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Is this lyme meningitis? Or not a lyme symptom at all? Help!

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Posted 2/29/2016 1:34 AM (GMT 0)
Okay so i started getting head pressure in september with migraines. The migraines have gone but im STILL left with head/eye/face pressure 6 months on. I had an mri and CAT scan in september but they were clear. They decided agaisnt a lumbar puncture. The pressure now is getting worse and now i feel pressure in my ears and feel like my eyes are going to pop out. This is constant 24/7. I have no relief. I also sometimes feel like my left ear has water in it. Very strange. Shall i go back for another mri scan and a lumbar puncture just incase? Does anyone else have this chronic head pressure??
Posted 2/29/2016 1:52 AM (GMT 0)
I did last year. It was scary. The best way to describe how I felt was like I was doing a constant head stand and all the blood rushed to my head. It also felt like a vice was around it.

This was before I was finally diagnosed with Bart, Myco, and possible Lyme and started treatment. Are you on an abx that will break the blood brain barrier so it can get up there and get to work?
Posted 2/29/2016 1:56 AM (GMT 0)
How long did you have it for? Thats exactly how i feel! No im on herbs at the moment. I did 3 weeks IV rocephin about a month ago. I started the herbal protocol a week ago. He stopped the antibiotics because my liver enzymes went high and my white blood cells started to go very low
Thanks for replying jAdam85
Posted 2/29/2016 2:01 AM (GMT 0)
At it's worst it was about 2 weeks. I still get tightness in my head and brain fog but I think treatment has helped with that severity thus far. It was by far my worst symptom so far- I'm glad that has calmed down though. (Knock on wood)

Are you taking Milk Thistle regularly and drinking organic lemon water? I also take Himalaya Liver Care daily as well. This should help your liver.
Posted 2/29/2016 2:04 AM (GMT 0)
See mine has lasted 6 months:( and just seems to be getting worse! I drink lemon water and have detox methods for my liver like cholestyramine and gluthione. Dont have milk thistle but i may buy that and start taking it!
Posted 2/29/2016 2:08 AM (GMT 0)
Traveler posts a really good video for lymphatic massage. I've been doing it for a few days now just to reduce fluid in my head. Maybe try that too!
Posted 2/29/2016 2:38 AM (GMT 0)
Thankyou JAdam85 for your inputs! I will look into the lymphatic massage
Posted 2/29/2016 3:23 AM (GMT 0)
leelee what herbs are you taking? Your head pain, ears and everything sounds like my symptoms. With my herbs they are finally gone.
Posted 2/29/2016 3:33 AM (GMT 0)
leelee - I had the pressure in my head behind my eyes - also when I stood up from sitting my head would pulse/throb. I thought I must have high blood pressure...but when I checked it was always good.

When I laid my head on the pillow i had pulsatile tinnitus - my heart beat was in my head with a swooshing noise.

The minocycline antibiotic really worked on that...along with time/treatment. I no longer have the pressure behind my eyes...and only rarely when I stand up I get a bit of pulsing.

The pulsatile tinnitus is about 80% better now.

I attribute the minocycline's ability to get through the blood/brain barrier to what helped me.

Japanese knotweed is an herb that also penetrates b/b barrier well.
Is it one of the herbs y ou are taking?
Posted 2/29/2016 3:54 AM (GMT 0)
Girlie, so do you reckon its a lyme symptom? Cause i heard it can cause encephalitis etc?:( i may go to my GP tomorrow and ask for a scan or something. No one seems to have it as long as i have! My ear makes a swooshing noise! And i get that pulsing when i stand up too. No not on japanese knotweed. Il speak to my LLMD and see what he says.

Thanks girlie
Posted 2/29/2016 3:57 AM (GMT 0)
leelee I would see what your LLMD says. Everything you describe is what I had when I first got lyme and was not doing treatment. My head hurt, my ears, fast heart pulse, crunching noise in my neck and swollen lymph nodes. It gradually all got better with treatment.

What treatment does your LLMD have you on?
Posted 2/29/2016 4:01 AM (GMT 0)
I was on IV rocephin for 3 weeks, with other supplements, biofilm breakers, liver support, vitamins ,the gluten and sugar free diet,anti virals anti malaria etc etc then i stopped abx because of my liver enzymes going sky high and my white blood cells low and changed to herbs, carrying on the anti virals,anti malaria, supplements etc
Posted 2/29/2016 4:03 AM (GMT 0)
Been on the herbs for a week now Peteza and the head pressure has got so much worse
Posted 2/29/2016 4:07 AM (GMT 0)
Then that means you are probably herxing. You need to up your detox. Not all at once, but you need to add more than whatever you are doing now. You are killing bugs with the herbs but they don't have a good escape route out of your body. You need to clear a path for them to get out. Add some of the items from this list gently. I recommend doing the lemon water daily and every day. Dry brushing every day before a shower will not hurt you either.

www.tiredoflyme.com/detox-methods.html
Posted 2/29/2016 4:09 AM (GMT 0)
One more thing. How many herbs are you on?
Posted 2/29/2016 4:20 AM (GMT 0)
Would a herx last that long though? Its been more intense for seven days now, but had the pressure for 6 months. Okay il try detox more. I drink lemon water every day and i have lemon and ginger green tea. I also have an epsom salt bath every day and take cholestryamine and gluthione. I have chlorella pills and activated charcoal here too but not started taking them, so i may start them tomorrow. Erm, good question, my brain is frazzled haha im on the garlic allicin, and the chinese scullcap scutelleria or something. Then the mushroom pills ( called correlius or something not sure)
Posted 2/29/2016 4:22 AM (GMT 0)
I think im only on two or three actual herbs, the rest is supplements etc
Posted 2/29/2016 4:24 AM (GMT 0)
Those are all good herbs but for the head pain I started with Japanese Knotweed on the advice of one of the Mods and Buhner. You start low and go slow. It is a great anti-inflammatory and it crosses the blood brain barrier. It really helped with my head pain and brain fog.

Here is hoping it will work for you too.
Posted 2/29/2016 4:26 AM (GMT 0)
Yeah ive heard alot about japense knotweed. I may ask my LLMD if i can try this out and if he can send me some! Thanks peteza
Posted 2/29/2016 4:31 AM (GMT 0)
You are very welcome. One other thing that helped with my head pain was cold compresses. I had one of those frozen gel thingies and I would wrap it in a towel and put it on the part that was hurting. It sometimes helped. Also a cold shower running on my head helped sometimes too. I had horrible head pain and narcotics did nothing for it. Had a brain scan and it was normal. I did not want to waste money on an MRI and my doctor agree since my CT scan was negative.

Keep in touch and let me know how you are doing. I hope your doctor says yes to the Japanese Knotweed.
Posted 2/29/2016 4:38 AM (GMT 0)
Haha my mum brought a cold compress to me last night and put it on my head! Paracetamol does nothing at all to the pressure! Im just worried its caused damage to my brain :( just scared really and i get myself worked up about it reading stuff online about different things getting me worried! Yes il keep you updated and me too!
Posted 2/29/2016 4:41 AM (GMT 0)
Awwww a smart Mum!

Remember there is a lot of false stuff on the internet. So choose wisely what to read.

And lyme loves stress. So do not give the bugger any ammunition.
Posted 2/29/2016 6:23 AM (GMT 0)
Many peoples head tension is from the thin scalp fascia (on top of head too) and lower head muscles, even jaw muscles being tight. I wrote a post on releasing it last week titled: Skull/neck/ache tension fascia release!

"Ear pulsing"- I had this for five years, which got 90% better when I aggressively treated my thyroid, before I treated lyme with ABX. It was more pronounced in the left ear- (closest to the heart). Hypo thyroid can happen from lyme and the toxic build up in the body from the die-off too. I think ALL LLMD's need to understand how to check for thyroid malfunction better.

Post Edited (astroman) : 2/29/2016 8:03:38 AM (GMT-7)

Posted 2/29/2016 7:41 AM (GMT 0)
leelee- I don't know if it's lyme or bart. But, mine got better with treatment.

astro -mine is worse in my left ear, too. I didn't realize it was because it's closest to the heart.
Posted 3/2/2016 5:42 AM (GMT 0)
ILADS mentions that if neurological symptoms are out of proportion with other symptoms think Bartonella.

I have Bartonella encephalitis. Take a look at this research. It is VERY COMMON with Bartonella.
http://www.ashdin.com/journals/jnp/235640.pdf

I do truly believe long term lyme can cause encephalitis too. I have seen fellow patients at the clinic with lyme for 20-30 years and it causes big time brain issues but if you have had short time strong spikes in neurological issues most patients including myself have......Bartonella.

Rocephin is NOT a bartonella med according to ILADS. Good for lyme. Does nothing to Bartonella. It did nothing for me.

CT and MRIs rarely show anything even for the worst of us brain sufferers.
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