Running out of Lyme

Yes. I wish it wasn't. I'm actually quite embarrassed to admit it, but the fights that my hubby and I had were horrible at times. I was usually the one to start them because I *thought* he was mad at me. That's all it would take. Or I *thought* he should have done this, or that or whatever. I was just mad and didn't realize how much it was coloring my world. I'm a completely different person now, and I'm glad. When I started on here as a Mod, it was the greatest challenge I had ever faced - I was still infected and had not had successful treatment yet. Controlling my mood became my biggest challenge. Some days I couldn't post but the most simple sentences because I was concerned I'd loose my cool on here - and I have a few times. Assuming the worst when there was no cause to - and again, I'm embarrassed to admit these things, because they are NOT who I really am.

I love to help people. That's why I've been on this forum for 9 years. I healed in 2012, and thought about leaving, but I was the only Mod and realized that I couldn't walk away when so many need help, a few ideas to get them past the rut they are in, a few encouraging words, or an introduction to how to live with Lyme or to start a treatment or whatever I can help with. It was as if I had an "evil twin" that took over my body while I had those infections.

In an ILADS brochure www.ilads.org/lyme/lyme-brochure-psych-2014.pdf
it says:

WHEN SHOULD A PSYCHIATRIST
SUSPECT LYME & TICK BORNE DISEASE?

The most common symptoms of chronic tick borne infection
are musculoskeletal and neurological.

Specifically:
• Fatigue, which can be mild or severe

•Muscle pains feel like the flu

• Muscle cramps and twitching are common

•Joint pains are often migratory, typically involving
larger joints, with occasional swelling

•Sleep disorders can be severe

•Headaches can be migrainous, global or local

•Neuropathies include the cranial nerves such as Bell’s Palsy, and peripheral nerves with numbness
and paresthesias as well as sharp, shooting or stabbing pains

•Mood and cognitive disorders are often the presenting complaint.


There are more severe neurological symptoms or disorders
associated with late-stage tick-borne infection:

•Progressive dementias

•Seizure disorders

•Strokes

•Motor neuron disease, similar to ALS

•Gullain-Barre-like syndrome

•Multiple sclerosis-like syndrome

•Other extrapyramidal disorders

•Visual disturbances or loss



Here are some articles that may be of help to you:

www.igenex.com/psychological_effects.htm


www.mentalhealthandillness.com/tnaold.html


www.publichealthalert.org/lyme--marriage-marriages-that-are-way-out-of-lyme.html

Yes it is close to psycotic. ..you are a good man ...watch justin and cristie you tube and under our skin on hulu with her...you can get iv silver? ,mms maybe dangerouw idk there is bvt ,rife and herbs galore ...llmd will do abx ..oral iv or injection ..there is hbot and mhbot..some even do h202 and hcl and ozone iv...also 23 and me then mthfr will help with genitcs..keto diet or wahls protocal may help..watch for candida... get ready for crash course in functional medicine. Id say iodine theanine and some holy basil then something for pain ..and there is no easy fix . If you find it let us know

I know exactly how you feel Overwhelmed and I have been where you are now.
I dont have lyme as far as I know and for a non sufferer its very hard to understand just what our partners are going through. I used to lie about my work hours sometimes because I couldnt face going home to it. I was beaten by her twice and thrown out of our marital home on several occasions. In my youth I enjoyed boxing, karate, rugby and yet the first black eye I ever had In my life my 5`2`` wife gave me on new years day.

You cant help but develop very negative thoughts towards your partner when this kind of thing is happening, and you feel like you are doing your very best for them. I work hard and I was spending every waking hour of my days off work listening to her. Sometimes it would take me ten minutes to think of a suitable response in conversations so she didnt go crazy at me again. God help me if I fell asleep.
One time I went home and she had written her rantings all over the drywalls of our house (luckily inside).

By coming to this forum you have found a way to get your wife and your life back. These good people will give you the information you need to enable you both to have your lives back. Listen to them and dont trust the medical profession too much. They know next to nothing about lyme and will just tell you your wife is nuts.

You are a hero and dont forget it.

I made sure that our friends knew what the reality was and I was lucky they were as understanding as they could be. At one point my wife had turned against them all, her mother and anyone else who could have helped. Many times it seemed to me that the lyme was controlling her and it wanted us all to **** off so it could finish her off in peace with no distractions. It was like God Emperor of Dune where Moneo is always ready for Leto to loose the plot and become `the worm`.

You hang in there buddy.
If you need to talk to some more I can get me Email to you.
I just used to say to my wife that I knew she hated me and that I loved her and that I understood if she thought our marriage was over (etc). BUT I would be there for her until she recovered and then I would respect her wishes.

Sometimes if I work shifts back to back and dont sleep for at least 48hours. Helped a little to understand what its like for them. You know when your so tired that even turning on the TV is a massive effort. Imagine having flu(i.e all the physical symptoms of lyme and they are many) aswell and NOT being depressed, suicidal, unable to reason.

My wife is Sillysheep btw.

My best wishes to you in your struggle, you will win !

The best from both of us !

PeteZa said...
Mr. Sillysheep, you are awesome to come here and give your view. Thank you for doing this for others. <3

Ditto!

It's clear silly sheep is worth the effort and I'm very happy for both of you that she's doing so much better. I have no doubts that your support helped immensely.

Dear Overwhelmed,
I am so sorry that you are dealing with this. You are an amazing person, please hang in there.

I have been dealing with Lyme undiagnosed for probably 30 years and also went through years of premenopause in my 40s and am finally in menopause now.

I suffered this Lyme rage and still do occasionally. This was accompanied by extreme anxiety which had never been a problem for me before.

It is probably one of the worst parts of the disease for me because I felt so out of control and so unlike myself.

I have always been an extremely patient person and these rages just took over. And the anxiety would just hit me out of nowhere.

I could just be laying on the couch reading a book not thinking about anything and all of a sudden my body would flood with anxiety, like you would feel if you had just narrowly missed being in a car accident. It was awful.

I have been able to almost stop these with treatment for hormones and not just female hormones and sex hormones but addressing my adrenals. The adrenals required adrenal support supplements but the key for me is Cortisol.

Apparently Lyme disease can be very hard on the endocrine system and this can affect anxiety and rage.

I went to an endocrinologist first and he ran standard blood tests for adrenals and the results were on the absolute bottom of the "acceptable" range but because they were in range all he cared to offer was an anti depressant. That was it and he sent me on my way.

I then found a hormone specialist. He saw that even though my tests showed I was in range, the fact that I was on the low end meant I had room for improvement.

He did more thorough testing also and I am now on bio identical hormones. But the key was addressing the adrenals which is the stress hormone.

It took a while because he wanted to start me off on the cortisol slowly. It took about a year with slow improvement until the anxiety stopped and the rages were pretty much non existent. A few months later I was able to wean off the cortisol. He told me at the beginning it would take about 15 months and he was spot on.

I have since had some major stress in my life and my adrenals have taken a hit. The rage was back and I started up on a low dose of cortisol. I honestly can feel the cortisol when I take in, it just calms me down and I can handle stress so much better.

I am still fighting Lyme disease but I feel that this dr saved my life. I do not believe I could have continued to live the way I was for much longer.

I am not supposed to post dr names here but I would recommend a dr who specializes in hormones as their main practice and specifically bio identical hormones. Not easy to find but in my experience some gynecologists and other Drs will prescribe hormones without the specialized knowledge and testing required to do it safely and correctly.

My dr does not take insurance and the first visit testing is expensive but after that the cost is more reasonable. He is similar to LLMDs in his thinking outside the mainstream medical community and is very knowledgeable about hormones and tries to use supplements and bio identicals whenever necessary.

Just FYI, my insurance does reimburse me at like 60% when I submit his bills as an out of network provider.

He also spends an hour with me every time I see him. He is the best dr I ever had and although he does not treat Lyme disease he believes it is real and collaborates with me on my treatment plan.

I have an LLMD that would treat me with hormones and believes it is a big part of beating Lyme but I wouldn't trade my hormone dr for gold.

Best of luck to you and your wife. There is help out there. It sucks that you have to work so hard to find it but don't give up. You are amazingly strong and a very supportive husband. Your wife does not want to be this way, with your love and support perhaps she can find her way back.

Overwhelmed.

I would skip sponagule . Went there with my son for 3 mos. and not only was it expensive but it didn't help. My son returned worse than when he went.

Overwhelmed

I found this old post and it made me think of my sister.

She was very verbally and emotionally abusive to me. So much rage anger hatred and abusive lanfuage day aftee day. Constantly destroying things and all her relationships.

After three months of antibiotics if is 90% gone. We are working on her depression but my old sister is back.

Look into the mycoplasma/bartonella connections. Together they can do this.