severe neuropathy pain

I have been in treatement 3 1/2 months with no change in pain. My main problems are burning pain to forearms and lower legs and feet. If anything its worst now than before. When will i see any change in the burning pain?

minocycline 100 mg 2x a day
azythromycin daily
grapeseed extract

plus supplements

Sorry you're dealing with this!

A worsening of symptoms after starting treatment is a herx. What all are you doing for detoxing?

No matter what, please consider increasing your detox and continuing to do so - it's our only chance of easing symptoms and being able to endure treatment.

Here's our famous link:

www.tiredoflyme.com/detox-methods.html

For neural pain, Buhner recommends:

Greater celandine tincture, 1/4 tsp 3x daily plus
Kudzu tincture, 1/2 tsp 3-4x daily

Also, many people have achieved relief from their pain by taking LDN (Low dose naltrexone). It's a prescription med that LLMD's often prescribe. Here's some info:

lowdosenaltrexone.org/

And yet others have had success with CBD oil.

There's no quick fix for symptom relief but there are a few solutions.

Best wishes finding what works for you!

Roxy - I have nerve pain, too. I don't use any pain meds though...and I have thought the opposite - that if I don't stop that pain cycle my brain won't stop sending the signal...
We are both worrying because it's a horrible symptom.
My nerve pain is bad, but not severe.

If you are masking the symptoms..you are lucky...I know people on pain meds who can't get much relief still.

I guess you could lower your dose of pain meds and see how you feel...at some point. What does your LLMD say?

I certainly hope the nerve pain will go away once healed. I'm seeing it as one of the many symptoms that will resolve with appropriate treatment. I think it could take a while though, as the nerves can take longer to heal.

My symptoms started April, 2014 - with left shoulder blade/neck/ pain and numb, limp left arm and hand.
It got a lot better over the next couple of months, and then things turned in the other direction - around August (anxiety, trouble falling asleep, lump in my throat, and my left arm, shoulder blade area started to have vibrations and nerve pain)

As time went on, I continued to get more and more symptoms - tremors, weakness, sweats, joint pain,etc., etc.
Then after treatment started, I got nerve pain in other areas of my body. It moves around...lately I have nerve pain on my left shin...some days I just have this overall body nerve pain...burning pain and can't put my finger on exactly where it is...

I think most people on pain meds still have pain...so I think they will know when treatment resolves the pain.

What am I taking? Well, I feel treatment and time is the best thing.
I have been taking ALA since treatment started...and recently added Kudzu and Greater Celandine from Woodland Essence.
Along with that, I make sure I take my B vitamins (needed for healthy nerves), extra B12, Vitamin C
May be a few more things that I'm forgetting.

Roxy - I can't even remember how many times I have doubted lyme - usually when I'm herxing and fear takes over.
I'm Igenex positive...and all my symptoms couldn't be explained by any one illness...unless it was a really severe autoimmune illness - like Lupus attacking my joints, nerves, brain...etc...etc.
Lyme and bart - does make more sense...when I'm not being fearful...but rational. Also, I have herxed on antibiotics..

Not everyone has brain issues.

Honestly, No, I don't think you have a false positive. It's CDC positive.
I don't think there are false positives.

Twitching, nerve pain, heat, joint pain...they're all lyme symptoms.