Lyme Information to Share with Non-Believers

I'm looking for infographics or a short article to share with some family members that are believing the CDC that chronic lyme does not exist or that we are being "duped" since it isn't covered by insurance.

We finally set up a GoFundMe page to help with expenses since we are swimming in debt at this point and can no longer afford appointments. We've received many kind messages and I'm in awe of how many people that we know who have had or have chronic lyme.

But, we've also received a message from my husband's cousin saying we are being duped. She's spoken with some "leading doctors personally" and is sending us and all our family members info from them.

"After many years of working in healthcare — my instincts made me a little but suspicious that you might be being “taken for a ride,” when I hear that the treatments weren’t being covered by insurance.

Why? Because usually only treatments that don’t have a proven safety or efficacy record as the ones that aren’t recognized by insurance."

"My understanding is that both diagnoses – chronic Lyme disease and fibromyalgia – are legitimate. But my public health experience reminds me that a number of unscrupulous practitioners set up Lynn disease mills, gave out the diagnosis freely, and then made money hand-over-fist as they prescribe expensive home therapies.

The kind of questions I would ask about the chronic Lyme disease diagnosis would include the following: Was there indeed a history of exposure to the Lyme tick? On what testing was the diagnosis made? Two-step testing done?"

I'm really frustrated and just want to at least privately send her some information.

Thanks for any help!

Here is my personal opinion and in no way do I believe that I know more than anyone else. You cannot talk anyone into believing anything. If you argue with an idiot, who is the idiot?

My Momma would say, be polite and kind and ask if they would like the information that you have based your knowledge on. If they ask to see your information, then freely give it to them (I will provide this down a ways). But why argue? This will cause you so much stress. I have a son-in-law and a daughter-in-law that think I am lying about lyme. I can tell by the way they never ask me about it and they never ask how I am doing. He is a biologist and she is a nurse for head trauma injury patients. I can see it in their eyes their lack of compassion and understanding. They are polite and now it is the white elephant in the room when we are together. I do not discuss my health with them at all. I wish they understood, but I am too close to be their educator. Someone, some day will come along but I can't take this on. It is too much for me. So I pray for them.

Now here is what Traveler wanted to post but her computer was acting up:

I'm so sorry!! Sometimes there's nothing you can do about it, but take a look at these articles to see if you can find something useful in them. You might also remind that chronic infections are not uncommon at all.

Under Our Skin (Lyme Disease documentary):

www.hulu.com/watch/268761

continued from Traveler:

10 Things To Remember If You Love A Person Who Have Lyme Disease
/www.linkedin.com/pulse/10-things-know-when-someone-your-life-has-lyme-disease-annie-dance

underourskin.com/news/chronic-lyme-real-or-imaginary

Thank you so much, PeteZa! My computer has had it's morning coffee now and is doing better.

Here are some more (LOL!) links that you will likely find helpful:
"Erythema chronicum migrans (Afzelii) associated with mosquito bite."
This article must be paid for in order to read it, but the title kind of says it all (Erythema chronicum migrans is the bull's eye rash that we talk about here.)
www.ncbi.nlm.nih.gov/pubmed/4163724

"Lyme disease can also be transmitted by contact with body fluids such as urine, tears, semen, contaminated blood and breast milk. Plus, it is not only ticks that now carry the Lyme spirochete, but also mites, spiders, mosquitoes, fleas and biting flies."
rense.com/general94/provenlym.htm

"Ticks and biting insects infected with the etiologic agent of Lyme disease, Borrelia burgdorferi."
"Members of 18 species of ticks, mosquitoes, horse flies, and deer flies were collected in southeastern Connecticut and tested by indirect fluorescent-antibody staining methods for Borrelia burgdorferi, the etiologic agent of Lyme disease."
www.ncbi.nlm.nih.gov/pmc/articles/PMC266646/


"Researchers have found the pathogens that cause Lyme disease in mosquitoes for the first time in central Europe."
www.shoutoutaboutme.com/tick-borne-illness/german-study-finds-borrelia-in-mosquitoes/

This makes me SO FURIOUS!! IM IN A 'lyme rage' now...oh wait-a-minute, that doesnt exist so its just me, all in my mind and I MUST CONTROL it-just control it!

Why is there even a such thing as "non-believers" for lyme? Do diabetics, M.S., ALS, parkinsons, lupus, heart patients and cancer peeps ever get that 'non-believer' reaction?

Kathie said...
Somebody posted a quote recently which said (more or less) When you argue with an idiot, which one's the idiot?

(Who said that???)

I love that quote and it's become my personal reminder not to even waste a minute of my time trying to convince the idiots.

They'll get theirs...in due time. It's Karma, baby!

PeteZa shared the quote in this thread and Mark Twain is the originator (and it was echoed by George Carlin)

Yep, I totally believe in Kharma....what goes around, comes around.