So scared and down need prayers and encouragement

I am so sorry to hear this. Always remember, everything happens for a reason. Try to find the bright side.

This sounds like a bartonella herx, neuro/cardio.

What have you been diagnosed with?
Taking a detox bath with Epsom salt/peroxide always helps me when I feel worse. Are you able to do this?

You can do this! A better day will always come.

Yep, the 3 b's. Those infections always yield the sickest patients.

Its so hard not being able to do what want to do, it changes our entire outlook on life.

You need to be doing something for detoxing. Its the toxin overload that make us so sick.
Can you try lemon water? 1/2-1 lemon in a glass of water. Grapefruit or lime can be substituted.

Houttuynia and cinchona bark are two very potent and cheap herbs to treat the 3 b's. Cinchona is $7 a bag on amazon, it only takes 1tsp bark to make a cup of tea. I do this once a day.

I hope this helps!

The important thing to remember is anyone can get better or achieve remission. It just takes time!

Traveler was able to get well after decades of being ill, as an example.

I may have been infected since I was a little kid but I am still improving.

Just remember one thing, you don't have to have a doctor to make yourself feel better. While it is best to have someone who has treated our illness time and time again, you can find another way to spend your money.
Go to your library, mine has both Healing Lyme by Buhner and Why cant I get better by Richard Horowitz. That will save you about $30 right there instead of buying the books.
Healing Lyme has a protocol to treat lyme, bart, bab, the whole nine yards. All of the herbs can be found on amazon. If not he even lists sources.
His protocol is super safe and effective. Check it out.

I had to do most of my own treatment because there are no great LLMD'S in my state, and I don't want to travel for ABX that are going to make me feel worse. Herbs wont kill your gut bacteria, Mepron, doxy, azith, all will. Then you have a new problem with digestion, then on top of the ABX you would need probiotics.
The abx are expensive for babesia, especially if you aren't CDC positive, insurance doesn't like paying for that.

I followed part of Buhners protocol in the beginning, eleuthero, cats claw, and andrographis. Made a significant difference. especially because the only thing I had in the past was doxy.
You can find these cheap also.

Always remember, you can be in control and you don't have to spend loads of money to feel better!!

Looks like we you posted while I was typing, LOL

Whenever the supplements didn't work for me I quite, moved on to the next. I would set aside what I was taking, and re-examine my protocol.

I try to aim for herbs that aren't used to often. People are becoming resistant to mepron and malarone for example. So I took things like cinchona bark tea, cryptolepis, andrographis, etc
Nearly everyone does doxy, mepron, or azith at some point, if they worked that well for everyone we wouldn't have chronic lyme like this. Its extremely easy to find someone in the lyme community totally ready to give up on life because they invested so much cash on pills, and didn't get better.

I have a good friend(who helped me find my own lyme DX) who took doxy and mepron per her LLMD and it gave her permanent liver damage, now she cant stand any antibiotic(or even junk food). Her liver just cant handle it.

Maine76 said...
I've never had doxy. I was on 3000mg daily or amoxfor a year and was on Zithromax a month, it helped so mind pretty quick too. After about a month my heart went super whacky and I had to stop it symptoms flooded back after a month of feeling nearly normal and I've been sick since third grade. Tried Zithromax again a few moths later and same thing but this time only got through a week and the arrythmias were severe. It seems my heart can't tolerate abx. I have WHY CANT I GET BETTER, and read buhners book finally a couple of weeks ago, I've had it since 2013. Lol I just don't know where to start and am scared to get worse because I have no help. I realize I will get worse if I do nothing as well.... This is so hard

Yes figuring out the starting point is tough. For me I was negative on all the blood tests so I didn't even know which pathogen needed treating. So I had to look at symptoms and go from there.

You know you have lyme, batonella, and babesia. Your symptoms sound like bart/bab to me.
Cryptolepis-lyme/bab
cinchona-bab, maybe bart
Sida acuta-bart/bab
alchornea-bab/bart
, these may be something worth looking into. Always pick 2, never pick 1, it will leave you open for resistance.

Sounds like the zith was having you herx (?). Can u switch up, get another abx & then continue with Buhner &/or Houttuynia and cinchona that ItisL suggested? (very interesting, btw, as I wasn't familiar with the cinchona). Reading now about cinchona:

http://www.malariajournal.com/content/pdf/1475-2875-10-144.pdf
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC172144/
http://www.herbal-supplement-resource.com/cinchona-bark.html