Aramiz - Does it sound like Lyme? Part 2

Traveler My affirmation was sincere, guys dont Get rid of her We need her! ;)

about cilantro, this reaction happened once before but back then wasn't easy to detect it as I was way more symptomatic at that time anyway I'll try again tomorrow

I have a new method discovered today that gave me some relief from my head pressure and headache and I wanna share it with you: you know I have sinusitis which is chronic since beginning of symptoms, I had an acute one few days ago but it's because I have it underlying, I had an idea today thinking about salt and its action additioned with high temperatures, I took a pot with water I made it boil I added lot of gross salt and few drops of tea tree oil then bend around my head a kitchen paper and I breathe the high temp vapors until vapor was gone, I sweated the hell out of my face that was very hot but was very relieving when all was done I was more clear headed it lessened my headache n head pressure, well still have it but maybe high temperatures with salt help to kill bacteria on brain and tea tree oil is good for fungis, I heard that sometime chronic sinusitis is due to a underlying fungi infection, what's your thoughts has anyone tried it before?

Aramiz said...
Traveler My affirmation was sincere, guys dont Get rid of her We need her! ;)

about cilantro, this reaction happened once before but back then wasn't easy to detect it as I was way more symptomatic at that time anyway I'll try again tomorrow

I have a new method discovered today that gave me some relief from my head pressure and headache and I wanna share it with you: you know I have sinusitis which is chronic since beginning of symptoms, I had an acute one few days ago but it's because I have it underlying, I had an idea today thinking about salt and its action additioned with high temperatures, I took a pot with water I made it boil I added lot of gross salt and few drops of tea tree oil then bend around my head a kitchen paper and I breathe the high temp vapors until vapor was gone, I sweated the hell out of my face that was very hot but was very relieving when all was done I was more clear headed it lessened my headache n head pressure, well still have it but maybe high temperatures with salt help to kill bacteria on brain and tea tree oil is good for fungis, I heard that sometime chronic sinusitis is due to a underlying fungi infection, what's your thoughts has anyone tried it before?

YIKES! I bet that cleared up your sinuses! LOL! I use tea tree oil, so I know what it smells like! LOL!

I do agree though that I have read that it can be good for fungal issues, and I've sniffed the bottle to help clear my sinuses when they were really full before.

I accept tips. Anyway I though that's maybe too much, the thing is I don't have diagnosis and I wanna get rid of this curse


For example I think for biofilm buster I'll use only serrapeptase and maybe in future will switch it to Nattokinase who knows

For Metal toxicity I don't think they too much

For nerve regeneration I took the idea from buhner who was suggesting lions mane cordyceps and Chinese skullcap.

Where do you think I'm overdoing?

Post Edited (Aramiz) : 12/28/2015 12:23:58 PM (GMT-7)

Ok got it I'll start with

andrgraphis
Cordyceps
Japanese knotweed
Stephania
Teasel
Chinese skullcap
Lions mane
Cryptolepis

I need a source where to buy them I wanna remind you that I'll need those to be shipped to Italy so I can't afford to pay 2 shipping so I need only 1 source, i don't know if they all better on a powder or tincture, I see buhner suggest different websites for different products. It's just impossible for me

They can't get Stephania it's somehow illegal don't ask me why, also for law dosages are 1/4 than Americans


Or if anybody knows if there is some shop in Europe suggested by buhner, there may be who knows, I'm just afraid to buy a low quality product

Post Edited (Aramiz) : 12/28/2015 3:25:21 PM (GMT-7)

Aramiz, reading through the thread (Thank you Traveler for making it available to the rest of us) I am struck by a couple of things.

As someone else said I think you are taking things too fast. You need to detox otherwise all the money you are paying for testing, herbs, etc are wasted because you really don't know what is helping what. It seems that you are changing things up very quickly and adding new things very quickly.

Jumping from a few drops to 20 on any herb because you don't feel it's helping is only going to put you into a herx. You really need to go slowly and add just a few drops at a time.

It's the same with detox methods. You mentioned sauna. I know I have never been able to tolerate sauna because I feel like I am going to pass out. Some of the members have mentioned they have to start with 2 minutes of sauna at a time.

More is not better. When we are this sick, we want so badly to be well that we jump in quickly and end up doing more harm than good.

Slow down. Only change one thing at a time. Keep records of your symptoms and the treatments you are trying and the dosages. One of the members, rowingmom, has a very good excel spread sheet that she used to track her daughter's progress in treatment and it is awesome. Keeping a record can help you see patterns.

I know you are concerned about treating when you don't have a lab test that says its Lyme, but your symptom list clearly indicates Lyme and Babesia (in my opinion, but I could be wrong) and probably Bartonella. I did have the Igenex test come back positive for Lyme (both CDC and Igenex) but long before I had the results. I have yet to have a test come back positive for Bartonella and Babesia but there is no question I am infected with both. I will be treating for both regardless of negative blood tests.

I know what you mean by a cough headache. When I used to get sick with upper resporitory infections and I had a cough, I would get really sharp stabbing pains in my forehead. It was agonizing. Like Traveler (and some other members), I have had symptoms for decades. Many of us who have been sick that long no longer get colds probably because Lyme takes over the immune system. Early on I had chronic sinusitus.

This is definitely not a psychiatric problem. It is very hard for our families to understand what we are feeling because we look fine. There is a website about what is called the "spoon theory" that does a good job at describing what it is like to have this kind of illness. The author describes starting the day with a set number of spoons. For each thing we do, we have to give away a spoon and when we run out of spoons we are done for the day. This includes the energy it takes to be sick and fight our illness. Someone else may have the link to the site and you might find info in there to help your family understand.

If I recall correctly, there are several members on the forum in Europe and I believe there is a good LLMD in Germany. It depends where you are in Italy, but with the train system you may be able to travel there to get good care.

That is if you feel the need to be treated by a LLMD. As Traveler said there is enough information out there to treat yourself herbally. She is the perfect example, but not the only one, of a person who got well using just herbs. You have said that your tests have come back negative, but only positive tests are relevant. False negatives are common.

Two other things.

One thing that hasn't been discussed is genetic testing. 23andme is a company in the US that will take a saliva sample and give you back a file of data that can be run through some data interpreters that will tell you what mutations you might have. I have been having trouble and after running my data through the tool on the MTHFR Support website (mthfrsupport.weebly.com) found that I have mutations that block my detox pathways. It is helpful because now I can work on the detox then start treating Lyme&Co.

The other thing that someone else mentioned was Candida which can show as the white coating on your tongue. You might want to search "Lyme Pirouette Nystatin" to see discussions about treatment for Candida. Pirouette is the expert on the forum. She is not currently posting due to her own health, but there is a lot of info already on the forum. One thing I have to add is that Pirouette sent me a link to a source in Canada that does not need a prescription. I don't know if they ship internationally, but I would be happy to send you the link just email me.

There is so much info here that it is easy to become overwhelmed. That's why I say step back and take a deep breath. Make changes slowly.

Have a good day,
Kim

Aramiz

I'm very sorry for not responding sooner. The holidays were a very hectic time for me and I'm also really busy with year-end stuff at work.

Ironically, I realized I typed a response earlier but didn't post it - probably because I wanted to review more. I saw my attempted post in an open window on my laptop but deleted it for some reason.

Others have come along and given you more great advice and I will not repeat it but, instead, ask that you consider it.

As far as Cowden is concerned, I think you recognize that you're taking 3 herbs out of a protocol that includes many, many more.

I didn't respond to every herb in the Cowden protocol, either and Mora was one of them (Mora is used to treat Babesia). I did herx with Babesia symptoms on Enula, though.

Just as some antibiotics work for some people and not others, some herbs work for some people and not others.

Samento is actually TOA-free Cat's Claw and Buhner finds fault with the study that claims TOA-free is better (and the study was funded by the manufacturer of Samento). Still, Samento is effective for many but, not always.

Without a doubt, it's appropriate to start one herb at a time at a very low dose and wait a few days to gauge response. Then you could add a second herb at a very low dose and wait a bit.

Since herbs are synergistic (they enhance the actions of each other), getting the entire protocol going at low doses provides maximum benefit.

I am taking easily 20 different herbs in tincture form along with capsules of other herbs (the latter I'd been taking since I was on antibiotics). I started Buhner's Lyme, Babesia and Bartonella protocols in August and I remember commenting that it might be Christmas before I got up to full doses.

Well, I was only up to 8 drops each 3x daily of the Babesia and Bartonella herbs earlier this month (previous attempts at increasing resulted in herxes that impacted my life too much). Somehow, I was able to quickly increase from that point forwardand got up to full doses (1/4 - 1/2 tsp of each 3 x daily) by mid-month....and that happened because improvements started to come quickly at that point.

Buhner emphasizes listening to your body. We can't throw the kitchen sink at ourselves but, instead, slowly introduce new things and see how our bodies respond.

Even though many have suffered needlessly for years with these infections, this doesn't mean they can now race to the finish line of healing.

Treating these infections is a marathon, not a race. Improvements come slowly and erratically.

Buhner has a Facebook page - perhaps you could post a question asking for a European source for herbs. Or, try contacting the US-based sources listed on his Facebook page to see if they ship internationally.

Best wishes to you moving forward!!

I need to write, feeling suicidal today, after the Ccsvi procedure I'm always sick, I stopped antibiotics for sinusitis n flu 2 days ago and now I have 39c fever intense head pain n pressure on the back, before never had it a lot of throat pain umbearable tinnitus eye pain the usual tinglings and twitching along with many things extreme weakness bone pain ect, I ve just lost any confidence with my body, don't feel like human being anymore, don't really know what I have I doubt anything, not sure anymore what's up with me, it's a persecution a costant suffering, sorry for my exaggerations, just wondering whether fighting is really worth it anymore, I'm alone my family dissmisses me as I'm just complaining for them. The only thing that my doctor tells me is not to worry, my blood works come back clean and I feel just like I'm dying in a real stupid way with no real sense, it looks all meaningless

I think it has actually lowered na immune system but I'm more afraid I be taken some weird virus of bacteria which is resistant , I'm taking antibiotics again amoxicillin, no pain med seem to work as usual, since I ve done Ccsvi I notice also that sometime I get pulsating tinnitus which I never had on top of my costant unbearable ones, I m using cowden tight now not buhners, in so sick I can't do nothing to detox Burbur pinella n parsley don't seem do the job

I just noticed I have plaques on my throat just like when I was a kid

Most of us don't have the same pattern to our symptoms, some will match up with other from time to time, but it's very rare to find someone with the same time line as yours.

You mentioned plaque in your throat - do you mean tonsilloliths (tonsil-stones)? I've had lots of those before, many people get them, especially if they are chronically ill:

www.ehow.com/about_4728114_plaque-buildup-throat-possible.html

I don't usually use the site above, but I like the way they explain it, and it's still accurate.

It sounds like Neuro Lyme and Bart symptoms is what you started out with though.

I don't remember how they progressed the first time - I was only 7 yrs old. But on my reinfection, I got hit with the neuro symptoms first, then the muscular symptoms set in. I was untreated for about 3 months by the time I got over the shock and disbelief and got my herbs ordered and delivered, treated for 5 months and was done.

Yep, I hated that feeling that I was constantly wearing a hat - especially since I hadn't worn a hat in years! LOL! There is no set way that Lyme symptoms 'come on' for a person - they like the weak points in the body first though.

As for tonsil stones, I used to remove my own. Kind of gross, but it was better than leaving them there!! Here is a video of getting a 'softer' one out - mine were usually much harder and remained quite solid until I got them out - just like a small stone. Once out, I could squish them, but the smell horrid! LOL!

/youtu.be/vhQID9J6Slk

And congratulations on getting in to see the LLMD there!! Please do let us know what you think of them!