After 2 months and 20 days Abx treatment, getting worse

If you treat a co-infection - for example: Bartonella. Lyme will be treated with it. For example if you take Rifampin, it can be paired with biaxin...or minocycline...etc. So those additions will also target lyme.

You've given lyme only almost three months now...so yes, I would go after a co now.

My LLND waited too long - I was on lyme only abx for 9 1/2 months.

It could be the shin bone pain, and foot pain and chills, rib pain are due to bartonella...and as you targeted lyme, the bart symptoms started to come to the forefront.

White tongue? That is a sign of a fungal infection - are you doing anything for Candida? Taking Nystatin?...or on a Candida diet...or taking something natural? Also, the loose stool may be Candida.

Question - your chills that you have now - are you usually cold? or not... Do they happen randomly all day?
I have them...and they seem to be part of my nervous system overdrive symptoms.

You share a lot of my symptoms:

I also have sore shoulders, upper back pain, rib pain, foot pain,and I lost 14 lbs in a matter of weeks in the beginning of my illness.
But, I do have body pain...and many other symptoms.

I agree with girlie. It could be a confection that is causing issues too. Also because of herxing reaction from when you kill off the bacteria you will feel worse when it's working. They release all their toxins when they die and if you don't detox you'll just feel like crap!!!

Detox is very important and so is switching up the antibiotics you're taking. Sometimes you can be allergic to the antibiotic. My llmd recently swapped up my antibiotics and I found out azithromiacin makes me have really bad side effects.

It's also good to take very small breaks from antibiotics to let your body heal a bit. I started out 3 weeks on and one week off and now have gotten to one week on and three off a few years later (but I did take off antibiotics for one year to finish college which set me back a bit). But at the end of each cycle my llmd has me take flagl for two days because it's really good at killing off the buggers but also harmful to your body to take too long.

I did not feel better at three months into treatment.

What you can do to help - is detox - many methods daily...

Girlie,
Candida is normally caused by Abx killing the good bacteria, right? But I had the white tongue on set of my first flu like Lyme sickness. Can Lyme cause white tongue as well?

Davidy - even people who don't take long-term antibiotics can (and do) get Candida.
Candida is existing in everyone...and it is opportunistic.

I think having a lowered immune system can contribute to a Candida infection.

A diet high in sugar, simple carbs can contribute to it.

I don't know what else a white tongue would indicate...

Bvt is fun and takes fog away for a bit...i met a lady today who was on 3 abx 1 iv and was like meh...she was 3 months in....herbs alone have turned my toung white. ..could be circulation i suppose...

Yep, 3 hours away from EVERYthing....no food, no meds, no probiotics, no supplements, no nutritional drinks.

Activated charcoal absorbs EVERYthing and that's why it needs to be spaced from things that benefit us.

Many people take their binders at bedtime or in the middle of the night if they get up to use the bathroom because it's hard to find a 6-hr window during the day since we all take so much stuff lol

Are you taking CoenzymeQ10? If not, start. It really helped me with the fatigue when I started treatment.

You've got all good advice thus far. Alka-seltzer gold is good for detox, too. It seems you can take that anytime. Unless I'm forgetting something.

Oil pulling is another great thing to add to your detox. Also, if you start using coconut oil in your diet, it has candida killing components but start slow. Just do an internet search for oil-pulling. You can do it on the worst of days.

Been where you are at with the fatigue. Hoping not to be there ever again but who knows? It is miserable but all you can do is go with it, treat yourself well and detox.

The other thing that I really encourage is diet. NO sugar, no grains whatsoever. As much organic or better as you can afford.
And most importantly, add some fermented foods into your diet immediately.

Start slow but the good organisms will populate your gut and re-establish a proper balance in the microbiome again. I had the highest levels of candida that my LLMD had ever seen last June. Last month my level was 0.0 and I credit fermented foods with most of it, although I did take diflucan for one month last year.

Cannot stress diet and fermented foods enough. We have to feed our body the things it needs to do the job and we have to eliminate the things that put roadblocks in the way of which crappy, pesticide laden 'frankenfood' is a big one if not THE big one. ABs can be helpful but ultimately our immune system is the thing to get the job done. IMHO. Not that I know anything magical but this is my gut feeling of the whole situation.

You aren't alone!

Thanks so much Tillybear and K07, I learned a lot from you guys, appreciated your help!

In order to avoid grains, any "good carb" food I can have in diet? Do you completely exclude carb in your diet? If so, the only choice left is veggie and protein?

Post Edited (davidy) : 4/21/2016 12:24:51 PM (GMT-6)

Some LLMD's do treat bart and babs at the same time...but prepare yourself - you could have a massive herx.

I would not start all meds at once.
Too much, too soon.

So, I would start with biaxin for a week. Then adding the Rifampin.

After a few weeks, add in the Artemisinin.

How long are you planning on taking the Artemisinin? Most LLMD's will have you pulse it, as the intestines develop an enzyme that destroys it if you take it continuously.

Dr. M.R. (a LLMD ) - said 3 days on and 11 days off.
Another well know LLMD - pulses it M/W/F
And a forum member did 10 days of - with a few weeks off and 10 days again....etc. (I believe it was 3 rounds of Art)

So I checked the Drug interaction checker :

"Rifampin atovaquone
Applies to: rifampin, Mepron (atovaquone)

Ask your doctor before using atovaquone together with rifampin. Using these medications together can make atovaquone less effective. Contact your doctor immediately if your infection or condition worsens. You may need a dose adjustment if you use both medications. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor."


So - probably not a good combo....