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Babesia: air hunger and heart
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Violet Thomson
Regular Member
Joined : Mar 2014
Posts : 117
Posted 3/28/2016 9:28 PM (GMT 0)
So two weeks ago I found out I never got rid of the Babesia from 3 years ago. Which wasn't surprising at all. I complained for years after that I didn't think the Babesia was gone since my ferritin would nose dive occasionally.). I took Mepron for about
3 months with only a one month over lap with azithromycin. I also have WA-1 or Babesia Duncani. (Which I've heard is worse getting rid of than microti in most people.)
It's definitely still there. They did the stain.
Since my Bartonella antibody test came back positive and I had terrible bone pain and sole pain, we decided to treat that first. I went on rifampin and biaxin 2 weeks ago.
So, since then I had one night of drenching night sweats. The first time ever had that. Then in church last week I noticed I was out of breath, which is a problem since I have to sing in the choir. Then I noticed my pulse was racing last Sunday though I had been sitting down for a while. In the past I've been asked if I'm a runner because my bpm is so low. Yesterday it got worse and I felt dizzy, like my heart was going too fast, and I can breathe just fine. It's just like I can't get my blood "oxygenated" or something. (And I'm not taking shallow breathes and it's not a panic attack. I swear.)
So, I went to the doctor today. My bpm was at 105 but he thought it was anxiety and told me just to monitor it. My pulse is often at 85 or 95 when resting.
So, should I just ignore it? I'm confused why Babesia decided to take vengeance when I started the Bartonella treatment....unless it somehow is Bart? :/ Could it possibly be a heart problem or another problem? It just making me a littl nervous.
Rikky1
Veteran Member
Joined : Jun 2015
Posts : 3153
Posted 3/28/2016 11:56 PM (GMT 0)
Violet I also have Babesia Duncani and Bartonella. I was lab positive for Lyme and Babesia but not Bartonella. 10 months into treatment the Bart came out with a vengeance when I started Rifampin and Cipro. This was back in mid-Nov. I'm getting similar heart conditions as you are as it tends to race at different times during the day and feels like it's going to pop out of my chest. It's always racing but the really bad episodes can last 10-15 minutes or all day.
I'm chalking this up to Bartonella as its known to cause this. Babs can also. I don't have the out of breath or drenching sweats which is more Bart symptoms so your situation sounds a bit more complicated than mine.
Rifampin and Biaxin is a good combination for Bart but only the Biaxin will have any impact against Babs as its similar to Zithromax. Are you well enough to add Mepron to the mix? Or you may want to go with the current combo for a while since you are probably stirring up the bugs and that's why the symptoms are coming out.
Nilrin
Regular Member
Joined : Nov 2015
Posts : 99
Posted 3/29/2016 12:01 AM (GMT 0)
Unfortunately both can cause heart problems. I'm in the same boat, and mine seems to be more orthostatic, where it races when I'm standing. I have the air hunger too, but it's minor, like a feel I need to take really deep breaths for no reason. Don't let your doc tell you it's anxiety. Oddly, I was the one to suggest it for myself and the doc put me on anxiety meds for a couple days to test the theory, and this was under hospital conditions. They had no effect, so I doubt it's anxiety.
Obviously anemia can cause air hunger and rapid heart rate. From what I understand there are other signs of anemia when you have it. Also keep in mind that not only Babs can cause anemia. Any chronic infection can. Personally I would treat for what you know for sure you have, and then take it from there.
Nilrin
Regular Member
Joined : Nov 2015
Posts : 99
Posted 3/29/2016 12:05 AM (GMT 0)
Rikky1 I thought night sweats is from Babesia?
Rikky1
Veteran Member
Joined : Jun 2015
Posts : 3153
Posted 3/29/2016 12:29 AM (GMT 0)
Yes Babesia causes the night sweats. When I said chalk it up to Bart I was talking about
myself. Violet could have a more complicated issue where she's getting symptoms of both Bart and Babs that are either co-existing or overlapping. Best thing to me (in my humble opinion) is to stay on the Rifampin and Biaxin for a while and see if the symptoms improve. Because Bart and Babesia Duncani can both be stubborn little buggers it could take a while. I'm facing a similar challenge on whether to stay with my Rifampin/Doxy combo which I'm a few weeks into and my patterns haven't changed I was also on Biaxin for 3 weeks before this.
Violet Thomson
Regular Member
Joined : Mar 2014
Posts : 117
Posted 3/29/2016 1:53 AM (GMT 0)
Thanks for the responses. I guess the heart and air hunger problems freak me out a little.
It's difficult to determine what's what sometimes. I didn't realize the biaxin goes against Babesia, which might explain why it's rearing its ugly head. So I'll ask my doctor if I can add Mepron in two or three weeks when I see him again.
My doctor didn't think the air hunger was anxiety, rather my bpm at 105 resting, but I think he meant more like being-at-doctor-anxiety rather than anxiety-anxiety.
But I get periods of anxiety too but not too bad. Mostly I literally think the world's about
to end and I have to tell myself to shut up and it goes away after a while. I think it's one of the co-infections messing with my head. :/
yancync
Veteran Member
Joined : Nov 2015
Posts : 584
Posted 3/29/2016 1:59 PM (GMT 0)
DS is being treated for Lyme, mycoplasma and babesia currently. He has bad air hunger (worse now with the treatment) and was recently prescribed an albuterol inhaler (which is often uses with a spacer) because air hunger is his number one complaint.
If that didn't work they wanted to try a very small dose of ativan (works also on anxiety I believe but is addictive so I want to avoid if possible).
They explained it this way if my memory is working correctly: they think that babesia is messing up the nerve signals and the albuterol will send that missing signal to the brain to relax the smooth muscles. Ativan will do this too.
FWIW the albuterol is working - DS went from feeling like he was getting 50% air in to 75% when he uses the albuterol. He has strict instructions from me to tell me if he feels anything going on with his heart but so far no complaints there. He has not admitted to having anxiety but I'm not sure he would - he's a teen after all. I don't see signs of anxiety.
jrpsf
Veteran Member
Joined : Aug 2014
Posts : 1762
Posted 3/29/2016 6:04 PM (GMT 0)
Violet-I've started doing ozone therapy and I've noticed that it's calming my heart issues. I started doing ozone to try to speed up the process of getting my memory back and other brain issues. The lowering of my blood pressure has come as a nice surprise. It's something to consider.
Violet Thomson
Regular Member
Joined : Mar 2014
Posts : 117
Posted 3/29/2016 6:46 PM (GMT 0)
If the air hunger gets worse I'll definitely ask the doctor about
the abuterol. I guess the Babesia must be messing with the nerves or I do have anemia- I asked the doc to test for that yesterday.
Glad to hear your son is feeling better with the inhaler though!
I'm reluctant to do ozone therapy until I exhausted the more traditional methods, the Babesia and Bartonella hasn't been treated properly ever. But I'll keep that in mind!
blueberrymuffin
Veteran Member
Joined : Mar 2016
Posts : 1467
Posted 3/29/2016 9:27 PM (GMT 0)
Could someone give me a link where all possible Bab symptoms are listed?
Leilex
Regular Member
Joined : Mar 2014
Posts : 294
Posted 3/29/2016 9:39 PM (GMT 0)
I've heard Bart can also cause night sweats, but the sweats are located more in the chest region. Also mycoplasma. The infections have a lot of overlapping.
I can say this happened to me right when I started treating Bart. Never before.
I have experienced the racing heart issue. Terrible. For me, it was def Babs not Bart.
yancync
Veteran Member
Joined : Nov 2015
Posts : 584
Posted 3/29/2016 10:36 PM (GMT 0)
Here's a link to someone who copied Dr. Schaller's lists for bab and bart.
lymebytes.blogspot.com/2011/09/bartonella-and-babesia-symptom.html
TOOTY
Regular Member
Joined : Apr 2014
Posts : 270
Posted 3/29/2016 11:09 PM (GMT 0)
blueberrymuffin said...
Could someone give me a link where all possible Bab symptoms are listed?
Here is another list from another forum:
flash.lymenet.org/script
s/ultimatebb.cgi/topic/1/105141?
TOOTY
Regular Member
Joined : Apr 2014
Posts : 270
Posted 3/29/2016 11:14 PM (GMT 0)
Sorry, that forum has been having accessibility troubles the past couple days and I see my link does not take one to the desired thread. If you google
"consolidated list of babesia symptoms lymenet.org"
it should be the first hit. Sorry about
that.
Jackie Moon
Regular Member
Joined : Apr 2014
Posts : 412
Posted 3/30/2016 2:24 AM (GMT 0)
@Violet I am Bartonella positive and have Babesia duncaii too. I am not sure who mentioned Babesia duncaii is harder to get rid of than microti. I wouldn't agree with that assessment. I have met a lot people at clinic with one strain or another of babesia. Frankly I seems to depend on our bodies how well we get rid of these infections. Some can get rid of some infections easier than others. It is really a complicated matter as you may have gathered by now.
I dont get heart palps , air hunger, drenching sweat from bartonella. When I was herxing on babesia meds it was a nightmare. I would wake up at night thinking I was having a heart attack and unable to catch my breath. I could see how Bartonella could cause some heart issues as it "can" cause endocarditis I just have been lucky to not have issue with that ( I am unlucky in that my Bartonella causes relapsing encephalitis which has put me in the ER a couple of times ).
Some good news is that I have babesia duncaii in blood tested remission from using herbs and abx combo. It didn't take all that much time to get it into remission just some super strong herxing. Duncanii hasn't been as problematic for me as bartonella which I can't seem to get under control just yet.
blueberrymuffin
Veteran Member
Joined : Mar 2016
Posts : 1467
Posted 3/31/2016 2:00 PM (GMT 0)
thank you very much
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