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Need help reading western blot test. Is it positive for Lyme?

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Posted 11/13/2015 4:44 PM (GMT 0)
I got an igenex western blot test from an LLMD at the beginning of last year and he said my test was positive for Lyme. But on Wednesday I saw a functional neurologist who looked at my western blot test and he said something like it isn't a positive test result and it doesn't sound like I have Lyme.

The test results look like this:
IGENEX IGM RESULT POSITIVE
CDC/NYS RESULT POSITIVE
18 KDa -
**23-25 KDa +
28 KDa -
30 KDa -
**31 KDa -
**34 KDa -
**39 KDa ++
**41 KDa +++
45 KDa -
58 KDa ++
66 KDa -
**83-93 KDa -


IGENEX-IGG-RESULT IND
CDC/NYS RESULT NEGATIVE
18 KDa -
**23-25 KDa -
28 KDa -
30 KDa -
**31 KDa +
**34 KDa -
**39 KDa IND
**41 KDa ++
45 KDa -
58 KDa -
66 KDa -
**83-93 KDa -


Can anyone read my test result and tell me if it is for sure positive or not?

Thank you :)


Side note: The functional neurologist thinks it may be the epstein-barr virus causing my problems. But that doesn't make sense to me because my symptoms started 11 years ago but I did not get mono until 7 years ago.
Posted 11/13/2015 4:49 PM (GMT 0)
This is definitely a positive test result. It says so. The neurologist is wrong. You need a LLMD.

IGENEX IGM RESULT POSITIVE
CDC/NYS RESULT POSITIVE
Posted 11/13/2015 5:04 PM (GMT 0)
That's what I thought too. So I just don't understand why this doctor would say that I don't have Lyme.

I only got tested once. Should I get tested again? Should I get tested again with a different lab?
Posted 11/13/2015 5:16 PM (GMT 0)
No, no need to re-test. The results are CDC positive. If you re-test and get a negative result. Insurance could hold that against you and deny coverage.

Most Neuro's and Rhymie's don't acknowledge Lyme at all. Run away.
Posted 11/13/2015 5:39 PM (GMT 0)
"So I just don't understand why this doctor would say that I don't have Lyme."

Because most doctors don't know how to read Lyme tests. You don't need to retest if you never treated.
Posted 11/13/2015 5:44 PM (GMT 0)
Definitely positive for lyme. There can be NO false positives so do not let anyone feed you that line either.

I went to a neurologist and he told me "you don't have lyme because with lyme you don't get a headache."

There aren't many docs out that that KNOW lyme and its symptoms.
Posted 11/13/2015 5:47 PM (GMT 0)
Yup - CDC positive.

I'm wondering if he's saying it's not positive because - if you've had symptoms for a long time (don't know if that's the case with you) - the Dr.'s (non-LLMD's) - say that the IgM should convert to IgG.

But, LLMD's know that isn't often the case. I had postive IgM and i was over a year with symptoms.
Posted 11/13/2015 6:13 PM (GMT 0)
Also yellow daisy (I love this name btw) it is the symptoms that also define a lyme disease diagnosis.
Posted 11/13/2015 6:29 PM (GMT 0)
Sorry I wasn't clear, a functional neurologist isn't actually a neurologist, it is a chiropractor. And he has Lyme patients and is part of their Lyme treatment, so he does know about Lyme and has helped people with Lyme get better.

Yeah I'm not going back to him. For a lot of reasons, actually.

Thank you for all the replies :)
Posted 11/13/2015 6:31 PM (GMT 0)
Yeah my LLMD said that even if the test came back negative he still would diagnose me as having Lyme since I sound so much like I have Lyme. That's why it made no sense to me when this guy told me 2 days ago that I don't have Lyme.
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