New symptom after 22 month illness?

I just discovered I have bakers cysts behind both knees. And, my lightheadedness/ low blood pressure has become more problematic.

I've been sick since May 2014. Began with severe often debilitating headache as my primary symptom, along with fatigue, insomnia, tmj, neck/shoulder constriction. Then in January 2015, muscle pain had developed, then joint pain, dysautomia, fibro etc.

In April 2015, I was clinically diagnosed with Lyme/ MSIDS by 2 different doctors. I've been treating my illness with several different doctors/practitioners on my team. I AM better overall than I was a year ago and I have been able to be more active, so that my current function level is around 40-50% of normal.

I have accepted the ebb and flow of my symptoms, but I am resisting the idea of having any NEW symptoms at this point. (In 7th month of antibiotics after 3 months of cowden protocol)

My doctor's response was that developing new symptoms is "not unexpected".

What do you guys think? It's hard to stay positive and hopeful for recovery.

Have you found endochronologists or rheumatologists to be helpful?

I agree with Sarah. Don't go to another doctor unless they are educated about these infections - otherwise they will have you chasing your tail and doing unnecessary treatments.

For the sake of the argument, let's say Lyme, Bart and Babs are being treated for. We often find that as Lyme bacteria (or pick on of the infections) are lowered by treatments, it allows the Bart and Babs bacteria to "come to the front" with their symptoms. This is why so many people treat more than one infection at a time, and they can treat for, say Lyme, then Babs, then Bart, then back to Lyme or whichever infection seems to be back on top again.

New symptoms can pop up at any time during the healing process, and it doesn't have to be tied to a herx or relapse.

Treating these infections is like peeling an onion - there are "layers" that get uncovered and you have to take things as they come. It's not easy having new symptoms pop up like that, but think of it as finding evidence of your treatments working (because they are) and that they are uncovering more infections so you can treat them effectively as well.

Lisa - just wanted to tell you that I got a Baker cyst on the back of my right knee - after almost a year after treatment started.
It was painful, but now a few months later, the pain has subsided. I still can feel a bit of swelling when I feel it with my hand.