stomach pains.
I just wanted to know what are the chances that this is lyme, celiac, or gluten sensitivity? I was tested for lyme probably 3 times within the past 8 or so years and all came back negative. Never had the igenex test though. I've also had a brain MRA, not an mri, and it came back normal. I wonder what an mri would show though.
sarahm620
Veteran Member
Joined : Feb 2014
Posts : 1808
Posted 10/14/2015 8:00 PM (GMT 0)
Hi "goingcrazy", it's hard to say based on your symptoms. Can you tell us a little more about your history?
I will tell you, however, that I have chronic Lyme disease that triggered celiac disease/gluten sensitivity. I did not have gluten problems before I got Lyme. Lyme can cause all sorts of immune deficiencies.
If avoiding gluten rids you of most of your symptoms, you probably don't have Lyme.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 10/14/2015 8:01 PM (GMT 0)
Hi Goingcrazy!
Welcome! I'm so glad you chose to join our community!
It would likely be best for you to go through the symptom lists we have in our thread "New to Lyme? Start here!" that sits at the top of the forum. If you go through those with an open mind, you will likely be able to have a reasonable understanding if Lyme or other tick-borne infections are a possibility.
Many of us here are sensitive/allergic to gluten while we carry these infections.
The testing that is done for these infections is very poor. Even the CDC says that diagnosis is made by clinical symptoms. Can you find a couple of your last tests and post the results? All you have to list is any of the bands (the numbers) and if they have a positive (+) or an "IND" beside them. That will hopefully tell us something.
noralove
Regular Member
Joined : Aug 2015
Posts : 46
Posted 10/15/2015 4:11 AM (GMT 0)
From what I have heard and experienced Lymies are often sensistive to gluten. Seems common with many autoimmune diseases. Gluten is so inflammatory to most bodies that when our systems are stressed, we can't seem to take on the extra strain of processing gluten.
On the bright side, having lyme has transformed my diet for the better and I am getting really into cooking and making fermented foods. I eat mostly paleo style and have a mountain of veggies for every meal with protein and lots of good fats-olive, coconut, avocado. No gluten, and very limited grain, bean, dairy or sugar.
Posted 10/19/2015 7:59 PM (GMT 0)
All bands were negative, I had the Elisa and Western Blot. I've also had it multiple times. But still I feel like I can have it because of the lack of reliability on these tests. But still I am not sure that is why I am considering getting an igenex test.