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Posted 2/29/2016 1:24 AM (GMT 0)
I've posted here a few times looking for answers to my failing health. I am not sure if I have Lyme disease, but I'm in the process of getting my doctor (he is not an llmd) to order the test. I have an appointment with him Thursday and I'm positive he'll be willing to sign it for me. I have been struggling for over a 1.5 years with varying symptoms, but I've been having this odd symptom for a few months now and it seems to be getting worse. It's like when I'm under any kind of stress (it can be very minimal stress) I get these weird head pain and feel like my brain wants to shut down. It sometimes feels like my brain is bubbling, boiling, or electricity type feeling too. I really don't know how to explain it...I will also get head pressure, facial, forehead, and eye pain. I sometimes have this feeling when I'm not stressed but it intensifies under stress. I had a CT scan and it came back normal but I'm wondering if I should ask for an MRI. Has anyone experienced anything like this before?
Posted 2/29/2016 1:38 AM (GMT 0)
Ive literally JUST posted a thread on this haha! I have had constant head pressure for 7 months now, on my forhead, temples, top of my head, ears, eyes and face! I get burning sensations and like you said weird bubbling feelings! My face and head feels full and heavy like it needs to explode. Horrid! My mri and cat came back clear but i had them in september. Im thinking i may go back and ask for another incase
Posted 2/29/2016 1:40 AM (GMT 0)
I think it is a common symptom though with lyme. The brain can become inflamed and so causes this pressure
Posted 2/29/2016 1:56 AM (GMT 0)
Thank you for the response! I'm sorry you are feeling this way too. Does stress or anything make it worse? Today has been a really bad day for me with this. :(
Posted 2/29/2016 2:02 AM (GMT 0)
if im honest i dont think stress has made it worse. Ive tried really hard to relax and keep calm and i still have the same pressure. The only thing ive noticed is that its got worse this past week when i started taking the herbs im on. So im not sure if its like a herx or something but now i just have an even more intense pressure which doesnt go away which makes me think it isnt a herx! All so complex!! But stress will make anything worse though, thats kind of inevitable!
Posted 2/29/2016 2:06 AM (GMT 0)
Yes you are right stress will make anything worse. The pain/pressure keeps moving around my head too. I hate not knowing what's causing all of this. I'm not wanting to have Lyme disease, but I'm scared of what else could be causing all of my symptoms.
Posted 2/29/2016 2:16 AM (GMT 0)
What other symptoms do you have?
Posted 2/29/2016 2:40 AM (GMT 0)
Anxiety and depression for the first time ever in my life, panic attacks, numbness, itchy prickly crawling skin, extreme fatigue, brain fog, muscle and joint pain that travels, shortness of breath, low body temperature, shooting pains through limbs, left side abdominal pain,heart palpitations, memory problems, dizziness, eye floaters, etc. I'm sure here are more but I can't think of anything else right now. The mental symptoms are by far the worse. It has been going on since July of 2014. Last October it got so severe that I had to quit my job as a teacher.
Posted 2/29/2016 4:11 AM (GMT 0)
I have to say i have all those symptoms. If i were you i would seek a lyme literate doctor and get a test sent to igenex for lyme and co-infections. Normal tests for lyme are so unreliable if they dont get sent to the specialist places like igenex or one in germany. Many come back negative even though you do have it. All them symptoms are indicators of lyme and i think you really need to try seek a lyme doctor to help you! It is known as the great imitator as all the symptoms can be so many different conditions. Thats why people get misdiagnosed for having M.E or lupus or depression! The faster you get a test done the better it will be for you
Posted 2/29/2016 4:14 AM (GMT 0)
Im not sure where you're from but if you're from the UK i can tell you a place as im from england
Posted 2/29/2016 4:43 AM (GMT 0)
Faith I wrote this to leelee in another thread and wanted to share with you.

I hope this helps you too.

One other thing that helped with my head pain was cold compresses. I had one of those frozen gel thingies and I would wrap it in a towel and put it on the part that was hurting. It sometimes helped. Also a cold shower running on my head helped sometimes too. I had horrible head pain and narcotics did nothing for it. Had a brain scan and it was normal. I did not want to waste money on an MRI and my doctor agree since my CT scan was negative.
Posted 2/29/2016 4:50 AM (GMT 0)
At my request my dr has ordered some igenex test kits. He actually had my blood sent to them but he ordered the PCR test :(
I really wasn't aware at the time that there were different test through igenex. That was wrong on my part and I should have looked into it more. I'm going to get him to order the western blot through igenex when I see him this week and go from there.
Posted 2/29/2016 4:57 AM (GMT 0)
Thank you PeteZa. That does help. I'll try those things you suggested. Is it possible for Lyme to be worse on one side of the body? I have a lot of my symptoms on my left side
Posted 2/29/2016 6:15 AM (GMT 0)
I've had similar strange head/brain symptoms for over five years. I'd had all kinds of diagnostic test, including numerous MRIs. But I was finally diagnosed with Lyme disease and a babesia coinfection along with positive Epstein Barr virus (that causes mono). My headache symptoms sounded similar: burning sensations, pressure on the sides/front/ back, tingling, sometimes it just feels like my brain is on fire. My two doc (land) both think these symptoms are attributed to Lyme (especially since everything else had been ruled out). Good luck. I've just started treatment. It's not fun but better than continuing to get worse.
Posted 2/29/2016 7:44 AM (GMT 0)
Faith - yes, it is possible for lyme symptoms to be worse on one side of the body.

My left side is way worse than my right side.
Posted 2/29/2016 7:51 AM (GMT 0)
Hi Nulasol - welcome to our community!

Sorry, I didn't realize that you were new here...until now...

Is one of your Dr.'s Lyme Literate?

Because you are new here - it would be helpful for you to read through the "New to Lyme?..Start here!" thread at the top of the page. It's got a lot of great information - symptom lists, info on probiotics, detoxing suggestions and more.

I hope you find this to be a knowledgeable and supportive community...and keep coming back to read, post, ask questions.
Posted 2/29/2016 12:01 PM (GMT 0)
I am suffering with the same issues. I was ok for a few years. Not great but was not horrible. about 2 weeks after the holidays everything started up again. Head pressure, neck pain, tingling really bad on top of head, balance issues, heart palps, waves of lightheadedness and dizzy spells, just to name a few. Here we go again. Back to the dr to get a script for an MRI which I have not had in four years. The MRI said I had white matter disease. I am going to the neurologist this thursdsy for the follow up so I will see what he has to say.

Next month I have an appt with an acupuncturist who also treats with herbs, so we will see what happens there.

I was thinking to go back to my LLMD dr but he is 2 hours away and mostly treats with abx. Not anxious to go that route.

So i guess we are all in the same boat. You guys are not alone with these symptoms. The question is will this ever get better. This is chronic lyme that I feel will come and go forever. What a way to live. It really stinks.

I am sorry if I sound so negative but I have been dealing with this stuff for over 10 years and it stifles my life. Everybody I know can lead perfectly good lives and I feel I have to be careful with every move I make. Watch what I eat, make sure to detox, try not to over exhaust myself, spend fortunes of money on supplements, drs.etc. I am tired of it.

Sorry for the rant. I am just venting.

I truly hope all of you find a cure and get better.

Best wishes to all.
Posted 2/29/2016 12:13 PM (GMT 0)
Yes Faith, the exact same thing happens to me, I have the electric pain few times a day but when under stress, especially at work, I feel Im under attack, the pain would intensify and last from 30 min to hours. Feels like hundred knives stabbing me all over my head, and I feel like I'm gonna have a stroke or a seizure.
Posted 2/29/2016 3:41 PM (GMT 0)
Thanks for all the replies. Although I hate that all of you share in my symptoms I can take a little comfort in knowing I'm not alone.
Posted 2/29/2016 4:02 PM (GMT 0)
My right side was more pain involved than my left. My right eye weeps more, was tender to the touch, my right ear was more often the one plugged and definitely the place behind my right ear was where my head pain was the most horrific.

Lyme is not predictable. Because I thought my right side was more laden with bugs than my left and then all of a sudden it was my left arm that felt bruised from nothing.
Posted 2/29/2016 6:29 PM (GMT 0)
head-face issues I always tell people to see a biological dentist. Its amazing how many times they find and fix the issue and people get better
My regular dentist almost killed me and biological dentist saved me.
Its worth checking into-find a god biological dentist and ask for a checkup no downside to that
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