HealingWell
Search Close Search
☰

Looking for Lyme associated disease doctor in Los Angeles

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/4/2015 6:29 PM (GMT 0)
Hello everyone,

I previously posted about having suspected Lyme disease and received some excellent advice and support. I have just received the results from the igenex test and the conclusion was that the results were inconclusive. I tested positive on one or two bands, but the majority were either negative or neutral. My naturopathic doctor wasn't even sure what to make of the results, and had to consult with the director at Igenex, who said Lyme could not be 100% ruled out. She said most likely I have some other similar infection such as B.Miyomotai (spelling?). So I've been recommended to get further tests from Igenex. Time to empty out the bank account.
Can anyone recommend a doctor who specializes in Lyme and associated diseases?
Thank you in advance.
Florence.
Posted 11/4/2015 8:47 PM (GMT 0)
Hi Florence,

You can contact ILADS for physician recommendations. And hopefully someone else will be able to give you a personal recommendation.

http://ilads.org/ilads_media/physician-referral/
Posted 11/4/2015 9:08 PM (GMT 0)
Hi Florence,
Can you post your results here? We have learned what those results mean and we could at least help you to understand.

I posted this in your other thread, but I wanted to be sure you saw it:
If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.
​

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will see how close I can get to your location.​

You can email the Tick-Borne Disease Alliance at
​[​​url]​[email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.

You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


A hyper link for the ILADS link that Sarah shared:
ilads.org/ilads_media/physician-referral/

​ You will want to find an ILADS trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
http://www.ilads.org/lyme/treatment-guideline.php
Posted 11/5/2015 5:23 AM (GMT 0)
Thank you so much for the helpful advice in this worrisome time. I'm not sure of the best way to post my results on here, they are in pdf form.
Yes I've read a good portion of new to lyme sticky, it's incredibly informative.
I've sent a request to ILADS, so hopefully they get back to me soon. But yes I will definitely email you regarding finding a LLMD.
My results are:

Equivocal IFA result - 40

Negative Igm western blot - indeterminate for bands 31, 39, 83-93. And positive for band 41.

Positive (igenex) and negative (cdc) for IgG western blot - positive for bands 18, 83-93, double positive for band 41and indeterminate for band 31 and 34.

Negative on multiplex PCR test.

Thank you again for all the information.
Posted 11/5/2015 5:39 AM (GMT 0)
In my search for a LLMD in Los Angeles, I received a few names and ended up seeing a really good dr in San Diego. Email me if you would like the names and good luck!!
Posted 11/5/2015 3:39 PM (GMT 0)
Hi Florence,
I have sent you an email, and I would also like to comment on your tests.

here is the site that I use to help interpret them:www.reocities.com/HotSprings/Oasis/6455/western-blot.txt You can go there to find supporting Pubmed articles showing what these bands represent.

An IgM result means that you have an active infection. It once was thought to mean an 'early' infection, but has since been revised. IgG means that the infection is at a later stage.

The more +'s you have beside a number, the stronger the reaction.

IND means indeterminate - not negative, but not quite strong enough to be "fully positive". But it means that you reacted on those bands and should be considered, especially when they are Lyme specific bands.

A "Lyme specific band" means specific for Borrelia Burgdorferi, sensu stricto - Lyme disease in the strictest sense. There is only one on the over 300 known strains of Lyme that is considered Bb, ss. Nothing else will turn a Lyme specific band positive other than Lyme disease.


Bands 18 & 41 (whether in IgM or IgG) are indicative of the tail of the bacteria, which can cross react with other Spirochetal bacteria such as Relapsing Fever, Pintas and Yaws, and Syphilis.

There seems to be some controversy about whether band 31 is Lyme specific or not. After looking into it, I found these articles that support it being Lyme specific. I would question anyone that says that it's not as quote or show them these 5 articles, and tell them there are more articles that support Band 31 as being Lyme specific as well:

www.ncbi.nlm.nih.gov/pubmed/1520966


www.ncbi.nlm.nih.gov/pubmed/9440203


www.ncbi.nlm.nih.gov/pubmed/8406878


www.ncbi.nlm.nih.gov/pubmed/8005219


www.ncbi.nlm.nih.gov/pubmed/10030131


And more references can be found here:
www.reocities.com/HotSprings/Oasis/6455/western-blot.txt

So, Band 31 indicates OspA (Outer Surface Protein "A") and is Lyme specific.

Band 34 indicates OspB (Outer Surface Protein "B") and is Lyme specific.

Band 39 indicates BmpA (Bacterial Membrane Protein "A") and is Lyme specific.

Band 83 is a high molecular mass protein that is Lyme specific as well.

Band 93 is an immunodominant protoplasmic cylinder antigen - that is Lyme specific.

As you can see, you have a whole lot of Lyme specific bands that you have tested positive for. There quite simply is no way that you don't have Lyme disease - no matter how those tests are interpreted by others. There are research articles that prove that each of those bands are Lyme specific - meaning the only way to have them show up positive on a test is by having that one specific strain of bacteria in your blood. You really need to find a doctor that understands this if they are going to be capable of helping you to heal.

Be sure to ask a ton of questions when you start making phone calls about getting an appt with a LLMD. You want one that will recognize not only are your tests showing that you have Lyme, but understand as much about these infections as possible. I included a few questions that you can ask in the email I sent.

Let us know how we can be of help to you!!
✚ New Topic ✚ Reply