Hello,
long story relatively short.
I was bit at 5 years of age by a tick, got really sick with Lyme disease at 39 years(maybe got bit in-between or got it by mosquitos I do not know) .Got treated for 9 months with combination Abx. and herbs, finally HBOT.Got to approx. 90%.Declared in remission.Did some herbs inconsistently and got 2 colds in the meantime, started to relapse.At this point I was 70-80% functional.Symptoms:chills, air hunger, stiff calf muscles, trouble seeing/hearing for short periods of time.No sick feeling really.
Restarted a combo of Abx. and herbs that were the most successful ones previously(Azit.+Mino.+Artemisin, having to add probably Rif.later).After approx. 10 days I got a cold that did manifest itself in shivers and a sore throat, nothing very important and in 4 days I was bedridden.This happened at the beginning of may.I will expose you all the weird symptoms that I got since then, in spite of doing Abx. treatment, detoxing, having a break, now starting again because of severity of symptoms.
-extreme exhaustion(last year I was tired but I could work, get out with my daughter, shop, cook, etc. nothing to compare with this,now practically housebound but force myself to work 5 hours per day with many breaks)
-episodes of lack o air and heart aching(this might be babesia).Standing heart rate-117., egg effort test and ultrasound normal.
-very brain fogged, depersonalisation since may, disoriented sometimes.As something very wrong happened to my brain.A lot of anxiety from the infection but also self-inflicted by overthinking.
-When driving by car a long time I get very dizzy spells, foggy and unable to do anything for 1-2 days.Also I get glazed eyes.
-seeing funny probably as part of depersonalization
-extreme insomnia, when this started I slept 1-2 hours/night.Got treatment from psychiatrist and slept until now with Quietapine 12, 5 mg and Xanax 0.5 mg and magnesium.Now gave up Quietapine(it was low dose neurolepticum that acted like antihistaminic at this dose, aka sleeping pill).
-long bones painful spells, sacroiliac painfull spells.
-weight gain and weight loss, losing weight after starting Abx. always, as if oedema diminished.
-extreme pressure and burning headaches with eye aches.
-tried doing 30 min. of sports but lead to postexertional fatigue.
-fantastic malaise, episodes of near dying without actually modified BP or pulse.
Started modified Buhner(not Cowden as mpostelnicu pointed it out) 6 weeks ago, added 3 x 500 mg Azitro/week and 1doxi of 100 mg/day due to extreme herxing.The 7th day I had an 8 hour straight herx, where I stayed alone in my private practice only drinking water and slightly moving around, feeling like dying.It subsided 70% in approx. 20 minutes at the end.Hexing now is not like last year when you could point out sympthoms, it just feels like dying and very weak body.
The fact is I can not understand how I got so sick after getting obviously better first time around.
about
detoxing:dry brushing and epsom baths(daily), drinking water or tea with lemmon(3l/day), NAC,Methylguard and Niacin(the funny thing is after using Niacin for 4 months, now from 50 m I experience flushing of 1/2 body for 1 hour as at the beginning it was only ears and hands)
Milk Thistle, activated charcoal, chlorella.
In childhood I had: anaphylactic shock of unknown cause, then seasonal allergies, sinusitis, bronchitis very frequently.
Question could I have gotten MCAD between last and this year this is why I am this sick?Or just immunity went down and lyme came back more aggressively than before(reflected in cd57 going down from 43 to 16)?
If MCAD is a possibility there is no chance I can find an MD that treats me, at this point I am desperate and I will do it somehow by myself because the clinic in Germany that I will be going to, does not treat it, but will enquire per email).
Thank you very much everybody but especially Traveler for posting some links on it.
