Numbness at night

This is one of my most bothersome symptoms. My stuff started like an attack and consisted of numbness starting in toe and spreading all over, body going numb at night and buzzing in trunk and feet (urinary issues month before this stuff). I have had all this since April 2015. It sounds very much like Small Fiber Neuropathy but the 2 university Neuro's I saw never even mentioned that. They were more interested in doing MRI's for MS. And when that was clear, they dismissed it as anxiety. The numbness at night gets to me. I will wake up with my hands, arms, feet and even my face and neck fully numb. The face stuff is scary. When the blood rushes back it feels cold, not tingly or pins and needles. Does anyone else get this and any idea what causes it? Circulation seems to make sense because it is the side I'm laying on that gets numb. Also, has this resolved for anyone?

Thanks for the reply Sniogra! I was starting to feel like I was the only one!

I did a little research on thick blood and I think you may be on to something. Do you by chance have heavy metals as well? I am thinking this is a combination of things for me. I believe I may have had lyme for awhile, and then we also have well water that is high in Copper, Lead and Uranium. I am high in all those plus cadmium and aluminum. So from what I read those things plus a chronic bacteria can cause increase of fibrin making blood thick. Which makes sense with all the numbness because the blood is not getting to where it needs to go. The first week this all happened I also woke with severe chest pain that radiated up into my jaw. I thought I was having a heart attack! Wouldn't you think that a neurologist would consider this option instead of take some gabapentin and see ya in 6 months?

The only strange thing is that I have very low blood pressure. You would think it would be high with thick blood. But I do have a high pulse.

I am wondering if this is why the antibiotics have caused no response in me. Well, lots to think about and I am hopeful that this may be a piece of the missing puzzle. Thanks again.

Mine started on the right foot. It got a lot better over 2-3 months before I even went on abx. My left leg is the worst (a little weak too) now. My hands get a little funny now and then but not like it was. I'd say I still have about 10% de-sensitized feeling in all of my skin. The nighttime numbness has been consistent.

Is your blood pressure normal? Actually I thought mine was low but after looking at most of my visits it averages 100/70. So I guess that's pretty good. But my pulse is usually in the 90's.

I am going to look more into poor circulation due to thick blood or just some autonomic issue due to lyme. I am also light-headed/lose vision when I stand. But that is something I've had most of my life and seems to come and go. I am also always very cold. I am sure a good integrative doc could put all this together and explain what's going on with my body. I will definitely try one of the enzymes you mentioned - I had made a note awhile back when doing research that nattokinase helps with vessels and serrapeptase with tissues. I will read up on lumbrokinase!

Has it gotten any better ValentineBaby? And what treatment have you done?

I am just thinking this through - say if you have thick blood and take antibiotics. If you don't address the thick blood will the antibiotics get where they need to go to kill the lyme? I have not tried herbs so I am interested in which ones may thin blood.

i had this problem, but only with my arms. i like to sleep on them and they would get entirely numb from my shoulder and including my hands. aweful - i cant imagine my whole body - poor you!! yes, it is lyme affecting the nerves, and anxiety can sure make it worse. i do have a bit of research to do though, because of the blood issues you are mentioning - when i first had this problem, i brought it up on this board, and someone told me about some sort of test that can be done for some sort of blood issue - but i cant remember what it was! i will type in a few key words in my email to see if i can find it!!

I had actually started Japanese Knotwood yesterday (only once a day, starting slow like everyone recommended). Two days ago (before knotwood) I tried a baby aspirin at bedtime to see if that would help. My numbness was actually worse and my face and neck went numb. I know it's early to rule out thick blood, but I am leaning towards poor circulation (possibly a vessel problem). I have a lot of Bartonella type symptoms. Also, I added Bactrim to my Doxy last week so I could be experiencing a worsening of my symptoms due to that. I believe Bactrim hits Bart so I want to ride this one out for awhile to see if it helps.